The only naysayers are people like you who come on here pretending to have MS. Anyone with a bit of common sense would understand people with MS want new treatments and would be happy that something as simple as getting their veins open would relieve some symptoms of MS. It is obvious for some of you not being proven wrong is more important then getting to the truth or having a decent discussion about CCSVI and that is a shame. The message seems to be pretty much be if you have MS and believe that fixing CCSVI is the answer you are embraced and given support while the "naysayers"(whatever that means) can pretty much go to hell. I swear some of you act like when someone says something critical about CCSVI that they are attacking your mama or something. It is a theory folks, that is all.No matter what I or anyone else on here think about CCSVI research will move forward and that is a good thing, right? Geeeesssh. Capt. Boo, I am glad you have had relief from your symptoms and I hope they continue as I would wish for ANYONE with MS.MarkW wrote:Thanks your info CaptBoo. You have given the correct level of detail to describe trends in your MS over a significant period of time. The treatments for stenoses are changing so the method used historically on you is personal to you, say nothing. Six month symptom trends are not usually taken to be placebo or normal variation in MS by experts. Please ignore the naysayer Scorpion and do not give details. In MS the overall trend is invariably downwards but not for you, great news.
Kind regards,
MarkW
CaptBoo@SixMonths
Re: Thanks CaptBoo
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thornyrose76
- Family Elder
- Posts: 462
- Joined: Mon Nov 23, 2009 3:00 pm
Re: Thanks CaptBoo
Hmmm, it depends on what the criticism is and if it is constructive or cutting, but you have a point, scorpion. I am invested in CCSVI, emotionally and physically now that I've had the procedure done.scorpion wrote: I swear some of you act like when someone says something critical about CCSVI that they are attacking your mama or something.
A theory, a political movement, a salvation, a promising new treatment, a restoration of what has been lost...it is different things to different people, isn't it?It is a theory folks, that is all.
I agree with this, relief is huge, and MS is awful.No matter what I or anyone else on here think about CCSVI research will move forward and that is a good thing, right? Geeeesssh. Capt. Boo, I am glad you have had relief from your symptoms and I hope they continue as I would wish for ANYONE with MS.
