CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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uprightdoc
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Post by uprightdoc »

Hello All,
I spent a good part of this weekend waiting for a contractor to help me prep my yard for the final installation of my solar collectors on Tuesday. He couldn't make it due to weather and other issues. No big deal, it just wasted many hours but I had to assemble the collector and some other things to do anyway.

During one of my many downtimes I read an enticing email from Mazza looking for a NUCCA doctor in Sydney. Her case is unusual and it got my juices going. It's actually more related to my next book. While waiting I checked my TIMS mailbox to make sure I replied to everyone and likewise scanned the last several pages of comments. That brought me back to Nigel's case which is related to subject I will be covering soon. Nigel's case is also similar in certain way's to Blossom's situation. After Nigel, came Neava's case, which got my attention. It made me think back to VII's unusual failed surgical Chiari and tethered cord case way back in this thread. To further spice things up, I saw Kathryn 333 shortly after that, whose case is most important to me and likewise ties into my next book. The icing on the cake, however, was when Blossom's cervical MRI finally came in. I quickly scanned the written report and felt sort of let down. It was kind of boring. According to the report the condition of her cerivcal spine isn't too bad. Then I looked at the MRI and couldn't believe my eyes. There is clearly much more work that needs to be done here.

Thank-you all for inspiring me to do more. I will talk to you tomorrow.
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blossom
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ccsvi

Post by blossom »

hi dr. flanagan!! you just made my day, my evening and my tomorrows!!! i can hardly wait to hear. just the fact there is verification of all my yapping to neuro's all these yrs. and even some chiro.'s which i now know they all know only what they know and see what they want to see and will never side step from it. even if you beg cry take a hissy fit--i've done it all.

i have to tell you dr. weimer was disappointed in the report and his view was that i have issues. i'm so glad dr. weimer is the type of dr. and man that he is. without his help i would never ever have been able to get that mri done here. and i feel he has gained a lot of respect for you. this man is really about helping someone. plus he has no problem that you are my mentor. now how to correct what we can. i anxiously await.

in my excitement i neglected to tell you that i am very happy you are doing so well. also glad to hear your solar panels are getting done. now the panels i am jealous of. can't even talk about my heating and cooling bills. and at the top of the list all that stuff is destroying our beautiful planet. when i get to feeling better i hope to make some changes.
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NZer1
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Post by NZer1 »

You could have just said I missed you guys, I for one would not have been surprised. :lol: Using the contractor as an excuse, phew.
Hope you go solar soon Dr. :D
Regards Nigel
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costumenastional
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Re: ccsvi

Post by costumenastional »

blossom wrote:costumsnational we just have to keep track of his continuing improvements-we have him to thank for bringing dr. flanagan here. and a little music from costume puts a little welcome zip now and again.
Once here, always here friend. That's the way it goes. Threads tend to become boring once all the important questions have been asked and replies have been given and Dr Flanagan knows this well. Trust me, this man will always help when help is really needed. The amount of knowledge in that head of his is simply out of this world.
As for my music, I ll continue to write and share. I am glad you enjoy electro.
Actually, I am stable as a rock nowadays. My drawbacks have become more rare and they last less than they used to. They usually occur a few days before Dr Koontz decides to give me an adjustment. It is obvious to me now that some damage is here to stay and this goes for my cervical spinal vertebrae also, but this beats the days I couldn't count my symptoms. The days I was dying...
Dr Flanagan once said that I will always need an adjustment every now and then and unfortunately I think he was right. Again.
I ll never feel 100% safe cause living with an almost broken neck for so many years may have triggered something that cannot be completely stopped. The point is that I can now enjoy how spring smells, I can make love, I can think, I can see myself still walking when i reach fifties and so on. And let's not forget about hope for feeling even better as time goes by. May God help me with this one.

Don't thank me for bringing those 2 men here. I didn't bring them, I just invited them and I m sure anyone would have done the same. They deserve all the credit for accepting the invitation and bringing awareness.

Each one of us represents a unique case. Don't let neuros drop you into the big old bucket without a fight. My life is attached to Dr Flanagan and Dr Koontz. Maybe some of the rest of u will have similar luck with their chiropractors. I will always be around but only in this thread. Thank God...

Dear Dr Flanagan, let us know when your second book will be available.
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HappyPoet
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Post by HappyPoet »

uprightdoc wrote:Thank-you all for inspiring me to do more. I will talk to you tomorrow.
:D + many more

Edit: Oh my... the yellow in those smiley faces was a bit too bright, sry, but on the + side is that their brightness reminded me of the bright red letters in Dr. Sclafani's exit signs that I saw immediately after my procedure :D
Last edited by HappyPoet on Mon Apr 25, 2011 11:33 am, edited 1 time in total.
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colapesce
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Post by colapesce »

Yippee! Everyone is back. I was so upset last week because I thought this thread was going to die just as I'd joined it.
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uprightdoc
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Post by uprightdoc »

Hello all,
Mazza emailed me over the weekend and like the rest of you she has a very interesting case. It got my interest to say the least and pulled me right back. About a third of you have similar cases more related to my second book.

I have a favor to ask of you. I would like some of you to consider telling your story in the MS section on my website. I will discuss it further later.

I will be finishing up on the solar system tomorrow.

Thanks for all the nice remarks.
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Kathryn333
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Post by Kathryn333 »

I'm so happy you're staying, Dr. Flanagan. :)
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mazza
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Post by mazza »

Thanks for your advice and interest in my story Dr Flanagan. I am so happy that it drew you back to this thread for the benefit of us all.
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HappyPoet
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Post by HappyPoet »

Fantastic that you're staying!
I'd be happy to help with your website.
:D + more!
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NZer1
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Post by NZer1 »

Welcome back Dr. :D
Question, are there any medical practitioners who are 1. knowledgeable 2. effective with Atlas and Axis adjustments other than 'qualified' chiropractors?
It seems that there are no others who are trained and competent at re-alignment.
If this area is not practiced it would therefore not be seen as a vital part of health care?
The CSF flows would be a case in point. If medical specialists are not fluent with the functionality of arteries, veins and CSF flows then alignment is not going to be of interest.
Which leads me to my frustration of being heard in my country!
May the sun shine on you system,
Nigel
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DrKoontzDC
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Post by DrKoontzDC »

I'm glad to hear that you have decided to stay Dr. Flanagan!

To Mazza - I've sent you a PM with information for an Upper Cervical Chiropractor near Sydney in Crows Nest that practices Atlas Orthogonal.

To Costumenastional - I'm always glad to hear about how much better you are doing. You and the others here who are giving your testimonials about how you have gotten help with Upper Cervical Chiropractic are giving hope to others with MS. Just think that if you had kept quiet about what you found out that the others in this thread who have gone for Upper Cervical Chiropractic Care wouldn't have received help. I look forward to speaking with you further during your next visit.

"it is better to light one candle than to curse the darkness"
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DrKoontzDC
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Post by DrKoontzDC »

NZer1 wrote:Welcome back Dr. :D
Question, are there any medical practitioners who are 1. knowledgeable 2. effective with Atlas and Axis adjustments other than 'qualified' chiropractors?
It seems that there are no others who are trained and competent at re-alignment.
Nigel
Nigel,
Medical doctors are not trained in the art of Chiropractic. Many, but not all, do not necessarily consider the alignment of the spine to be of any clinical importance other than the removal of simple neck & back pain and the occasional headache.

There have been medical doctors in the past that have taken weekend seminars on how to do Spinal Manipulations but it is just that, a manipulation. What they are capable of doing after their weekend seminars is nowhere near as specific as what a trained Chiropractor could do let alone an Upper Cervical Chiropractor. Also, in the States, if they do work on the spine they are only allowed to call it Spinal Manipulation and not an adjustment.
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uprightdoc
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Post by uprightdoc »

Hello all,
Kathryn your case is similar to Mazza's. I have contacted Dr. Woodfield to find a good upper cervical doctor in Sydney for Mazza. In the meantime I have recommended Mazza inquire about a doctor who uses a completely different method that employs a special spinal decompression table. In addition to treating malfunctioning segments of the spine, herniated discs, scoliosis and stenosis, decompression tables are also used to move CSF. It's hard to find chiropractors who are certified and have the right equipment. Good tables are expensive.

Thanks for the offer Poet. My idea is to have identify yourself as a member of TIMS website using your TIMS identity. I will then link your stories on my site to the TIMS site for those seeking additional information on MS.

Unfortunately, NZer upper cervical doctors are rare. Forget about medical doctors. Very few chiropractors use upper cervical. Aside from upper cervical, however, there are other methods I will be discussing but it is just as hard to find those types of doctors as finding and upper cervical one.
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costumenastional
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Post by costumenastional »

DrKoontzDC wrote:To Costumenastional - I'm always glad to hear about how much better you are doing. You and the others here who are giving your testimonials about how you have gotten help with Upper Cervical Chiropractic are giving hope to others with MS. Just think that if you had kept quiet about what you found out that the others in this thread who have gone for Upper Cervical Chiropractic Care wouldn't have received help. I look forward to speaking with you further during your next visit.

"it is better to light one candle than to curse the darkness"
I was certain that similar cases will arise and TiMS was the right place to spread the word.
Anyway, today I helped moving stuff from an office far away to the place I work. I feel like nothing has happened :) This is f@@@@ awesome!!!!!!!
A few months ago I wouldn't dare even to participate but today I did everything almost on my own. Like a normal person. If there wasn't for that Hoffman shit which made my left eye's vision even worse for some time it would be like a walk in the park.
A part of me is telling me not to share everything good cause there are so many people in here who don't feel well. On the other hand, I need them to know that maybe there is hope. Not only in chiropractic but in general. Who knows? The message is that neuros have most probably nothing to do with MS except from pushing drugs. I insist on that part.
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