Think Twice if you have mild MS

[fogdweller]

I, too, advise waiting a bit for treatment if uo are not very bad. I am very, very mild, still walk pretty well after 35 years, but am familiar with angioplasty and not afraid of the procedure so I went in and had it done. The people I went to were not very experienced, and not one of the vey informed and educated among our contributors.

I think that I hve "rebounded", perhaps thrombosis, I am still trying to find out, and am slightly worse than before treatment. I was better for about three days, and I am hoping to recapture the improvement whith correction of the problem, but it is still veyr difficult to find people who will do competent follow-up.

I had my concencers about the people doing the procedure. There was no follow-up instructions or care. I think some anti-coagulants, for a few weeks or months, plus at least some time lying down where the jugulars are open and blood flowing throogh them is imperative, and I didn't do that.

These are the type of thing that we will learn and it will benefit those that wait a year or two, plus the doctors performing the procedure will be more experienced.

I still think the treatment is important and over-all safe, but if waiting is an easy option you should do it.

[bestadmom]

Not everyone takes well to blood thinners. My inr was fine after my procedure, which had no results, but the thinners made me so weak I couldn't get up without falling and landed up in the ER.

There's only one way to know what is ailing you - go to your gp. Their whole person approach might lead to to a completely different reason why you feel ill. We blame everything on ms, and that's not always the underlying cause of our health.

[1eye]

A couple of things have occurred to me that may not have magically appeared in the minds of our genius skeptics (who are, after all, only interested in your welfare):

1 is that if you are on the 'table' a long time you are subject to a large dose of x-ray. Depending on vintage, and the shape the fluoroscope is in, this may be causing a bit of radiation sickness. I think it unlikely, but a possibility is that it is very old, and the dosage is high. People who have radiation for cancer or immune ablation can have significant stomach troubles. The lining of the stomach is one of the fastest-growing and more sensitive of our parts. That and chemo are reasons these people take marijuana. It gives them back their appetites.

2 is that thinning the blood *may* (speculation) make it easier for it to reflux. There again, as soon as you are off them, it would clear. But don't go off them until it is allowed because clots, believe me, are a very Bad Thing. Ballooning does not usually cause them, but being an exception doesn't make you feel any better.

The other possibilty [sic] is that the liberation procedure has no therapeutic value and can, like any surgery, make people feel like crap.

It is only a possibility in the warped imaginations of some of our noted whiners and ranters. You need not listen to them.

Don't wait because Internet phantoms advise it. Ask a doctor, but make up your own mind.

[Lyon]

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[MrSuccess]

i'm really looking forward to Fall . Lot's of leaves need to be raked up

Let's hope it's time consuming .


1eye - you should know by now . Scroll Scroll Scroll...........

We now have numerous well written and intelligent posters here at TIMS .

Why bother responding to the opposite ?




Mr. Success

[fogdweller]

A couple of things have occurred to me that may not have magically appeared in the minds of our genius skeptics (who are, after all, only interested in your welfare):

This is a great day in history! Thank you 1eye for finally giving credit where credit is due!

That wasn't so bad was it? And you have the satisfaction of knowing that you've made my ilk very happy today

Personally I think skepticism, in a general sense, is the soul of scientific thought. It ought also to be the soul of political thought, and taught in Jr. High to every citizent.

Never believe what you are told without questioning it. pply the cold hard light of logic and true reasoning to it. That is especially true of medical advances which involve a mechanism (human body) complex beyond belief.

That being said, I believe that right now the evidence is powerfully in favor or agressively pursuing the CCSVI theory. It makes good sense. There isn't much good, scientific evidence conclusively showing it is true, butr even less showing it is not true. There is good and lots of antecedal evidence (it is not proof, but it is eviedence) so the more good minds thatr are focused on this issue, the better.

And Lyon, some of us have always appreciated you skeptical take on life. All of us should be equally skeptical of the nay-sayers.

Never cynical; never paranoid; always skeptical.

[ikulo]

Personally I think skepticism, in a general sense, is the soul of scientific thought. It ought also to be the soul of political thought, and taught in Jr. High to every citizent.

Never believe what you are told without questioning it. pply the cold hard light of logic and true reasoning to it. That is especially true of medical advances which involve a mechanism (human body) complex beyond belief.

That being said, I believe that right now the evidence is powerfully in favor or agressively pursuing the CCSVI theory. It makes good sense. There isn't much good, scientific evidence conclusively showing it is true, butr even less showing it is not true. There is good and lots of antecedal evidence (it is not proof, but it is eviedence) so the more good minds thatr are focused on this issue, the better.

And Lyon, some of us have always appreciated you skeptical take on life. All of us should be equally skeptical of the nay-sayers.

Never cynical; never paranoid; always skeptical.

This is everything I've been thinking but haven't had the brain cells to write!

[Lyon]

.

[1eye]

I had an interesting discussion today re: Kuwait. I seems the premier of Saskatchewan is doing a clinical trial on Liberation. I had to tell this person: I can only think it must be some form of NIH (not invented here) syndrome, or xenophobia, that makes the work of the Kuwaiti doctors (and the Polish ones) irrelevant to the issue of safety, and makes us think we need yet another trial of the safety of the Liberation procedure. Perhaps efficacy will also be determined by the Saskatchewanians, but safety? We are seeing exactly what we expect: very rare occurrences of thrombosis, notably more rare in those places (Poland and Kuwait).

[1eye]

magically appeared in the minds of our genius skeptics (who are, after all, only interested in your welfare):

This is a great day in history! Thank you 1eye for finally giving credit where credit is due!

That wasn't so bad was it? And you have the satisfaction of knowing that you've made my ilk very happy today

...All of us should be equally skeptical of the nay-sayers.

Never cynical; never paranoid; always skeptical.

Oh, well; as I've said before, no use crying over spilled ilk...

[Lyon]

.

[concerned]

We now have numerous well written and intelligent posters here at TIMS .

Why bother responding to the opposite ?




Mr. Success

Saying that we are the opposite of intelligent seems like a personal attack to me.

[Lyon]

.

[1eye]

Saying that we are the opposite of intelligent seems like a personal attack to me.

Or, he could be arguing in his spare time! If someone is the opposite, that could be merely contradiction, not argument at all!

No it couldn't.

Yes it could.

Oh, piffle.

[concerned]

Okay....

I feel that certain posters, say the one who made the initial claim of the skeptics being the opposite of intelligent, and the "1..." who defended him, are the complete and total opposite of intelligent.

Don't worry, I'm just arguing in my spare time! If someone is the opposite, that could be merely contradiction, not argument at all!

No it couldn't.

Yes it could.

Oh, piffle.