Crepitus (crackling sounds when moving joints) in MS

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MSmama
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Post by MSmama »

Yes Taurus the first thing I checked was my D levels prior to commencing copaxone and they were good. i take copaxone, d3 and fish oil every other day now. It is a good idea for people to check though.

My Dr suggested if I wanted to reverse it or prove it was the copaxone that I should take myself off it for a while but as he said also risk relapse ;) I am in Australia so i am not prepared to take myself off for summer with the heat so i will be a scaredy cat for now and drop it late fall.

BUT BEFORE dropping it... i am currently also checking into Lymes -leave no stone unturned ;). My initial test was not a normal reading but then again not Lymes definitive so i need to come up with $600 for a conclusive DNA test. Hopefully I can scrape this together after Christmas and before fall to rule it out.

I'll post back here with the follow up. Good luck to you Eric.

Thanks NHE- although excellent supplements I will save them for later- i am a bit of an anal person and would prefer to get to the cause for now-

Cheers.
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eric593
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Post by eric593 »

NHE wrote: Have you tried a Glucosamine, Chondroitin, MSM supplement, it might be helpful.

NHE
First thing I took. Did nothing for me. I also take D3 and fish oil, have for years. Crepitus just in past couple years. Coapaxone for 5 years.
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NHE
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Re: creaking joints

Post by NHE »

I found this little blurb on hyaluronic acid.

http://www.supersup.com/front/health_ne ... ID=4561009
Hyaluronic acid is a member of the family of molecules known as glycosaminoglycans. This family also includes chondroitin sulfate and some other large carbohydrate-containing molecules. Hyaluronic acid is an important component of the connective tissue that fills the spaces between cells of the skin and other tissues, and is a major ingredient of the synovial fluid that lubricates and cushions joints as well as the vitreous humor that fills the inner chamber of the eye.
I was wondering if anyone had tried it and what the results were?

NHE
zjac020
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Re: Crepitus (crackling sounds when moving joints) in MS

Post by zjac020 »

Hi all,

I know this is an old thread, but Im hoping some may be able to provide further feedback.

I am currently in what is termed a clinically isolated case of MS. I had first bout back in late May this year. Specifically, right foot drop and weak right arm/hand that last for approx. 10 days. Recovery was good, but not 100%. Nothing on the disability scale, but I can notice that its not the same as before.

What I have also noticed since then is crepits, my joints crack a lot. I am not yet on any of the meds for MS, and the only major change has been lifestyle (changes in diet in line with Walhls and Swank diets, more exercise, etc). As I have given up milk/dairy completely, it could be a vitamin/mineral defficiency?

I have commented this to my neuro, but dont think he is going to pay much attention to this.
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HappyPoet
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Re: Crepitus (crackling sounds when moving joints) in MS

Post by HappyPoet »

Hi zjac and welcome,

Not sure how true this is, but back when I was diagnosed, I was told by an NP that my painful cracking elbows were caused by muscle tightness, i.e., spasticity, around the joint which caused resistance to movement. Whenever my elbow would reach the point just before I knew it would crack, where resistance was greatest, I sometimes teared up in anticipation of the pain that I knew would come if I continued the movement--often, it felt and sounded like I was actually breaking my elbow. Sometimes, I could pull my forearm back and try moving my forearm forward at a different angle which sometimes worked. I was prescribed Baclofen, and the painful cracking stopped.
zjac020
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Re: Crepitus (crackling sounds when moving joints) in MS

Post by zjac020 »

Mine arent painful at all, and im hoping there are other ways of dealing with them without meds, but that may just be wishful thinking...
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