Controversial surgical procedure gives woman her life back

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Cece
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Controversial surgical procedure gives woman her life back

Post by Cece »

http://www.theprovince.com/health/Story ... story.html
Right after MacNeil, 39, had surgery in Tychy, Poland, she said she had an energy spike greater than anything she'd felt for 20 years.

That lasted about six weeks and then she started to deteriorate and, by the beginning of October, felt very fatigued once more.

"Then my energy started to build again and now I'm at a level where, although I'm not 100 per cent, I'm very pleased with it," she added
"I pretty well lived on my couch for two years," she said. "I could never pick my daughter up from school and now I can everyday. So that's really special for me."
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EJC
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Post by EJC »

Yup, that'll be that placebo again........<rolleyes>
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SaintLouis
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Post by SaintLouis »

Great articles you're finding Cece, thanks for sharing.
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nellie
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Post by nellie »

Thanks Cece for sharing those articles. Gives us all hope!
Cece
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Post by Cece »

There are always these sorts of articles coming out of Canada. The trick seems to be to search for liberation procedure instead of CCSVI. :)
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garyak
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Post by garyak »

This would seem to provide some hope for at least some patients who experience initial improvement but then slide backwards weeks latter
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EJC
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Post by EJC »

Emma experienced the "one week slide" - in her case it lasted about three days. We have no idea what it was, it could have been a mini relapse, it could be the body reacting to it's new blood flow - we just don't know.

After three days it just disappeared and all the post op improvements returned along with a few more bonus improvements.

We're now a month on and she continues tiny daily incremental improvements. It's only when you take a week by week or month by month snapshot that you realise the extent of the improvements.
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