CCSVI and CCVBP

NZer1 · Post by **NZer1** » Sun Jan 09, 2011 2:14 pm

Hi Dr I have sent you a pm to update you, by the way Neil is about 3 and a half hours away, by road.
Thanks for contacting Neil, don't know what his response will be, I had sent a link to my xrays. Hopefully he will reply to you, he has left it up to me to think though the options.
He has not heard of you until my email. I'm sure he will enjoy reading up on your work, he sounded positive from his web site writings and insights.
Regards Nigel.

blossom · Post by **blossom** » Mon Jan 10, 2011 8:17 pm

hi dr. flanagan, well we are supposed to get blasted with a winter storm so i'm hopeing i can make the appt.'s i have set up. i'm anxious to see him and get things going.

it seemed to me that my feet were warmer and my legs aren't hurting as bad. i could certainly tell that night that something had been done as my low back was tender and the pain i used to get in the dimples of low back was noticeable again. i'm not so foolish to think that 1 adj. is gonna do the trick. i know i may be in for a long haul. i just wanted to tell you what i felt was noticeable. another thing was when he was examining my neck he kinda pressed on a spot and i remarked that it felt like my jaw moved and he said it probably did. it does not seem that it had a good or bad effect other than being a little tender in the r. jaw. as i had told you the nucca dr. i went to about 4 yrs. ago had fixed the tmj that i had had for a very long time and the low back pain for the most part had went away.

my feet are not as warm as the first day but so far i really am not noticeing as much burning an aching in the legs. the strength was no better. i did not expect that at all and what i am telling you may not mean much.

when i mentioned that i would be going for nucca if he can get me straightened out somewhat he said i could go while i am going to him. i don't know about that-got any thoughts? although fatigue isn't my main issue, i'd find that tough right now.

so, if old man winter doesn't hold me up, i'll let you know more after winter. my brother may have to put sled runners on my wheelchair.

please check your pm. thanks again.

uprightdoc · Post by **uprightdoc** » Tue Jan 11, 2011 4:56 am

Blossom,
So far so good. I don't know how much can be fixed at this point but the best place to start is to figure out what went wrong.

uprightdoc · Post by **uprightdoc** » Tue Jan 11, 2011 5:08 am

Nigel,
Dr. Bossenger does Blair upper cervical, which is a good method. The Blair method is not not orthogonal. It is more similar to anatomical notation such as what I learned. Blair takes slightly diferrent positions and stances around the table and uses a drop headpiece in side posture versus a knee chest position with the head turned.

It is worth the effort to get specific upper cervical x-ray at this point and an analysis of your misalignment to start with. The upper cervical x-rays will be further helpful in light of your full spine x-rays.

You definitely need more upper cervical doctors in New Zealand. You might be able to interest John or another chiropractor in your area in adding specific upper cervical to their toolbox.

NZer1 · Post by **NZer1** » Tue Jan 11, 2011 11:31 am

Morning Dr.
John used a table with drop headpiece, I was positioned on my right side and he used his hand below my left ear to do the adjustments.
The challenge for my mind at present is two fold.
Firstly I have three areas of disc de generation, and loss of disc space. This cannot be helping alignment, and this will have been happening over long periods of time. The ability to get these discs to function and hold correct alignment is of interest.
Secondly I have progressive deterioration in my health due to MS. My awareness of my health and ability to function is heightened, partly due to my career experiences with diagnostic and personal growth and counselling training. My daily mobility changes and I am naturally noticing the small changes that medical science would not be able to measure or detect.
I totally agree that there is need for more upper cervical doctors in New Zealand and in addition to that more awareness to the effect spine alignment has not only to nerve conduction but to vascular involvement and the other effects of spine dysfunction such as CSF flows etc, etc.
At present the frustration caused by poor care for MS patients, the roller coaster ride CCSVI knowledge is taking and my personal experiences with searching for Chiropractic care and general medical care are compounding my lack of faith in the medical profession in general. Not only the medical knowledge and commitment to patients aspect, the political and financial hoops are too many and too corrupted.

uprightdoc · Post by **uprightdoc** » Tue Jan 11, 2011 1:07 pm

NZer1 wrote:John used a table with drop headpiece, I was positioned on my right side and he used his hand below my left ear to do the adjustments.The challenge for my mind at present is two fold.
Firstly I have three areas of disc de generation, and loss of disc space. This cannot be helping alignment, and this will have been happening over long periods of time. The ability to get these discs to function and hold correct alignment is of interest.

John may be using Blair upper cervical but using a drop headpiece by itself does not mean he is. It's the listing and how you use the drop piece that matters. Your disc degeneration does contribute to your misalignment but it is not that advanced. The primary goal of Blair upper cervical is to realign the foramen magnum and spinal canal. Restoring the balance of a ten to fourteen pound ball on top or the neck, however, decreases the abnormal load bearing forces acting on the cartilage and connective tisses futher below all the way down the spine. Aligning the upper cervical spine also takes the pressure off the vertebral veins, the vertebral arteries and the subarachnoid space passing through the foramen magnum and into the spinal canal. Your neck is considerably forward of the gravity line. That puts stress on the cord and circulatory systems of the brain and cord. I sympathize with your frustration.

SaintLouis · Post by **SaintLouis** » Tue Jan 11, 2011 6:10 pm

Hello Dr.

I wondered if you might have a suggestion for someone trustworthy who knows proper upper cervical techniques in or near the St. Louis, MO area?

Thanks,
SaintLouis

frodo · Post by **frodo** » Tue Jan 11, 2011 11:57 pm

Hello uprightdoc.

I want just to point out that Dr. Sclafani has just opened a new thread just for doctors:

"DrSclafani dialogues and debates with other Doctors"

I think that maybe you could be interested in interchange your experience with CCSVI there.

uprightdoc · Post by **uprightdoc** » Wed Jan 12, 2011 5:44 am

Hello Frodo,
I didn't understand the google bomb bit at the bottom of your post but I did join Dr. Scalfani's thread.

frodo · Post by **frodo** » Wed Jan 12, 2011 8:01 am

uprightdoc wrote:Hello Frodo,
I didn't understand the google bomb bit at the bottom of your post but I did join Dr. Scalfani's thread.

Ah, ok. That is just a stupid idea I had. If there were lots of links in internet making an association between MS and this forum, the search engines would yield this page in the search for MS.

Anyway that was an idea to promote the concept of CCSVI. Now that it is widespread it is not required anymore.

uprightdoc · Post by **uprightdoc** » Wed Jan 12, 2011 8:46 am

SaintLouis wrote:I wondered if you might have a suggestion for someone trustworthy who knows proper upper cervical techniques in or near the St. Louis, MO area?

Hello SaintLouis,
There is a Dr. Christine Dunsworth 314-849-9255. The doctor uses toggle recoil knee chest which is the anatomical listing method I learned. There is also a Dr. Matthew Florey and two partners who practice NUCCA, which is terrific orthogonal method. The number is 314-725-3358. Lastly, there is Dr. Tom Gargiula who uses the Blair upper cervical method. His number is 314-849-4120.

uprightdoc · Post by **uprightdoc** » Wed Jan 12, 2011 8:50 am

Nigel,
I think you have come this far and it would be most helpful to have specific upper cervical x-rays and analysis before throwing in the towel.

LadyGazelle · Post by **LadyGazelle** » Wed Jan 12, 2011 9:53 am

Here is the link: http://www.nucca.org/find_doctor.php

I am scheduled to see the first doctor on the LIST - Dr. Adamczuk - but the chiropractors Uprightdoc gave SaintLouis are NOT listed when you do a search. I am assuming being "board certified" is some sort of special honor... but what does that matter?

I'm asking because my appointment is in May, but Dr. Adamczuk has an assistant (don't know his name) who could take me earlier. I don't know how many years experience he has, but since my husband cashed in shares of stock with Met Life I could pay sooner and go to her assistant - I am trying to decide.

Lady Gazelle

P.S. Treated in Albany 11/8/10 - 5 balloons, but no better; possibly due to vertebral compression.

uprightdoc · Post by **uprightdoc** » Wed Jan 12, 2011 11:17 am

Hello LadyGazelle,
Board certification is good but not necessary as not all upper cervical methods offer board certification. It's a professinal and a political problem within chiropractic that is too lenghty to go into here. Many NUCCA doctors are not listed on the NUCCA website. Two of the upper cervical doctors I suggested to SaintLouis were not NUCCA doctors. They use other methods.

How long would have to wait to see Dr. Adamczuk and how soon can you get in to see the other doctor?

sara-sama · Post by **sara-sama** » Wed Jan 12, 2011 2:38 pm

Hello Dr.Flanagan,

I wonder if wearing (high heels) constantly, or the dangerous games, may causing damage in the head, neck, spine, and that may affect the ischemic brain?

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CCSVI and CCVBP

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Missouri NUCCA trained but not board certified?