This Is MS Multiple Sclerosis Knowledge & Support Community
Welcome to This is MS, the leading forum for Multiple Sclerosis research and support. Join our friendly community of patients, caregivers, and researchers celebrating over 20 years of delivering hope through knowledge.
I had the procedure to open both my jugulars on Oct 15, with my neuros blessing.
Today he commented that
I don't widen my stance as much as I used to
My gait is smoother (less leg swinging, less mechanical)
The tremor in my right hand is gone and the movement smoother.
It is so wonderful to have an outside person confirm the improvements I have felt. He is also going to get me some physical therapy to help me to learn to walk more normally again. I love my neuro.
Ann
always look on the bright side of life
Veins opened 10/15/10. RIJV still on the small side. Feeling much better.
This is good news to me because: at one point I asked my neurologist how she knew I was progressing. Her response was: your stance is wider. I had not been aware that it was. I had been entirely unconscious of my stance, but after having it pointed out, I had to admit she was correct. Now, your neurologist tells you your stance is narrower. Was this a surprise?
If your neurologist pointed out the opposite, and you had been unaware of it, then placebo cannot have confounded the observation. The only 'skeptical' explanation can be that coincidentally, you had a spontaneous remission. In my case, remissions were in my far distant past by the time I had the procedure. I think explaining things that way is grasping at straws. Do you agree?
This unit of entertainment not brought to you by FREMULON.
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
I "knew" I widened my stance because it had been pointed out to me. It was completely unconscious I guess in relation to deteriorating balance. I was surprised by his comment because I don't think about it.
It is interesting to think about what a neuro exam doesn't show such as the improvement in my typing ability on my right hand or the fact that my handwriting all of a sudden is much more legible. Or that life is simply easier because every day tasks take less effort.
My neuro says I was one of only two patients to ask about CCSVI the other person is going to Albany and she is much more progressed than I am. He does not hold out much hope for her. I hope he is proven wrong.
The question for me now becomes if opening my very small (8mm in diameter at its largest) is good enough or will something (like a stent to get it to be more in the normal range will be necessary.
I know my journey is just beginning.....I still have better and worse days.
Ann
always look on the bright side of life
Veins opened 10/15/10. RIJV still on the small side. Feeling much better.
Ann, I am so happy for you. I also have a great neuro and find much comfort in his support. I just had an appointment with him. I took my MRI from my one year follow up with Dr. Dake. He was really excited. His eyes literally twinkled as he talked to me. In his exam he found improvements in my reflexes since the last time he saw me, which was about two months post treatment. I might have to write up this experience to share here, along with my one year follow up with Dr. Dake. We'll see. Anyway, I am so glad you have this support. I know it will continue to mean a lot to you!
Take care,
Beth
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back. Placebo schmebo.
CRHInv wrote: I might have to write up this experience to share here, along with my one year follow up with Dr. Dake. We'll see.
I hope you will. I find reading results and experiences (especially those after a period of time) to be very interesting, and I'm sure many of us here do. This is all so new, and the more reports from people (both the good and the bad) the better, in my view. Thanks so much for posting this. May your improvements continue!
