AGAIN ...? REALLY?

[CCSVIhusband]

Malden is posting on the Holly Shean thread again?

THE SAME THING? A WEEK LATER AFTER IT WAS DELETED???

So now we are starting a whole new thread when something we do not like is posted? I looked up to the top of the thread and I got hypocrisy in my eye. The things you have said to concerned about his mother and now you suddenly are bleeding with empathy? Please leave the moral high ground to the others on this thread. They do not have an agenda and truly care.

I have no agenda and TRULY care about people and what I see on this forum by a chosen few is hurtful and wrong. There needs to be a line drawn and when and if there is, there needs to be consequences for those hurtful remarks. Like being booted from this forum once and for all!

I agree ... no agenda here (what do I get out of CCSVI? Aside from a wife who was liberated in June with some good results).

I'm here to ask questions, learn, understand the links of CCSVI and "MS" and the newest research, and along the way have read a lot of great stories from some really great people, and kept in touch with a lot of them by private messages ... because they fear posting on this forum (which is sad) ... however, they really helped when we were learning back in January of 2010 (seems so long ago).

When that learning, conversation and growth of CCSVI knowledge becomes obstructed as it has become (and I have become a target of certain posters) I take issue with it.

Just like Soapdiva, someone I love was liberated and I want to sing to the world about it ... just like I'm sure she does. We, daily, get to see the results of liberation from CCSVI ...

And, now, I want to learn more, the how's the why's ... somehow this site lost those how's and why's ... it's easy to see the cause.



But from now on ...


me

"==============" <----- the high ground!

[scorpion]

Malden is posting on the Holly Shean thread again?

THE SAME THING? A WEEK LATER AFTER IT WAS DELETED???

So now we are starting a whole new thread when something we do not like is posted? I looked up to the top of the thread and I got hypocrisy in my eye. The things you have said to concerned about his mother and now you suddenly are bleeding with empathy? Please leave the moral high ground to the others on this thread. They do not have an agenda and truly care.

I have no agenda and TRULY care about people and what I see on this forum by a chosen few is hurtful and wrong. There needs to be a line drawn and when and if there is, there needs to be consequences for those hurtful remarks. Like being booted from this forum once and for all!

I agree. It also some times appears that the line changes depending on what an individual believes about CCSVI. Soapdiva my post was not directed towards you. I believe that 95% of the people on here are individuals that truly care about others and would not intentionally hurt someone for the world.

[Cece]

I'm pretty sure Malden posted something inappropriate, had it deleted, then reposted nearly the exact same thing. It was inappropriate the first time, it was blatantly rule-defying the second time. Shame on anyone who tries to defend him.

I have copies of the post from a week ago and the post from today if anyone is in doubt, it's exactly as Motiak has said.

[soapdiva884]

Scorpian, I know it was not intended for me. Thank you for clarifying though. I am just so tired of people trying to be hurtful on here. CCSVI is so much more important than this crap!

[concerned]

ALSO- I have a books worth of nasty things a couple of people have said about my mother and I that I've saved on my computer. There's a whole lot more than those couple of quotes that I posted, if anyone is interested. Seven months of nasty things, although, I'll take the high ground and not point fingers or name name's when dealing with private messages or posts that have been deleted.


(edited for grammer.)

[scorpion]

I'm pretty sure Malden posted something inappropriate, had it deleted, then reposted nearly the exact same thing. It was inappropriate the first time, it was blatantly rule-defying the second time. Shame on anyone who tries to defend him.

I have copies of the post from a week ago and the post from today if anyone is in doubt, it's exactly as Motiak has said.

Malden adamantly believes that the liberation procedure, especially the use of stents, is dangerous and should be avoided. Many of you are passionate about CCSVI and that is fine. I understand why everyone is upset because it just does not feel right for someone to continue an argument under Holly's thread but I really do not believe Malden did it to be hurtful. Malden it would be nice if you would explain your decision to post what you did on Holly's thread. At this point it seems like the majority of people think you did it just to be a jerk.

[malden]

I thing that the case here is about poster, not posts. Posts are just the facts, but someones interest is to hide certain things swept under the rug.

[soapdiva884]

I'm pretty sure Malden posted something inappropriate, had it deleted, then reposted nearly the exact same thing. It was inappropriate the first time, it was blatantly rule-defying the second time. Shame on anyone who tries to defend him.

I have copies of the post from a week ago and the post from today if anyone is in doubt, it's exactly as Motiak has said.

Malden adamantly believes that the liberation procedure, especially the use of stents, is dangerous and should be avoided. Many of you are passionate about CCSVI and that is fine. I understand why everyone is upset because it just does not feel right for someone to continue an argument under Holly's thread but I really do not believe Malden did it to be hurtful. Malden it would be nice if you would explain your decision to post what you did on Holly's thread. At this point it seems like the majority of people think you did it just to be a jerk.

Uh jerk? Yep!!!!! Passionate about CCSVI? Yep!!!!!! Malden, explain your decision? Yep!!!!! Please do!

He could have posted his own thread instead of posting on Holly's thread, I mean come on, have some tact for God's sake!

[soapdiva884]

I thing that the case here is about poster, not posts. Posts are just the facts, but someones interest is to hide certain things swept under the rug.

Well, sweep this under your rug. You are hurting others by the words you write. You have no common sense when it comes to peoples feelings. You have your opinions and I have my opinions, however, I know how to state them in a way that does not hurt....you do NOT.

Who are you? Do you have MS? Where do you come from? What is your interest in CCSVI? I have no clue as to who you are and what your agenda is. Can you please clear this up for me? Thank you!

[malden]

First of all, soapdiva884, that was not "Holly's thread". Holy died one year ago, as her sister said, from a hemorrhage that was caused by blood thinners, and perhaps too aggressive a move for her.

This is Holly's older sister (Lauralynx) thread writing "after the urging of Holly's companion to look at different things involving Holly's search for arresting her disease and her quest with Dr. Dake."
(look at the open thread post)

And she also said:

"And it helps us to talk about this, and gives us peace to share all this with you and discuss the truth of this amongst us. "

She ask us to talk about this, and discuss the truth of this amongst them!

So I did. And was censored.

[HFogerty]

Malden said he said:

"Laura, deep symphaty for your loss.

Thank you for sharing all this with us and discuss the truth of this amongst us.
I hope that you and Holly's partner will find the answers you are looking for.

Symphaty again, Malden"

Those were not the words I saw this afternoon. They were edited BY YOU to edit out your original additional inappropriate comments. I and others saw your posts today prior to your editing them.

[concerned]

I think I should point out that Malden just said that he's sorry for their loss, and that it wasn't the first death ,and that it won't be the last. (At least in the first post he made in that thread. Cece, maybe you could PM me the second?) You could argue about the first bit, but I think the latter points hold up as facts, or at least truisms.

That's a whole lot different than taunting people about their mothers dying and taking great joys in talking about the consequential future coffin shopping that such a thing would entail. That's just sick.

Like I said before, it would be nice if, in our ongoing discourse, using the suffering of people's family members and loved ones for "scoring points" would be considered the utmost of rudeness and totally out of line.

[soapdiva884]

First of all, soapdiva884, that was not "Holly's thread". Holy died one year ago, as her sister said, from a hemorrhage that was caused by blood thinners, and perhaps too aggressive a move for her.

This is Holly's older sister (Lauralynx) thread writing "after the urging of Holly's companion to look at different things involving Holly's search for arresting her disease and her quest with Dr. Dake."
(look at the open thread post)

And she also said:

"And it helps us to talk about this, and gives us peace to share all this with you and discuss the truth of this amongst us. "

She ask us to talk about this, and discuss the truth of this amongst them!

So I did. And was censored.

How does your English become perfect and yet there are so many posts by you that the English is clearly not perfect? Not understanding that one!

When I said "Holly's thread" I meant the thread regarding Holly. If you want to mince words, we can do that. But, it would seem silly right now.

I have looked at the open thread post, thank you very much! I understand WHO wrote that and WHAT it was about. I also understand that you are deliberatley hurtful sometimes and that is NOT needed here.

I really do want to know who you are??? Do you have MS? What is your story?

You are censored when the need arises and sometimes there are needs for you to be censored and you are not. You have only been censored when you hurt others deliberately.

[soapdiva884]

This was his original post before editing it:



Laura, deep sympathy for your loss.

Thank you for come here and try to clear, from first hand, some misinformations that slip here and there over here.

One year past away but, unfortunatly, that was the first and not the last death after the Liberation procedure.
(last was canadian Mahir Mostic - http://www.thisisms.com/ftopicp-143686.html#143686)

Symphaty again, Malden

[malden]

M said he said:

"Laura, deep symphaty for your loss.

Thank you for sharing all this with us and discuss the truth of this amongst us.
I hope that you and Holly's partner will find the answers you are looking for.

Symphaty again, M"

Those were not the words I saw this afternoon. They were edited BY YOU to edit out your original additional inappropriate comments. I and others saw your posts today prior to your editing them.

No, I did not edit my post you saw this afternoon. That post was deleted. This is my last one. And If you saw my deleted post, you know it wasn't with inappropriate comments. Just facts.