CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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uprightdoc
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Post by uprightdoc »

Some upper cervical doctors like to take post x-rays to check progress and some doctors don't. It depends on the condition and the case. When they do takes posts varies as well. You are still in the early stages of care.
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jamit
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Post by jamit »

Hi Doctor FLanagan,

Thanks for responding. I am on no drugs and have low blood pressure and have had no success finding a TMC professional in fact the one acupuncturist I did find with excellent references and who teaches made my spasms worse so I guess I am out of luck as usual getting the high grade. Darn muscle spasms are my absolute worst symptom as it keeps me up most of the night. I do make tinctures myself for that very reason but have no experience with TMC herbs. Magnesium etc. and the vaious homeopathic muscle spasm formulas have not helped either (the pharma drugs work only a little and leave me more worn out than I already am from not sleeping that I am better off with no drugs). I use MJ during the night, which gives me a a couple of hours of sleep sometimes more, during the day I can just move around.

I am between L.A. and S.F. I have also had no success with chiropractors just the regular kind. The two I have tried just cracked my back and neck which did nothing for my back and for all I know could have made it worse.

My back has been used extensively and I have had several concussions, lots of outdoor activies lots of falling and crashing, spondylotis and degenerative disk disease that I was told was just wear and tear and not too bad considering my ripe old middle age of 52. Now I have backpain because of the twisted way I walk with canes and I use an afo and walk by swinging the hip.
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Drury
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Post by Drury »

Thanks Dr. Flanagan it is all starting to make sense. You said from the beginning you thought my daughter should have her hips etc. looked at. I will keep you updated.

Blossom, thank you- you are always so kind and caring. Wishing best for you too.
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CaptBoo
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Post by CaptBoo »

Jamit, when my leg gets to kicking, I take two apple cider vinegar tablets and it calms down in a half hour. Don't know if this will help you, but I thought I'd throw it out there. A neighbor with restless leg suggested it to me and it works for me.
<div>There be no dragons   ...Reese Palley</div>
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blossom
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ccsvi

Post by blossom »

nzer1, wow, you really do the research. your post are very interesting. i have to admit somethings as far as remembering the medical words and comprehending some stuff is above my head. but, everything you have brought here reafirms what dr. flanagan is telling us. and, how important the spine is when it comes to how well our other body parts work. from the blood flow on.

i hope you are doing well and thngs are falling in place for you in a better way.
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NZer1
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Post by NZer1 »

Thanks blossom for your kind words.
I have found incredible support and most from the MS community.
I believe my heart is healing and sadly my body has suffered from the shock. I have a sister helping with the mental confusion and general life stuff that confuses me.
I feel now that there is a future and a good one. Its amazing how when you have this disease and you have accepted its progression that the way my wife walked out, totally with out warning has been easier to handle in a way.
It is final, it doesn't creep along taking you down day by day like MS, and it has helped to put things into prospective and look for what I need for the future.
There is a silver lining or at least a light at the end of the tunnel that isn't a train coming at me as there was recently.
Life is good!
regards Nigel
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uprightdoc
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Post by uprightdoc »

Hello Jamit,
I don't know enough about your case or your signs and symptoms. What I do know is that you had several concussions and you have a beat up back with some degeneration. You are also in a wheelchair at 52 and leg weakness and compensatory gait causes back pain.

You have options. There are some good NUCCA doctors in the San Francisco area. NUCCA is excellent for upper cervical problems. You also have some good SOT (sacrooccipital technique) chiropractors in California. The fact that you are in a wheelchair indicates to me that you need to get your pelvis and low back checked and corrected from time to time. Wheelchairs take their toll. SOT doctors do craniopathy and pelvic work. The trick is finding a good one that follows the proper protocols established by SORSI.
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Post by David1949 »

Dr. Flannagan
One of my relatives slipped on a boat dock two years ago. He whacked his head pretty bad. Shortly after that he started having cognitive issues and was later dxed with a form of dementia. Those of us who know him believe there has to be a connection between the hit on the head and the dementia, but the doctors dismiss that. What do you think? Do you think UCC might help him?
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uprightdoc
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Post by uprightdoc »

Hello David,
Concussions like traumatic brain injuries can injure the brain directly and cause permanent damage. But slipping on a deck and hitting the back of your head can also jar and injure the whole spine, never mind the upper cervical spine. It's highly unlikely that he didn't injure his spine. Anyway, there is nothing to lose getting him checked out to make sure he has no upper cervical misalignments interfering with blood and CSF flow going into and out of the brain.

I have a new page that should ready for my upright-health.com website tomorrow on Pugilistic Dementia and Parkinson's. Your relatives might want to read it.
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colapesce
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Post by colapesce »

hello Dr Flanagan,

I went to see Heidi last Friday and she could see even before taking x-rays that I was a candidate for treatment. My head is too far forward, my shoulders and hips are uneven and one leg is longer than the other. She told me that my brain is exhausted too. I return for my first treatment on Thursday.

I remember I fell off the back of a moving milk truck when I was about 11 years old so this could be when I injured myself. I've fallen off a few horses too though so who knows?

Dr Flanagan, thank you for being here!
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uprightdoc
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Post by uprightdoc »

Hello Colapesce,
Your welcome. Untreated injuries of the spine, such falling off the back of milk truck combined with several falls off of horses are cummulative. "As the twig bends so shall the tree grow." Eventually the spine starts to degenerate until it reaches a point where it starts to affect the brain and cord. I can spot misalignments in people from far away. Based on what you are telling me I can picture what Dr. Heidi saw.
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bestadmom
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Post by bestadmom »

Hello Dr. Flanagan,

I had my first appointment today with Dr. Bender and your book arrived in my mailbox this morning so I brought it along.

Although Dr. Bender didn't know of you (shame on him!) his juices immediately started flowing and he was thoroughly excited. He is working on a study with another chiropracter in Sullivan County and this dovetails with their research. He phoned his friend while I was laying on the table and his friend knew of you and was very excited.

I didn't get the x-rays, but Dr. Bender will email them to me. My axis was slightly off hoizontal but nothing stunning, but my neck from top to bottom was off by 8.5 degress, with my head listing to the right and my left leg 1/2" shorter. He did one ao adjustment and the leg went to less than 1/4" difference and the vertcal angle went down to 5.23, the axis at .1. He explained everything on the computer, showing the software, the angles, where the points are placed, how the "break" in verticality from one vertebrea to the other forms zig zags. He said he'd never seen such a big angle and the % it decreased was a good start, although he generally likes to see more, but in my case he didn't expect it.

My 1/2 hour appointment turned into over 2 hours. Because I'm in a wheelchair, taking the x-rays on the vertical Bucky Board was tricky and took a lot of time to maneuver me, but we did it. I will be going back twice a week for 6 weeks starting next Monday.

I can't wait to post my x-rays and to see improvement. I feel great but tired. He said that's normal. I loved how he explained everything and how the numbers are the benchmarks. I'm all about quantitative proof so the whole appointment resonated with me.
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civickiller
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Post by civickiller »

Dr Flanagan, I was going through retracing but thatstarted a few weeks ago but since then I've gotten worse where I need a wheelchair now.

He you seen people get worse after there first couple weeks of retracing
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Post by David1949 »

One lady with MS reported that her venogram revealed her azygous vein was pinched between her spine and her heart. In her case, ballooning alone did not work so a stent was added. What I'm wondering is if her spine might have been out of position. Is it possible that UCC treatments might have fixed that?
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uprightdoc
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Post by uprightdoc »

Hello Civickiller,
Every means of intervention has its limits. Some people get little or no improvement from upper cervical care. Many patients have exacerbations while under care sometimes due to accidents, falls, sleeping in awkward positions, getting around with canes, walkers and wheelchairs, or working around the house. But no one should get worse from care.
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