JCB's Liberation Journey PPMS

Cece · Post by **Cece** » Wed Oct 27, 2010 2:21 pm

Congrats, JCB!

Maybe tomorrow will be the second time in two years.

newlywed4ever · Post by **newlywed4ever** » Wed Oct 27, 2010 6:31 pm

Way cool, JCB! - Sounds like a Halloween dream

JCB · Post by **JCB** » Fri Nov 05, 2010 11:40 am

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David1949 · Post by **David1949** » Fri Nov 05, 2010 12:42 pm

What does your neurologist do for you? Of course if you're taking the CRAB drugs you need the neuro for the Rx. But if you aren't taking them then what does the neuro do for you?

JCB · Post by **JCB** » Fri Nov 05, 2010 12:54 pm

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JCB · Post by **JCB** » Mon Nov 22, 2010 9:48 am

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NotFound · Post by **NotFound** » Mon Nov 22, 2010 11:11 am

Good luck JCB!

blossom · Post by **blossom** » Mon Nov 22, 2010 11:18 am

the best to you jcb. sounds like your dr. is near you so that is a very good thing.

Trish317 · Post by **Trish317** » Mon Nov 22, 2010 7:09 pm

Sending you good thoughts and prayers. I think my darling man has also restenosed. He's having an ultrasound next month. I hope they know what they're doing and what they're looking for.

JCB · Post by **JCB** » Thu Dec 30, 2010 11:42 am

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Cece · Post by **Cece** » Thu Dec 30, 2010 11:58 am

Coming at the stent from above - that's what Dr. Sclafani was talking about in his rendezvous procedure post. I hope it is very successful.

blossom · Post by **blossom** » Thu Dec 30, 2010 6:15 pm

jcb so glad you are seeing improvements even slight ones are great in the whole scheme of things.

but sorry to hear of the clotting. it sounds like this dr. taking care of it is on the ball.

i am also ppms treated at albany no stents. actually got worse. would you mind if you know telling why the agyous was not treated in albany. also what drug plan you were put on. i'm glad to hear the dr.'s are now paying more attention to this very important part of liberation.

i have a feeling the agyous vein has more to do with us ppms. hopefully soon they will be able to better treat vein problems in the spine.

please keep us updated and know thoughts and prayers are being sent your way for safe and healing improvements.

Cece · Post by **Cece** » Thu Dec 30, 2010 6:40 pm

Good question, blossom, I'd focused on the clot and missed that. How did the local doc find the azygous issue? Did he use any special technique, had he identified it on MRV before going in, did he identify it during the procedure?

A year ago I couldn't find anywhere to go to get treated. Now there are serious doctors here in MN and close-by in IL. Very happy.

JCB · Post by **JCB** » Fri Jan 14, 2011 10:32 am

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leetz · Post by **leetz** » Fri Jan 14, 2011 9:55 pm

Wonderful you are for being a pioneer!! God will continue to bless....all of us...keep up the good fight!

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JCB's Liberation Journey PPMS

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