CCSVI and CCVBP

[HappyPoet]

What's that, HP? It is hard to hear over the defcon alert....

Cece, you've got a wonderful sense of humor. Love ya!

[HappyPoet]

great nzer1 and happy poet. all you guys amaze me. thanks. i wish i could really explain things as professionally but i'm more of a plain jane "oops." i'm just so happy this connection to ms is being brought to light too. i think that people that have their bodies weakened so badly but yet show such a strong will when it's needed is a force to be reckoned with. and dr. flanagan recognizes this and is going to the front line in our behalf.

if we think ccsvi zambonni style is hard to get recognized by mainstream this ought to really ruffle the neuro.'s feathers. but that's ok.

i just hope i can get things together here enough if possible to be one that is a testimony like happypoet is doing. and it couldn't be happening to a nicer person.

blossom, you are most definitely not a plain jane -- you cut to the chase and tell it like it is, and you always hit the nail on the head, so to speak. I know your words are a great help to me and many others... keep those gems coming!

[NZer1]

NZer1,
What's your take on all the different pithecine Australian species that Falk describes and what does she mean by "robust" Aussies?

Well, I have had a look at the section in the book on Upright posture.
"According to the Author, physical anthropologist Dean Falk, the occipital marginal sinus system is unique to humans and huminids and is preferentially used to drain the brain during upright posture. " The occipital marginal sinus system drains into the suboccipital cavernous sinus and the VVP of the upper cervical spine and spinal canal, respectively.
Fortunately, the accessory drainage system evolved to handle the increase in venous outflow and prevent backups and interstitial edema.

My thoughts are that the article identifies the area of the skull, the lower rear portion which is the linking area for blood return flow to the spine. As Humans developed the upright posture there needed to be evolution of the skull and spine to cater for the changes required for the skull to be supported on top on the spine as opposed to horizontally in front of the spine. The flow in and out of blood to the brain had to adapt to cater for the changes in skull shape, brain size, brain cushioning/fluid support and brain cooling. The previous outlets through the skull (bone) connecting the spine were unable to cater for the required volume and flow increase, nor were the sinus's (passages) located to suit the new position and angle of the upright skull. New pathways to the vertebral venous plexuses where required in the evolution, to drain the lower rear portion of the skull.
There needed to be connection and alignment for the brain stem and cord, support for the skull which houses arteries and veins that can cater for the various postures of Upright posture.
The 'robust' Aussies I would imagine is a reference to the link to the first 'working' skeletal structure for upright posture that evolved further to huminids. I'm guessing on that part.

[uprightdoc]

NZer1,
You are starting to sound just like Falk. Falk in currently involved in the Iceman Project. She also maintains that Homo floresiensis (hobbit) from Flores, Indonesia, is an extant species of humans and she is an expert on brain evolution. Her curriculum vitae is eighteen pages long. http://www.anthro.fsu.edu/people/faculty/falk.html

[NZer1]

Hi Dr. interestingly the Hobbit picture of Dr Falk reminds me of photos of myself in the early 80's, facial hair and woolly hair in general.
I get research info updates from many places and two this morning interested me because of their link to cord lesions but also the conversion to MS from CIS.
I believe it could be evidence that links spine damage and MS or other degenerative issues of the cord and a possible breach of BBB because of spinal injury. The studies would require an open mind to cause of cord lesions other than virus or immune involvement early in the process, fingers crossed.

http://www.ncbi.nlm.nih.gov/pubmed/21071465

http://www.ncbi.nlm.nih.gov/pubmed/21060017

[uprightdoc]

NZer1,
Great studies. It's just common sense. The brain and skull are particularly large in humans. On the other hand, the neck muscles are especially small and the head sits on top of a tall wobbly structure supported by two legs over a narrow base in the feet. It's easy for humans to slip and fall such as on ice and whiplash the head and neck. Sports and motor vehicle accidents are another major source of injuries. Brain and cord injuries occur quickly. The spine degenerates much more slowly overtime and so the damge it inflicts on the brain and cord go unnoticed until it reaches a breaking point where brain and cord tissues, such as myelin start to breakdown.

[NZer1]

Totally agree with the injury likely hood and would like to add that sport in young children, whether school activity or recreational has allot of 'risk' and likely hood of injury that will have effect in later life. I personally think this is underestimated.

A very good forum was held recently and Dr. George Jelinek spoke on the subject of research bias and the quality of outcomes. I have always held this view and I am very pleased that George has taken the stand to tell people with MS about what trails really mean.

http://www.msakl.org.nz/
News > Latest News

FOCUS ON MS 2010

Keynote address - Professor George A Jelinek MD Dip DHM FACEM
Evidence, bias and conflict of interest in research and publication
On the biases present in medical research and publication, using MS research as an example.

This Live Presentation was recorded on Saturday 18th September 2010 at the Aotea Centre in Auckland, New Zealand

Dr George Jelinek was diagnosed with MS in 1999. As a Professor in Emergency Medicine with a background as Editor -in- Chief of a major medical journal he began to sort through the medical literature on MS. He is convinced that with a commitment to the right lifestyle changes, there is the real probability that many people with MS can live long, healthy lives relatively free of the usual problems associated with the illness. Dr. George Jelinek is the author of a number of books on multiple sclerosis, the most recent being Overcoming Multiple Sclerosis with was published at the beginning of 2010

[NZer1]

Hi Dr's. Had my appointment this morning.
The Atlas is across to the left, the C2 is rotated,C3 is across to the right,C5/C6 have no disc space, T2 and T3 are across to the right,T8 is across to the left, L4 and L5 disc have no disc space,L5 is across to the left.
The left leg is 17mm shorter.
John spent time explaining each areas issue and what he plans to do for me, all low pressure technique with actuator on the C2 down and wedges for my hips. 'Rocker' adjustment for Atlas (I may have the wrong word here), on my right side on a bench with moving shoulder area up and down and a separate portion for my head, a chop type flat hand quick action downwards at the base of my skull.
All very passive compared with adjustments I have had over the years from at least 6 different Chiropractors and at least 4 Physiotherapists.
I will have three weeks of 2 appointments per week then an assessment to see how I progress.
My upper body feels freer already, and I generally feel lighter, less burdened.
I was given films and tried to scan them but the image is poor.
Watch this space!

[Drury]

NZer1

Hope you notice lots of improvements.

Drury

[blossom]

nzer1, sounds like your chiro. has a real game plan. best to you. keep us posted please.

[NZer1]

Thanks for the positive thoughts,
I believe things will be on the up, right Doctor!

[blossom]

dr. flanagan, i did meet up with the chiro. that i told you i thought would order the kind of x-rays i need. he is getting it arranged. it cold be 2 days to a wk. it is a newer facility and i think newer equipment so i'm hopeing to get what i need.

this chiro. seemed to be very interested in what had been going on with me. even though i had explained that i would most likely not have him treat me. as i would be looking for some very specific treatments. i explained about you and he was very interested. he took your uprightdoctor.com. info. i went through my history even through the ccsvi procedure, told him about ccsvi, how i found you,about you, how you were at the ccsvi symposium and your views and your many yrs. of research and treating. and, your views on this. how you have so generously put your time and effort into helping us and guiding us.

he had no attitude whatsoever like some can get. if fact, he seemed a little charged up with this whole thing. even saying first get these x-rays then go from there. then whatever he can do to help.

so, i hope i got it right explaining things and he got it right. as i told him, i have been down the chiro. road, been down many roads, and with my age, the length of time i've been weakening and twisting the condition i'm in, the extent of disability etc. i really can't afford to not get this right if there is a chance for me at this point.

so, lets hope i send you soon what we need and then get this show on the road.

thank you.

[uprightdoc]

NZer1,
I look forward to seeing your x-rays. It sounds like the doctor is using a hybrid technique in that he uses wedges. Wedges are used in craniosacral work. If applied correctly, the pelvic blocks, are perfect for reducing stress on the spine and cord at the tail end. Ask the doctor what method of upper cervical he uses.

Blossom,
Everything sounds perfect. The chiropractor could be a keeper we can work with but let's see what's going on inside first.

[NZer1]

Good morning Dr. I don't know how I can post the films. They said the were 'Chiropractor' xrays which were four times weaker than conventional Hospital xrays and I have tried to scan them but the quality is very poor. Do you have any suggestions? I thought of trying to photo them to get better contrast?

[ConstableComfortable]

Dr F.

If I feel I have a misaligned atlas and also that ccsvi is playing a part in my MS symptoms, is there an order as far as treatment and scanning goes, which would benefit future research? I'm thinking...

1. Get x-ray to confirm misalignment
2. Get dopler u/sound, MRV, MRI etc. to confirm ccsvi
3. Get treated for misaligned vertebrae
4. Get dopler MRI again to see any effect on ccsvi
5. Get angioplasty if blockages still exist.

Is there anyone keeping case notes on MSers getting spinal adjustments? If so, how can we help with info gathering? Scans/images needed etc...