Newly Diagnosed, looking to blog about it

[MSBOB]

Hi,

My name is Bob. I have MS. (*clap*)

I am going on Rebif tomorrow. I am going to "shoot" for the plus side of that 30% reduction of holes in brains. I am not terribly convinced though. I have read a lot about MS. I think if I can snag 15% less new holes in the brain, it will be worth at least a couple billion dollars, because I am worth it.

I have reduced my saturated fat intake to less that 10g/day. I drink cod liver oil now (molecularly distilled). I take lipoic acid, ginkgo, b vitamins, multi-vitamins, lots of fruit, Nuvigil, 5000u of Vit D3, and starting rebif tomorrow. I think I may start NAC as well. I have very good reasons for each. I will save the explanations. Most of this is covered in other threads. If not, I would be happy to elaborate.

If I get another piece of marketing material from Rebif... I swear. Everyone looks so happy in the pictures, it makes me want to go buy something from JC Penny.

Anyway, hello fellow people with MS. I hope to be with you all for at least another 8 to 25+ years. In that time, I hope to make a lot of money so that I don't end up as state property.

Life is good. I really do feel that way. It may be fleeting and impermanent, but that's a source of profound meaning. I wouldn't ask for it any other way.

Some of my initial questions were how many lesions are a lot of lesions? I got 20+ scattered through by brain and one big one in my spine. I don't feel too messed up, though. I can walk and talk and feel good beside the fatigue. I got the MRI because I had optic neuritis in the past, and some numbness and funny feelings in my legs about 5 years ago. Last November my face went numb for about 3-4 weeks. That is when I went to my first MRI in January 2011.

The MRI was bitter-sweet. I am glad that I am not imagining things. I am sad that it wasn't my imagination. I am sure many of you can relate.

I know that when someone writes this much, it is difficult to read.

[leetz]

you will find an abundance of information on this site...very helpful and informative!

God Bless

[Karazhan]

Welcome to TIMS!
I admire your optimism and sense of humor.

[MSBOB]

Thanks for the kind words. I am really enjoying this site.


I am going to start taking NAC and I am trading in the ginko for green tea supplements.

[MSBOB]

Cordyceps

That was the last one.

I don't see anything that convinces me that it helps, and it is totally depressing me.

I am sorry to everyone here on this site if I have not been the most helpful or cheerful or least sarcastic. I told my mom about the worm therapy. She said, "Those poor little worms having to prove themselves." I thought that was funny.

My freaking eye has been twitching endlessly for months! I want to put a hookworm in it.

WTF

I think the Rebif is making me depressed. Whoever wrote that it was "crud" was right on. It is crud.

Thanks. I got to get off of this site. It is not doing me any good.

NAC will be helpful I think.

Anyway, the one thing that I have found that is working to make things easier is speed. Nuvigil is the only thing I have received that has been good to me. I give the Nuvigil folk a nice plug. I was expecting more, but it is good enough.

[MegansMom]

Geez Bob,
I know you don't " believe in CCSVI" but why don't you at least get screened for it?

Also please peruse the latest studies from the meeting in Bologne.

Good vibes sent your way.

MegansMom

[Bender]

Dude, the MS is one thing but the doctors should be able to clear that Clap right up.

[MSBOB]

Dude, the MS is one thing but the doctors should be able to clear that Clap right up.

I just read about it on Thisisclap.com, there is hope.