Hello - From the Gray State - Ohio

New members should feel free to introduce themselves here
Post Reply
User avatar
SBSB
Newbie
Posts: 1
Joined: Sat Jan 22, 2011 3:00 pm

Hello - From the Gray State - Ohio

Post by SBSB »

HI All,

Diagnosed in 2008. Copaxone for awhile, could not tolerate shots everyday, site reactions were horrible. On Avonex now, just did a follow up with the Doc, I thought I wasn't doing to bad,, we did the motor skills test, I failed. My balance has been getting worse but, I have been adjusting. He said, 'Sometimes there are issues with out having a noticed exacerbation'

So are they silent?

Going for MRI tomorrow, and JC virus test. He is considering Tysabri. I am REALLY uncomfortable with that.. I have looked at some of the blogs here, but have not seen any posts from someone who has gotten PML from it..

Any opinions, or additional resources is greatly appreciated.
Top
User avatar
NHE
Volunteer Moderator
Posts: 6418
Joined: Sat Nov 20, 2004 3:00 pm
Contact:
Contact NHE

Re: Hello - From the Gray State - Ohio

Post by NHE »

SBSB wrote:Going for MRI tomorrow, and JC virus test. He is considering Tysabri. I am REALLY uncomfortable with that.. I have looked at some of the blogs here, but have not seen any posts from someone who has gotten PML from it..
Here's one thread which discusses a PML case.

http://www.thisisms.com/ftopicp-139087.html#139087


NHE
Top
Post Reply

Return to “Introductions”