New Globe and Mail article: The cure for MS includes...

concerned · Post by **concerned** » Wed Sep 08, 2010 9:20 am

PCakes · Post by **PCakes** » Wed Sep 08, 2010 9:39 am

Well written..good composure.. I'll give it an 'A' for bias. Why do these 'learned' articles always neglect to mention compassionate treatment? I coould sure use an explanation why/how angioplasty is being denied as a lifesaving measure? Can you imagine standing by a loved one knowing that there might be help? I can't...
I just don't get it!!!!!!!!!!!!!!!
Concerned, do you know?

concerned · Post by **concerned** » Wed Sep 08, 2010 9:45 am

I think angioplasty [for MS] is being denied as a life saving measure because it hasn't been demonstrated to save lives.

PCakes · Post by **PCakes** » Wed Sep 08, 2010 9:48 am

concerned wrote:I think angioplasty [for MS] is being denied as a life saving measure because it hasn't been demonstrated to save lives.

concerned · Post by **concerned** » Wed Sep 08, 2010 9:52 am

PCakes wrote:
concerned wrote:I think angioplasty [for MS] is being denied as a life saving measure because it hasn't been demonstrated to save lives.

Where has it been shown to have lifesaving potential beyond anecdotal reports?

LivabirdsHubbie · Post by **LivabirdsHubbie** » Wed Sep 08, 2010 9:57 am

concerned wrote:
PCakes wrote:
concerned wrote:I think angioplasty [for MS] is being denied as a life saving measure because it hasn't been demonstrated to save lives.

Where has it been shown to have lifesaving potential beyond anecdotal reports?

Life saving may mean different things depending on how bad you are.
Personally with my wife, just having some improvements is life saving to her... the condition she is in, she talks about Switzerland, so yes if this helps in the slightest it is truly LIFE SAVING ... also perhaps if you read about Barb Farrel(not sure if that is the last name).. I would say her family and herself would say this is LIFE SAVING

PCakes · Post by **PCakes** » Wed Sep 08, 2010 10:13 am

LivabirdsHubbie wrote:
concerned wrote:
PCakes wrote:
Where has it been shown to have lifesaving potential beyond anecdotal reports?
Life saving may mean different things depending on how bad you are.
Personally with my wife, just having some improvements is life saving to her... the condition she is in, she talks about Switzerland, so yes if this helps in the slightest it is truly LIFE SAVING ... also perhaps if you read about Barb Farrel(not sure if that is the last name).. I would say her family and herself would say this is LIFE SAVING

Main Entry: anecdotal evidence
Part of Speech: n
Definition: non-scientific observations or studies, which do not provide proof but may assist research efforts

Liva, thank you..well said..

Concerned.. there are many extreme and unproven measures taken in the attempt to save lives when all other known treatments have failed..the key is not that it be 'proven' as life saving, the key is that the 'attempt' be allowed!

PCakes · Post by **PCakes** » Wed Sep 08, 2010 10:59 am

Extract from http://healthblog.ctv.ca/post/An-open-l ... CCSVI.aspx

"Given that fact, how do the same neurologists on the panel, who continue to prescribe immune-modulating drugs of questionable efficacy and significant toxicity, justify their current refusal to recommend a trial of unblocking veins in patients with progressive forms of the disease for whom there is no effective therapy?"

Hear hear...

1eye · Post by **1eye** » Wed Sep 08, 2010 11:07 am

[this post has been edited to remove personal attack content]

Well, I am concerned again. First of all, concerned that people [removed] need to have it proven that something can save lives. [removed]

Also, concerned that we are again wasting time [removed]

Concerned that I am growing to wish [removed]

Concerned because I fervently wish [removed]

[repeated placebo argument]

Don't want to waste a lot of hope on the hopeless. [removed]

[moderator note]
http://www.thisisms.com/ftopicp-1639.html#1639

If you disagree with someone, please succintly state why and let it go at that. Point, counterpoint, counter-counter point, etc. is not useful-- the reality is that after the first disagreement, you will rarely convince another of something they feel strongly about unless you have shocking new information to share. The drawn-out debates also turn people off from reading the messages in the first place. If you really have to get something off your chest, please send that person a Private Message-- there is no need to have a long argument in public.

thornyrose76 · Post by **thornyrose76** » Wed Sep 08, 2010 11:23 am

concerned wrote:
PCakes wrote:
concerned wrote:I think angioplasty [for MS] is being denied as a life saving measure because it hasn't been demonstrated to save lives.

Where has it been shown to have lifesaving potential beyond anecdotal reports?

There have been numerous videos posted online givingproof of it's benefit, do a little bit of research, watch it . Yeah there are some that show not much if any improvement, while others it is obvious, and it is hardly placebo effect. You are hardly concerned about any MS sufferer if you are so quick to pan the theory.

concerned · Post by **concerned** » Wed Sep 08, 2010 12:06 pm

1eye wrote:

How about discussing the article rather than wishing for me to get sick and whatever else you implied about me.

concerned · Post by **concerned** » Wed Sep 08, 2010 12:09 pm

thornyrose76 wrote:
concerned wrote:
PCakes wrote:
Where has it been shown to have lifesaving potential beyond anecdotal reports?
There have been numerous videos posted online givingproof of it's benefit, do a little bit of research, watch it . Yeah there are some that show not much if any improvement, while others it is obvious, and it is hardly placebo effect. You are hardly concerned about any MS sufferer if you are so quick to pan the theory.

What about videos of people showing improvements after faith healing? Should the government pay for that too?

Also, I am concerned about my mother, which is why I'm feeding her right now.

frodo · Post by **frodo** » Wed Sep 08, 2010 12:16 pm

concerned wrote:I think angioplasty [for MS] is being denied as a life saving measure because it hasn't been demonstrated to save lives.

Is there any study showing that throwing a flotation device to a drowning person can save his life? I doubt it, because it is so obvious that probably nobody has ever cared about such a study.

Should be fix malformed veins of people with neurological diseases of unknown cause? I cannot see why not.

EDIT: By the way, shouldn't the Canada health ministry be consequent with its own decisions and forbid throwing flotation devices to drowning people? Maybe we should request them such a prohibition until proper studies are performed and published in peer-reviewed magazines.

concerned · Post by **concerned** » Wed Sep 08, 2010 12:22 pm

Floatation devices can be clearly demonstrated to save lives. With 'Liberation' would be a little more difficult to show life saving potentital, and I don't mean like "oh, billy, your a life saver!!!"

frodo · Post by **frodo** » Wed Sep 08, 2010 12:29 pm

concerned wrote:Floatation devices can be clearly demonstrated to save lives. With 'Liberation' would be a little more difficult to show life saving potentital, and I don't mean like "oh, billy, your a life saver!!!"

Clearly demonstrated? Sorry but that assertion is unscientific. I want a double blind trial!!!!