CCSVI and CCVBP

civickiller · Post by **civickiller** » Fri Mar 18, 2011 1:15 am

YES!!!!! finally after 6 visits, i finally feel it again and perfect timing since we have our first local MS walk so I would like to show ms'ers i know, how im feeling and how ucc helped me. my adjustment are the closest hes seen for me yet

I cant thank you enough Dr Flanagan for turning me and others on this site onto ucc. I just hope everyone can feel the way I feel, the best i felt in years. Easier time walking, better balance, no lower back pain, heat sensitivity, GONE.

i think i did have to let the LDN flush out but i started again and now i feel the adjustment. and hes adjusting the opposite side of my neck from when he started

uprightdoc · Post by **uprightdoc** » Fri Mar 18, 2011 2:54 am

Hello everyone,

Thanks for the update Silverbirch. I am happy to hear your twisted sister side has straightened out and is behaving.

Likewise, thanks for the update Civickiller. Enjoy your MS walk. There is still a lot of work to be done and many more people seeking help.

Drury,
Good luck today and keep me posted.

blossom · Post by **blossom** » Sun Mar 20, 2011 8:38 pm

hi dr. flanagan, just touching base. not much new yet, dr. weimer is still doing basically the same things. my pelvis seems to be holding better.
my thoracic has lost a little of the hump but dr. weimer doesn't know how much it will improve. it still gives me discomfort when in wheelchair too long i'm sure with one side of my back higher than the other that's bound to be with more pressure against the highest side.

i've been trying to get a cervical mri with i think he said head tilt. and a full spine. looks like i'll be only getting cervical and maybe not even head tilt. dr. weimer wants to see the best he can the stenosis and the spurs in the neck and so do i. the full spine would be great. but, here the chiro. can't order mri's or x-rays-i have to go through my pcp. but after some trys to get him to do it he would only write it for the cervical "he said that's all i needed".

the pcp also made the remark that "if my chiro. was a dr. he could write the script himself." i actually felt the hair on my back of my neck stand up.--but i simply said he is a dr. and unfortunatly the ins. co.'s dictate this to be this way-the same as when he orders something and the ins. dictates him. this is just wrong, wrong,wrong.

anyway, i hope to be getting this soon-seems i said that before. then go from there. when i get it if it's ok with you i'll send you a copy to check out. i still would appreciate your input and dr. weimer does not seem to mind at all--he is not closed minded and blindsigted as some that i experience that refer to themselves as "real dr.'s". he's open with the idea that it should be about whatever it takes whatever dr. it's about getting the patient better. the way it should be.

ok, i've sorta updated, vented and whatever else. thanks again.

uprightdoc · Post by **uprightdoc** » Mon Mar 21, 2011 1:25 pm

Hello Blossom,
Thanks for the update and the venting. I will be happy to look at your scans.

Ruthless67 · Post by **Ruthless67** » Mon Mar 21, 2011 10:10 pm

Dr. Flanagan,

There is a new posting of Cheerleader’s that if you haven’t read it yet, you might like to.

It’s the thread called,

New doctors, new research, new ideas

Cheerleader wrote:

From the large attendance and new doctors and new research discussed at ISNVD last week, it appears that there is a growing interest in studying the impaired venous systems and hypo perfusion found in pwMS.

One of the new doctors looking into CCSVI and the connection to MS is Dr. Bruce Trapp, chairman of the Department of Neurosciences at the Cleveland Clinic.

Dr. Berislav Zlokovic is Director of Neurodegenerative and Vascular Brain Disorders at the University of Rochester.

Lora

civickiller · Post by **civickiller** » Tue Mar 22, 2011 12:01 am

the day after i started feeling better, i felt like complete crap, sick like a hangover, severe muscle weakness in all my extremities leaving me barely able to walk.

has any patient of your went though something like this Dr. F ?

uprightdoc · Post by **uprightdoc** » Tue Mar 22, 2011 6:30 am

Thanks Lora.

Civickiller, Many MS patinets have similar experiences. Early upper cervical care is often associated with ups and downs. Some chiropractors call it retracing. The body goes through a process of acclimating to a new position. Chronic old misalignments causes changes in connective tissues that make them stiffer and resistant to change. They have to readjust to loads and it is not an overnight fix. Hang in there. It is a little too early to evaluate. You are on the right track. While it may not give you one hundred percent relief, upper cervical correction can only make you healthier.
Don't forget to work with your neuro on the LDN.

civickiller · Post by **civickiller** » Tue Mar 22, 2011 6:34 pm

will this retracing going on eventually heal back to where i was before it started feeling this way or is this my new start from point?

NZer1 · Post by **NZer1** » Tue Mar 22, 2011 10:41 pm

http://ccsvism.xoom.it/ISNVD/Abstract-Salvi.pdf

Rare clinical manifestations associated with CCSVI-MS:
extrapyramidal syndrome and normotensive hydrocephalus
Salvi f., Bartolomei I., Nassetti S., Cantagallo A., Plasmati R., Zamboni P.
In 2008 Barun et al reported the rare association between parkinsonism and MS in two
patients and reviewed the literature regarding this topic. The conclusions of this paper
were that parkinsonism and MS can coexist as two separate diseases in the same patient
and that parkinsonism may be aggravated by MS; this will explain the good response to
corticosteroids in some of the reported patients.
It is well known for neurologist involved in MS patients care that in the advances stage
of MS some patients may present parkinsonian signs such as mask face, bradykinesia,…
We observed seven patients with this association and studied them with ECD.
All patients had CCSVI according to Zamboni’s criteria. Our hypothesis is that iron
deposition in the substantia nigra and basal ganglia, secondary to CCSVI, may be
responsible for parkinsonian sign and symptoms.
Normal pressure hydrocephalus (NPH) is one of the few cause of dementia that is
potentially reversible. In 1965 Hakim S. and Adams R.D. described this syndrome
characterized by a clinical triad of gait disturbance, dementia, urinary incontinence.
The most important pathophysiological feature of NPH is a dysfunction of cerebrospinal
fluid (CSF) dynamics with reduced absorption through Pacchionian granulations and
compensatory CSF diffusion into the periventricular white matter.
Brain MRI shows ventricular enlargement that is disproportionate to cerebral atrophy;
enlargement of the frontal and temporal horns is relatively uniform and symmetric. In
NPH there is absence of macroscopic obstruction to CSF flow.
In 2009 Zamboni et al described the venous outflow disturbances in CCSVI that
significantly impact on CSF pathophysiology in patients with MS.
The classical triad of gait disturbance, dementia, urinary incontinence was present in
seven patients affected by MS; in all MRI showed the classical NPH findings in
addiction to MS lesions. All patients had McDonald criteria for MS diagnosis and a
diagnosis of CCSVI by ECD.

uprightdoc · Post by **uprightdoc** » Wed Mar 23, 2011 4:32 am

Civickiller,
It depends on your particular condition. If a person undergoing upper cervical correctin has moderate to severe spondylosis (degeneration of the spine) slips and falls, gets into a car accident or strains themselves shoveling snow for example they might experience more of a setback them someone with a healthier spine. The good news is that if you have been under care you can usually be restored quickly.
It takes time to straighten teeth. The spine is far more complex and under much more stress.

uprightdoc · Post by **uprightdoc** » Wed Mar 23, 2011 4:46 am

Hello NZer1,
I have a different theory about the cause of Parkinson's. It has to do with poor CSF flow through the foramen magnum and upper cervical spinal canal due to spondylosis, which causes chronic NPH and subsequent compression of the substantia nigra due to increased CSF volume in the cisterns. http://www.upright-health.com/substantia-nigra.html

NZer1 · Post by **NZer1** » Wed Mar 23, 2011 10:29 am

Hi Dr.
Have you been in touch with Dr. Salvi or Dr. Zamboni about this?
It seems that blood flow restrictions and reflux is not disputed. Its the reasons and proof beyond doubt we need. The effects down the chain of events is not as important at this time in my view.
The cause or proving the possible causes is going to unearth many answers.
Is there any way that a team approach can be established to advance the theories? Would you be interested in working with Dr. Salvi in some way, your insights must surely be of great value.
I noticed that Dr Zamboni is using the collar to measure blood flows, I am guessing they are on the way with searching for which area of blood travel is influenced by 'problems'.
If technology is advanced enough to disseminate the possible causical areas we are well on the way to finding some concrete answers to work with.
Technology is going to be pivotal in the next steps? (other than money?)

Kathyj08 · Post by **Kathyj08** » Wed Mar 23, 2011 10:54 am

Hi Dr.
I have a question in regards to medical massage. I mentioned to you earlier that the atlas adj. I'm seeing suggested me seeing one for several visits to loosen up acidity in the upper back muscles. You said you thought it may be a good idea, just to stay away from the area where the internal jugulars lie just to be safe.
I have gone 3 times to date.
My question is, each time I seem to be all tight and all bound up (her and the doc both mention that), so I feel that whatever I have, be it ms or something else, I think that may be causing all this tightness so isn't it always going to go back to that after she seems to work on it so hard? I mean there must be something causing it to be that way so I am thinking we need to take care of the cause instead of the symptom?
I don't know if you follow what I am trying to say, but don't want to keep having this done if it will keep returning.
Thanks.
Kathy

uprightdoc · Post by **uprightdoc** » Wed Mar 23, 2011 11:36 am

Dr. Haake and Dr. Dake read my book and they are both with the ISNVD. Arlene Hubbard also read the book. More importantly, Dr. Noam Alperin read my book. Dr. Alperin is an expert on upright mri and CSF flow. We are pretty much on the same page when it comes to CSF. Dr. Schelling is also open to working with chiropractors. It will take a team approach to solve the problem of neurodegenerative diseases. No one has all the answers or solutions.

uprightdoc · Post by **uprightdoc** » Wed Mar 23, 2011 11:43 am

Hi Kathyjo8,
Talk to your chiropractor. If the massage isn't producing noticeable improvement in signs and symptoms, if it doesn't make you feel or function better, then there is no point in continuing. You have curvature problems and you will always feel tighter in certain areas of the spine due to the imbalance. Massage sometimes helps the muscles but it won't make the curvature problems in the spine go away.