Hi Kathyj08,
You are one of the cases I included in my retrospective analysis. Your symptoms started 30 yrs ago after rib removal for a sympathectomy to correct hyperhydrosis. I still have your images but I didn't write my notes that I sent to you into your history. Nonetheless, I do recall you have curvature problems in your spine.
Cuvature problems compress the contents inside the spinal canal, which includes the cord, the vertebral veins and spinal arteries. The also affect the muscles and connective tissues of the spine. Twists in the spine causes twists in the muscles and connective tissues, which compresses them. Chronic ompression of muscles can result in reduced blood flow to an area and subsequent lactic acid accumulation that can show up as tenderness to palpation or increased heat on thermoscans.
A masseuse won't hurt you by massaging the muscles of your back. The jugular veins are toward the front. A massage shouldn't hurt the venoplasty either but do let the masseuse know about it as they might want to avoid working on your sternocleidomastoid muscles.
How are you doing with your symptoms?
CCSVI and CCVBP
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uprightdoc
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Thank you Dr.
I do think I will go to the same place as my upper chiro. I think it will be worth the trip and I will be sure and tell her about my procedure.
How I'm doing.........some better, for sure.
The head, brain symptoms the most improved.
-my balance has improved to where some days a big part of the day I have forgotten that I had balance issues! (there are still days though when I feel slightly drunk, slow reaction, etc)
-the heart beating loudly in left ear when lying on right side has quieted down quite a bit.
-another exciting thing for me, (another vestibular system symptom), my right eye is beginning to handle fast moving objects again. It is not completely better but prior to chiro. treatment I couldn't keep up with the tv with fast moving objects or the camera scanning things quickly. I just couldn't keep up with it. Also, scrolling down the computer screen hurt and made me feel like I was either falling or going cross-eyed. I had this same symptom 18 yrs. ago with a flare-up. Now, it just jumps slightly and I feel that I am almost following the objects like a "normal person"!
-the numb spots on the bottom of feet that tend to travel a little from one area to another has become a little less noticable.
-sometimes the tinnitus seems slightly less intense.
I still have alot of odd sensations.
I still have the positional parathesis (that's what my neurologist calls it)
I believe the atlas adjustments have been a big plus!
Thank you for your time.
Kathy
I do think I will go to the same place as my upper chiro. I think it will be worth the trip and I will be sure and tell her about my procedure.
How I'm doing.........some better, for sure.
The head, brain symptoms the most improved.
-my balance has improved to where some days a big part of the day I have forgotten that I had balance issues! (there are still days though when I feel slightly drunk, slow reaction, etc)
-the heart beating loudly in left ear when lying on right side has quieted down quite a bit.
-another exciting thing for me, (another vestibular system symptom), my right eye is beginning to handle fast moving objects again. It is not completely better but prior to chiro. treatment I couldn't keep up with the tv with fast moving objects or the camera scanning things quickly. I just couldn't keep up with it. Also, scrolling down the computer screen hurt and made me feel like I was either falling or going cross-eyed. I had this same symptom 18 yrs. ago with a flare-up. Now, it just jumps slightly and I feel that I am almost following the objects like a "normal person"!
-the numb spots on the bottom of feet that tend to travel a little from one area to another has become a little less noticable.
-sometimes the tinnitus seems slightly less intense.
I still have alot of odd sensations.
I still have the positional parathesis (that's what my neurologist calls it)
I believe the atlas adjustments have been a big plus!
Thank you for your time.
Kathy
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uprightdoc
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uprightdoc
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NZer1,
I am working on fixing the problem with what I am doing over here. Someone has got to get the ball rolling over there. The CCSVI Alliance is good place to start and a terrific resourse to increase awareness among medical doctors and chiropractors. You have plenty of chiropractors over there, just not enough that use upper cervical methods. If enough chiropractors catch on and show interest the subject the college in NZ could hold seminars on upper cervical methods.
I am working on fixing the problem with what I am doing over here. Someone has got to get the ball rolling over there. The CCSVI Alliance is good place to start and a terrific resourse to increase awareness among medical doctors and chiropractors. You have plenty of chiropractors over there, just not enough that use upper cervical methods. If enough chiropractors catch on and show interest the subject the college in NZ could hold seminars on upper cervical methods.
Thanks Dr.
It would appear that the 'problem' is two fold.
1. Lack of 'Scientific' evidence.
2. Lack of consistent 'Anecdotal' evidence.
Either of these two would generate a paradym shift.
An approach where the combination of blood flow testing both in and out of the brain, investigation of cause (eg finding valve malformations, reflux, congenital malformations, physical restrictions/compressions, spine alignment) and flow testing and functionality of CSF would as a combination study/test, move the cause ahead light years.
There needs to be a group of combined researches collectively working on this "whole" jigsaw, some one to pull the groups into a focussed study. The past evidence, by example, where research has in a dysfunctional and fragmented way looked for knowledge of MS and its money making potentials.
The approach has been talked about by societies for years but nothing happened, money makers wanted control.
Researchers need to talk to each other, and I believe you Dr. F need to be part of a task force to push this forward. Talking with the likes of Dr Haacke is the type of action that will get minds working in one direction and able to feed off experience/s.
Individuals cannot do this alone.
In the same way getting a horse to water, the Chiro's here are only slightly interested in the possibility of their trade having more than improvements to nerve transmission due to spinal nerve impingements from injury, and the income that can be made from Chiropractic Care.
One person stands alone many people make light work.
I will contact the lead person at the Chiro School here in NZ his email details have been supplied by another person seeking Upper Care.
It would appear that the 'problem' is two fold.
1. Lack of 'Scientific' evidence.
2. Lack of consistent 'Anecdotal' evidence.
Either of these two would generate a paradym shift.
An approach where the combination of blood flow testing both in and out of the brain, investigation of cause (eg finding valve malformations, reflux, congenital malformations, physical restrictions/compressions, spine alignment) and flow testing and functionality of CSF would as a combination study/test, move the cause ahead light years.
There needs to be a group of combined researches collectively working on this "whole" jigsaw, some one to pull the groups into a focussed study. The past evidence, by example, where research has in a dysfunctional and fragmented way looked for knowledge of MS and its money making potentials.
The approach has been talked about by societies for years but nothing happened, money makers wanted control.
Researchers need to talk to each other, and I believe you Dr. F need to be part of a task force to push this forward. Talking with the likes of Dr Haacke is the type of action that will get minds working in one direction and able to feed off experience/s.
Individuals cannot do this alone.
In the same way getting a horse to water, the Chiro's here are only slightly interested in the possibility of their trade having more than improvements to nerve transmission due to spinal nerve impingements from injury, and the income that can be made from Chiropractic Care.
One person stands alone many people make light work.
I will contact the lead person at the Chiro School here in NZ his email details have been supplied by another person seeking Upper Care.
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uprightdoc
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Amen. That's what I am doing. I am simply connecting the dots and educating patients. There is plenty of research already, and the technology is here now to go much further. Patients need to be involved in the discussion to help determine future directions in research. TIMS and groups like the CCSVI Alliance are part of the solution.
Thank you Dr, another great article.
http://uprightdoctor.wordpress.com/2011 ... omment-411
http://uprightdoctor.wordpress.com/2011 ... omment-411
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uprightdoc
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Found a piece that fits with your article Dr, hand and glove type of situation where one situation supports the other.
On p84 Swank states that "...Recent study of the cerebral blood flow (CBF)......revealed significant reduction of the flow in the MS patients. ...In patients with MS, there was a progressive, generalized decrease in CBF....The rates of decrease were significantly greater than in normals, and they correlated directly with the speed of progress of the disease."
http://www.healthcentral.com/multiple-s ... 9777/swank
Low blood flow has been known for some time and CSF flow has to be considered for that very reason!
On p84 Swank states that "...Recent study of the cerebral blood flow (CBF)......revealed significant reduction of the flow in the MS patients. ...In patients with MS, there was a progressive, generalized decrease in CBF....The rates of decrease were significantly greater than in normals, and they correlated directly with the speed of progress of the disease."
http://www.healthcentral.com/multiple-s ... 9777/swank
Low blood flow has been known for some time and CSF flow has to be considered for that very reason!
Found another piece on Dr. S's thread that fit in somewhere as well.
"I don’t think your question about “sticky blood syndrome” was answered. It is also known as Hughes Syndrome. The info below is from the Multiple Sclerosis Resource Center site. Also check out http://www.hughes-syndrome.org/overview.htm for more info.
The blood disease that mimics MS - Hughes Syndrome. Up to 5% of those diagnosed with Multiple Sclerosis don't have the disease at all. They have something called antiphospholipid syndrome or ‘Hughes Syndrome’, a hidden blood disease which in some ways mimics MS. It is also known as "Sticky Blood Syndrome"...Like MS, Hughes Syndrome can affect mobility, memory, the speech and the nervous system. But the differences. Hughes Syndrome is easy and cheap to treat.
What is Hughes Syndrome? Hughes Syndrome is the common autoimmune disease that makes blood more sticky or thick and therefore more prone to clotting in both veins and arteries. Lack of awareness of this condition means it is often missed or overlooked... Current research shows Hughes Syndrome is responsible for a fifth of strokes under 45 years, a fifth of cases of deep vein thrombosis, including so-called ‘economy class syndrome’. It is the cause of 1 in 5 recurrent miscarriages. Hughes Syndrome can also mimic Alzheimer's disease, ME, and is linked to migraine. If it is left untreated sticky blood can kill.
MS the wrong diagnosis? The St Thomas's Hospital found that up to one-third of patients coming to their clinic did not have MS at all, but Hughes Syndrome...Doctors there were seen numerous patients who had been told they had MS and were confined to a wheelchair having lost the use of their legs. They were subsequently re-diagnosed as having Hughes Syndrome. Within weeks, and in some cases days of starting on the blood-thinning drugs they were out of their wheelchairs and walking.
Prompted by a growing number of patients coming to the clinic who had been told they had MS when they didn't, the team at the Rayne Institute questioned a sample of 250 patients with Hughes Syndrome. They found that almost a third of them had originally been told they had MS.
How Hughes Syndrome mimics MS Symptoms include problems with:
• Mobility - difficulty in walking, tripping and dragging foot
• Vision - double vision
• Tingling feelings
• Fatigue
• Balance
• Speech
• Memory"
"I don’t think your question about “sticky blood syndrome” was answered. It is also known as Hughes Syndrome. The info below is from the Multiple Sclerosis Resource Center site. Also check out http://www.hughes-syndrome.org/overview.htm for more info.
The blood disease that mimics MS - Hughes Syndrome. Up to 5% of those diagnosed with Multiple Sclerosis don't have the disease at all. They have something called antiphospholipid syndrome or ‘Hughes Syndrome’, a hidden blood disease which in some ways mimics MS. It is also known as "Sticky Blood Syndrome"...Like MS, Hughes Syndrome can affect mobility, memory, the speech and the nervous system. But the differences. Hughes Syndrome is easy and cheap to treat.
What is Hughes Syndrome? Hughes Syndrome is the common autoimmune disease that makes blood more sticky or thick and therefore more prone to clotting in both veins and arteries. Lack of awareness of this condition means it is often missed or overlooked... Current research shows Hughes Syndrome is responsible for a fifth of strokes under 45 years, a fifth of cases of deep vein thrombosis, including so-called ‘economy class syndrome’. It is the cause of 1 in 5 recurrent miscarriages. Hughes Syndrome can also mimic Alzheimer's disease, ME, and is linked to migraine. If it is left untreated sticky blood can kill.
MS the wrong diagnosis? The St Thomas's Hospital found that up to one-third of patients coming to their clinic did not have MS at all, but Hughes Syndrome...Doctors there were seen numerous patients who had been told they had MS and were confined to a wheelchair having lost the use of their legs. They were subsequently re-diagnosed as having Hughes Syndrome. Within weeks, and in some cases days of starting on the blood-thinning drugs they were out of their wheelchairs and walking.
Prompted by a growing number of patients coming to the clinic who had been told they had MS when they didn't, the team at the Rayne Institute questioned a sample of 250 patients with Hughes Syndrome. They found that almost a third of them had originally been told they had MS.
How Hughes Syndrome mimics MS Symptoms include problems with:
• Mobility - difficulty in walking, tripping and dragging foot
• Vision - double vision
• Tingling feelings
• Fatigue
• Balance
• Speech
• Memory"
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uprightdoc
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ConstableComfortable
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Dr. F
I posted an xray showing loss of lordosis in my neck a week or so ago and since then I've got hold of my original MRI scan from 2 years ago done by my neuro for my MS diagnosis. I was interested to see if my neck was the same back then (i think it was kinda straight, but would value your opinion). BUT after watching Dr. Donald Corenman's spine/mri video's on YouTube I noticed that there was a bulge in my spinal cord around the T8/9 disc. I've posted the images here;
http://constablecomfortable.blogspot.co ... -disc.html
Is this a herniated disc? And would this lead to MS-type symptoms?
I want to book an appointment with my GP to discuss this and other issues arising from this scan. I'm looking at these pics with no medical training and only Google to guide me, so if someone who knows what they're looking at can say"this is X & Y because of Z", then i'll feel more assured when seeing my GP.
I have visions of her kicking me out of her office telling me to go and get a medical degree before I look at any more scans...
Thanks in advance
Jon
I posted an xray showing loss of lordosis in my neck a week or so ago and since then I've got hold of my original MRI scan from 2 years ago done by my neuro for my MS diagnosis. I was interested to see if my neck was the same back then (i think it was kinda straight, but would value your opinion). BUT after watching Dr. Donald Corenman's spine/mri video's on YouTube I noticed that there was a bulge in my spinal cord around the T8/9 disc. I've posted the images here;
http://constablecomfortable.blogspot.co ... -disc.html
Is this a herniated disc? And would this lead to MS-type symptoms?
I want to book an appointment with my GP to discuss this and other issues arising from this scan. I'm looking at these pics with no medical training and only Google to guide me, so if someone who knows what they're looking at can say"this is X & Y because of Z", then i'll feel more assured when seeing my GP.
I have visions of her kicking me out of her office telling me to go and get a medical degree before I look at any more scans...
Thanks in advance
Jon
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uprightdoc
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Hello Jon,
It is in an unusual location but It certainly looks like a buldging disc to me. The bad disc is compressing the thecal but not the cord. It is an unusual location because it is in the thoracic spine which are attached to ribs. The ribs add strength and stability and limit range of motion which makes herniated discs less likely but it does happen.
As I recall you had a bicycle accident in which you were thrown over a guard rail and into a culvert. Did you flip over or land on your chest?
Tell me again, what are your signs and symptoms?
It is in an unusual location but It certainly looks like a buldging disc to me. The bad disc is compressing the thecal but not the cord. It is an unusual location because it is in the thoracic spine which are attached to ribs. The ribs add strength and stability and limit range of motion which makes herniated discs less likely but it does happen.
As I recall you had a bicycle accident in which you were thrown over a guard rail and into a culvert. Did you flip over or land on your chest?
Tell me again, what are your signs and symptoms?
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ConstableComfortable
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Yes, I did fall off my bike and i whacked my ribs on the edge stone of the canal before ending up in the drink.
My symptoms are the 'usual' ones associated with MS, fatigue, numbness in my feet, cold hands and feet, slower memory recall and a slightly shorter fuse on the bladder.
Is this bulge a problem? If so, is it fixable?
PS:
My initial symptoms were a loss of sensation in one leg only. On a cold kitchen floor I had one cold and one warm(or not cold) sensation in my feet. And then discovered this lack of sensation went up the entire leg.
i had some double vision on waking a month later but this passed after 40 mins or so
My symptoms are the 'usual' ones associated with MS, fatigue, numbness in my feet, cold hands and feet, slower memory recall and a slightly shorter fuse on the bladder.
Is this bulge a problem? If so, is it fixable?
PS:
My initial symptoms were a loss of sensation in one leg only. On a cold kitchen floor I had one cold and one warm(or not cold) sensation in my feet. And then discovered this lack of sensation went up the entire leg.
i had some double vision on waking a month later but this passed after 40 mins or so