Why won’t the MS Society help people?

[1eye]

I must say your absolute knowledge regarding just about everything is quite amazing. I am truly blessed to have some of my more "egregious statements " quickly dismissed by you as niave instead of as the thoughtful comments I truly intend them to be. As you so state a doctor is not just someone who is a "medical person" it is also someone with their PHD in anything from geology to history. My concern with many geologists however is that they are beholden to interests of the The Geological Society of America and are therefore unwilling to think outside the "geological box". I think you accidentally referred to Mr. Embry as Aston. You forgot the H.

Ashton, indeed, no relation to British car. He has from the very beginning been trying to help his son, who is now found to have CCSVI, and last I heard was getting treated in Poland. Having been reading his stuff since the late 1990s, knowing that does my heart good. I am quite familiar, as I'm sure many are on this forum, with his story. Sometimes the boxes, like the MS Society's box that it has built itself into, are exceedingly small. Much smaller than is commonly thought. But we all have to learn to think outside them.

Watch out for geologists from Alberta. Some of them have made quite a few bucks off of the oil boom. They might be beholden, as you say. Much conflict of interest in the old "geo-box".

I don't hate the 'MS' Society. I just wish they would go away.
http://alturl.com/snhhk

[welshman]

Scorpion, the sad part is the new Society would likely have a lot of members. What truly irkes me re the MSS is the fact their goal is to end MS, but how can they possibly come anywhere close to that goal when they deny the potential of a new trreatment - yes, theres a lot of work to be done, yes their Neuro pals aren't happy with their auto-immune theory being called into question, BUT surely Savoie and the rest of the HO people and the local Chapters who are getting to see the improvements of their Members who have been treated , surely someone must have the opinion that CCSVI is truly worth putting into a trial - that woud be a treatment trial, forget blinding, treat the people and see what happens.

Of course even if this was to happen, would they actually follow the Zamboni Protocols or would they just do things like the German & Swedish studies that the CIHR reoprted showing no such thing as CCSVI ????

I suppose I am now so skeptical of anything to do with the MSS that I would not believe their study results unless there was some truly strong oversight - such as Sandy MacDonad and Ashton Embrey being fully involved - a qualified vascular surgeon and a scientist who can ensure things are being done as they should (so what if he's a geologst, he sure as Hell knows a lot about MS and CCSVI).