Writing to GP

Talltree11 · Post by **Talltree11** » Tue Jan 18, 2011 6:08 am

Hi All, I want to tell me GP about CCSVI and my intention to have the treatment. Anyone wriiten to GP and have a template letter... I don't know where to start...there's so much to say and I want to come across balanced> Help anytone. K

EJC · Post by **EJC** » Tue Jan 18, 2011 1:01 pm

I printed off as much information as I could find (published medical journal type stuff) made and appointment and went to talk to him.

He'd never heard of the procedure, but now we're 6 months on and Emma had the procedure in Decemeber.

We visited him again last week, he'd read as much information as he could, has asked to see Emma monthly to monitor her and actually refers to her as "our guinea pig". He's very open minded and quite supportive.

leetz · Post by **leetz** » Tue Jan 18, 2011 3:41 pm

I did the same thing...print off as much information as you can!!! Keep up the good fight and God Bless !

HappyPoet · Post by **HappyPoet** » Tue Jan 18, 2011 8:05 pm

This link from the CCSVI Alliance website will help guide you through this process:
http://ccsvialliance.org/index.php?opti ... &Itemid=82

Best of luck!

Talltree11 · Post by **Talltree11** » Mon Jan 24, 2011 6:34 am

Thnak you for all your cooments. (off to Bulgaria in the morning!)
Kx

This Is MS Multiple Sclerosis Knowledge & Support Community

Writing to GP

Writing to GP

hi :))