Dr Hubbard has data on 2000 patients. We have a safe procedure which helps a significant proportion of pwMS. I would love to have data on 5000 but 2000 is a great start.
I am starting to lobby.
MarkW
NHS Trials for CCSVI in the UK Rejected
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MarkW
- Family Elder
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Mark Walker - Oxfordshire, England. Retired Industrial Pharmacist. 24 years of study about MS.
CCSVI Comments:
http://www.telegraph.co.uk/news/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
CCSVI Comments:
http://www.telegraph.co.uk/news/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
Mark, thank you for any lobbying that you do, I think you are right that it needs doing.
I do not think though that Dr. Hubbard has data on 2000 patients. Where did you get that number? He has released data on 100 patients. His newly-approved patient-centric IRB registry is not for patients treated in the past but for patients treated in upcoming months. He needs to collect information at the time of procedure and at 1 month and 6 months afterwards and patients treated in the past cannot no longer fill out a 1 month checkup if it is gone by.
I do not think though that Dr. Hubbard has data on 2000 patients. Where did you get that number? He has released data on 100 patients. His newly-approved patient-centric IRB registry is not for patients treated in the past but for patients treated in upcoming months. He needs to collect information at the time of procedure and at 1 month and 6 months afterwards and patients treated in the past cannot no longer fill out a 1 month checkup if it is gone by.