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Loobie
- Family Elder
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- Joined: Mon Sep 11, 2006 2:00 pm
- Location: Dayton, Ohio USA
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T,
The only thing that has helped me is that me and my wife engage in much more carressing and 'all over body sex' than we used to. Setting it up by talking about the difficulties first, and then acting out in a relaxed fashion by not being uptight about what might happen and all of that has helped us get through some issues. I'm more of a giver now sexually but the root cause was really being able to relax and just get intimate and let it lead to where it will lead.
I have the opposite problem. I can feel the sensations, but just have a huge problem with the actual orgasm. Hope this little bit helps.
The only thing that has helped me is that me and my wife engage in much more carressing and 'all over body sex' than we used to. Setting it up by talking about the difficulties first, and then acting out in a relaxed fashion by not being uptight about what might happen and all of that has helped us get through some issues. I'm more of a giver now sexually but the root cause was really being able to relax and just get intimate and let it lead to where it will lead.
I have the opposite problem. I can feel the sensations, but just have a huge problem with the actual orgasm. Hope this little bit helps.
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syckbastid
- Family Member
- Posts: 89
- Joined: Wed Jan 03, 2007 3:00 pm
I can relate (32 now, diagnosed at 25). Sexual problems are the worst part of MS. I've had a few different ones. Following my first attack, I could get an erection and ejaculate, but felt no orgasm. Other times I could get erect, but not ejaculate. And other times I had the dreaded flat tire. Currently, I'm functioning close to 100%. But the uncertainty messed with my head, which also impacts function. So I take the daily cialis pill. Takes the guess work out, and has improved the intensity of orgasm.
Are you able to orgasm manually? If so, it could mean either nerve damage has required a firmer sensation, or the psychological impact of MS is messing with you.
Are you able to orgasm manually? If so, it could mean either nerve damage has required a firmer sensation, or the psychological impact of MS is messing with you.
hi t sorry to hear about your situation. i did have a short time during my dx attack where i had limited sensory below the collarbone (i could only feel small fibre non-myelinated stuff like pain, temperature etc). i am female not male but it was still unpleasant and i was very pleased when i started to recover somewhat (i still have 'stocking and glove' neuropathy).
all i can recommend is to optimize your nutritional status and see if that gets you anywhere. it makes a difference, for ms and any other health problem that's not genetic or traumatic etc.
for example, someone i know recently started taking lecithin and a few other things for potentially gall bladder related pain. pain improves with lecithin etc.
next i hear about impaired 'performance' and could the lecithin be suspect? so i think okay, lecithin, probably from soy, estrogen link... hormone balance... so i searched for soy lecithin testosterone and got a regular web site that said yes, soy lecithin increases estrogen and decreases testosterone.
so then i looked for a peer reviewed journal reference on the effects of soy lecithin supplements on testosterone levels and found this instead:
http://cebp.aacrjournals.org/content/16/4/829.full
Clinical and Biological Activity of Soy Protein Powder Supplementation in Healthy Male Volunteers
still interesting. the point is, it is possible in some instances, to change how you feel with nutrition. if you can, get tested for the usual nutritional suspects for ms patients. i think i have them all detailed in my regimen thread, including the usual average values seen in ms patients and the target averages seen in healthy controls.
HTH!
all i can recommend is to optimize your nutritional status and see if that gets you anywhere. it makes a difference, for ms and any other health problem that's not genetic or traumatic etc.
for example, someone i know recently started taking lecithin and a few other things for potentially gall bladder related pain. pain improves with lecithin etc.
next i hear about impaired 'performance' and could the lecithin be suspect? so i think okay, lecithin, probably from soy, estrogen link... hormone balance... so i searched for soy lecithin testosterone and got a regular web site that said yes, soy lecithin increases estrogen and decreases testosterone.
so then i looked for a peer reviewed journal reference on the effects of soy lecithin supplements on testosterone levels and found this instead:
http://cebp.aacrjournals.org/content/16/4/829.full
Clinical and Biological Activity of Soy Protein Powder Supplementation in Healthy Male Volunteers
still interesting. the point is, it is possible in some instances, to change how you feel with nutrition. if you can, get tested for the usual nutritional suspects for ms patients. i think i have them all detailed in my regimen thread, including the usual average values seen in ms patients and the target averages seen in healthy controls.
HTH!
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syckbastid
- Family Member
- Posts: 89
- Joined: Wed Jan 03, 2007 3:00 pm
jimmylegs is right with regard to supplements, and overall physical well-being. Take advantage of the body's recuperative ability during the RRMS phase. My second attack left me with big deficits in my hands, sensory issues all over my body, and of course sexual dysfunction. My EDSS score jumped to 3. Through diet, excerise, and supplements, I've lost 40 pounds, regained the majority of strength in my hands, and thankfully, my sexual function has recovered dramatically. Better than before my first attack (though I still take daily cialis, just in case). My neuro now has me at a 0 on the EDSS (I think I'm a .5). This is over a 1.5 year span... Point is to keep your body in the best shape possible; your sexual ability is often an indicator of physical well being. I wish you the best.
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CuriousRobot
- Family Elder
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- Joined: Tue Nov 02, 2010 3:00 pm
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Try looking into Ginkgo Biloba. It is touted to increase bloodflow (libido) and even help with vertigo, in some respects. It seems like an important supplement for MSers. More importantly, if you are depressed (having suicidal ideations) then the extra psychological stress could have a major impact on your sexual perception (you say that you get no pleasure from sex).
Is that because you literally "can't feel anything?" Or are you preoccupied with something else on your mind that makes sex not pleasurable? If there is a burning sensation on your penis, maybe you should speak to a urologist and/or reexamine your personal hygiene.
Also, like jimmylegs stated, diet and nutrition are paramount. Get those in order.
In any case, I hope you start feeling better soon!
Is that because you literally "can't feel anything?" Or are you preoccupied with something else on your mind that makes sex not pleasurable? If there is a burning sensation on your penis, maybe you should speak to a urologist and/or reexamine your personal hygiene.
Also, like jimmylegs stated, diet and nutrition are paramount. Get those in order.
In any case, I hope you start feeling better soon!
thu, i'll see if i can dig up a post i put together for folks to take to their docs re nutrition. if you're way out of whack nutritionally, dietary changes likely won't do much good and you'd need a short term megadose regimen of supplements.
also, the 'normal range' is a scam. well not a scam but it makes 'normal' sound more comforting than it should. it means you're in line with the normal data and in my xp that means results from everyone who's had that test done at a given lab, regardless of whether they're healthy or not.
for example my original uric acid test came back 194, and the normal range was something like 140-360. i was consoled at first.
then i found the study which demonstrated that 194 is the average UA level for ms patients, whereas healthy controls sit at 290-300.
i found this study, pretty good n value, showing that people with various illnesses have lower testosterone than healthy controls. wish i had full text access right now to get the serum levels so you could compare. anyone with access reading this?
http://www.ncbi.nlm.nih.gov/pubmed/2787224
Clin Rheumatol. 1989 Mar;8(1):37-41.
Free and serum testosterone levels in 276 males: a comparative study of rheumatoid arthritis, ankylosing spondylitis and healthy controls.
Spector TD, Ollier W, Perry LA, Silman AJ, Thompson PW, Edwards A.
Abstract
"A cross-sectional study of testosterone levels in 276 males was undertaken. Of these 87 were RA patients, 48 males with AS and 141 were healthy controls. Free and serum testosterone levels were significantly lower in the RA males than in either the AS group or the healthy controls (p less than 0.001). This difference was unaffected by age. No differences were seen in testosterone levels between DR1 or DR4 RA patients compared to those without these antigens. No evidence of hyperandrogenicity was seen in the AS group. The finding that males with RA have lower androgen levels than both normal controls and a disease group with inflammatory spondarthritis supports the hypothesis that male sex hormones may be a protective factor against the development of RA."
so because there was a testosterone issue in RA but not so much with the AS, i took a closer look at zinc status in RA and AS. there is research on zinc status in RA (low, with copper being high) and i did not find research showing low zinc status in AS. low zinc *is* found in ms patients.
evaluating your zinc status can tell you a thing or two. if it comes back in the 'normal range' that's not good enough - serum zinc needs to be up around 18 umol/L to match healthy controls per the research.
testosterone is higher when zinc levels are higher (from the sci literature). uric acid levels, typically low in ms patients, are higher when zinc levels are higher (from sci literature and personal xp). vitamin d3 absorption is better, ie 300% better, when zinc levels match healthy controls (personal anecdote).
let me know if you'd like a stack of science to take to the docs!
also, the 'normal range' is a scam. well not a scam but it makes 'normal' sound more comforting than it should. it means you're in line with the normal data and in my xp that means results from everyone who's had that test done at a given lab, regardless of whether they're healthy or not.
for example my original uric acid test came back 194, and the normal range was something like 140-360. i was consoled at first.
then i found the study which demonstrated that 194 is the average UA level for ms patients, whereas healthy controls sit at 290-300.
i found this study, pretty good n value, showing that people with various illnesses have lower testosterone than healthy controls. wish i had full text access right now to get the serum levels so you could compare. anyone with access reading this?
http://www.ncbi.nlm.nih.gov/pubmed/2787224
Clin Rheumatol. 1989 Mar;8(1):37-41.
Free and serum testosterone levels in 276 males: a comparative study of rheumatoid arthritis, ankylosing spondylitis and healthy controls.
Spector TD, Ollier W, Perry LA, Silman AJ, Thompson PW, Edwards A.
Abstract
"A cross-sectional study of testosterone levels in 276 males was undertaken. Of these 87 were RA patients, 48 males with AS and 141 were healthy controls. Free and serum testosterone levels were significantly lower in the RA males than in either the AS group or the healthy controls (p less than 0.001). This difference was unaffected by age. No differences were seen in testosterone levels between DR1 or DR4 RA patients compared to those without these antigens. No evidence of hyperandrogenicity was seen in the AS group. The finding that males with RA have lower androgen levels than both normal controls and a disease group with inflammatory spondarthritis supports the hypothesis that male sex hormones may be a protective factor against the development of RA."
so because there was a testosterone issue in RA but not so much with the AS, i took a closer look at zinc status in RA and AS. there is research on zinc status in RA (low, with copper being high) and i did not find research showing low zinc status in AS. low zinc *is* found in ms patients.
evaluating your zinc status can tell you a thing or two. if it comes back in the 'normal range' that's not good enough - serum zinc needs to be up around 18 umol/L to match healthy controls per the research.
testosterone is higher when zinc levels are higher (from the sci literature). uric acid levels, typically low in ms patients, are higher when zinc levels are higher (from sci literature and personal xp). vitamin d3 absorption is better, ie 300% better, when zinc levels match healthy controls (personal anecdote).
let me know if you'd like a stack of science to take to the docs!
active members shape site content. if there is a problem, speak up!
use the report button to flag problematic post content to volunteer moderators' attention.
use the report button to flag problematic post content to volunteer moderators' attention.
