CCSVI TRACKING [Please use date format MM/DD/YYYY]
MS HISTORY
Name : Robin
Male/Female: (F)
Age: 57
Date(s) & type of neurological diagnosis (RRMS, SPMS, PPMS, CIS, or other): May 13, 1995-RRMS
Lesion locations (most affected side, if known), number:equally distributed between brain and cord
MS treatments:Betaseron 6 years, Copaxone 3 years, LDN 3 years, tysabri 3+ years
MS symptoms before stenosis intervention:total numbness in hands (to Elbows) and feet (to knees); fatigue; cog fog (didn't know I had it till it was gone); bladder issues, severe back pain if standing more than 1-2 minutes; constantly cold hands and feet;cane from 1995-2010-walker from July til 11/30/2010
Number of relapses before intervention (if applicable):2
EDSS before CCSVI intervention (self-assessed or physician-assessed?):6 (physician)
[To review EDSS rating, click the following link: http://www.mult-sclerosis.org/expandedd ... scale.html ]
FSS before CCSVI intervention: 6.6
[To calculate FSS rating, click the following link: http://www.mult-sclerosis.org/fatigueseverityscale.html ]
MSIS before CCSVI intervention: 112
[To calculate MSIS rating , click the following link: http://healingpowernow.com/msis.htm ]
Are you using Inclined Bed Therapy I.B.T? (Y/N) N
Have you had testing (and possibly procedure) for blockage yet: (Y/N) Y
[Some patients may wish to start with a baseline report, if Y, continue with next section]
STENOSIS PROCEDURE HISTORY
Date/location of testing/procedure:Albany, NY 11/30/10
Type of venographic study: (MRV, Doppler) Doppler:Venogram
Diagnosis: Blocked jugulars-mild on right-moderate on left, and it was all twisty
Type of procedure: Balloon - no stent
Procedure/drug related symptoms: Slight discomfort on left side of neck; ibuprofen works
Number of relapses since first CCSVI intervention: 0
Impact on your MS symptoms in words (include date in brackets if there have been multiple updates): My hands and feet were warm in the reovery room immediately after; my numbness is decreasing day by day-I have feeling now; I AM WALKING UNAIDED FOR THE FIRST TIME SINCE 1995; balance is good; NO FATIGUE; seem to have had taste buds restored
EDSS as of this update (self-assessed or physician-assessed?)self-1.5
FSS as of this update: 3
MSIS as of this update: 40
I had no expectations going in; I just needed to know I had done everything humanly possible to fight this disease. I am still in shock-my daughters, mother, husband, and other relatives and friends are crying-I still don't believe it's real
November 30, 2010-my new birthday!
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CenterOfGravity
- Family Member
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- Joined: Fri Oct 01, 2010 2:00 pm
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prairiegirl
- Family Elder
- Posts: 228
- Joined: Fri Feb 05, 2010 3:00 pm
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1eye
- Family Elder
- Posts: 3780
- Joined: Wed Mar 17, 2010 3:00 pm
- Location: Kanata, Ontario, Canada
- Contact:
Hippo birdie two ewes! Glad to hear you did so well. I am only 1 year younger than you! What'll we do? Now they'll all want one... 
This unit of entertainment not brought to you by FREMULON.
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
Re: November 30, 2010-my new birthday!
Thanks for posting. This is the same approch my wife is using. I am so happy for you.rcb0407 wrote: I had no expectations going in; I just needed to know I had done everything humanly possible to fight this disease.
Bruce.
Down from 6 to 1.5 -- awesome!!!!
Interesting you said you didn't realize about the cog fog till it was gone. I think that is a great benefit and a real eye-opener -- to experience clarity and not realize you hadn't felt it because it had just been so normal to be "foggy." That crystal-clear feeling was amazing.
Now take care of yourself and keep healing.
Interesting you said you didn't realize about the cog fog till it was gone. I think that is a great benefit and a real eye-opener -- to experience clarity and not realize you hadn't felt it because it had just been so normal to be "foggy." That crystal-clear feeling was amazing.
Now take care of yourself and keep healing.
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CCSVIhusband
- Family Elder
- Posts: 475
- Joined: Sun Jun 27, 2010 2:00 pm
- Location: Pittsburgh, PA USA
- Contact:
AMEN!
SO happy for you... Dr. Jesus hard at work!!! YES!!!!!
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
