Brooklyn-bound

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
User avatar
numbness23
Family Member
Posts: 41
Joined: Tue Feb 15, 2011 3:00 pm

Post by numbness23 »

not everyone jumps right back from a procedure like this. the anticipation and anxiety can be freightening and exhausting. The guy probably just hasnt got to his computer yet, nor is he ready. Relax.
User avatar
numbness23
Family Member
Posts: 41
Joined: Tue Feb 15, 2011 3:00 pm

Post by numbness23 »

GOD I HOPE HES OK!!!THE SUSPENSE IS KILLING ME!!!! WRITE US JOHNSON :lol: DAMN IT!!!
User avatar
zinamaria
Family Elder
Posts: 296
Joined: Fri Dec 04, 2009 3:00 pm

johnson

Post by zinamaria »

He'll get back to us.
1. He loves to write
2. He's a naure boy and so may have hightailed it out of NY
3. But on the other hand, he is a painter, so museums may be on his list.
4. He's an adventurer so who knows where he decided to travel to.

The possibilities are endless with Not Johnson, but I must say the suspense is rising in me too!
User avatar
bestadmom
Family Elder
Posts: 722
Joined: Mon May 18, 2009 2:00 pm
Location: CT
Contact:

Post by bestadmom »

I pm'd with Johnson on Monday because we were going to try to meet in NY. He was planning to be in Manhattan on Tuesday and I wasn't in until yesterday, when he was driving back to Ontario to fly back west.

I didn't want to answer about his where abouts and hoped he would, but I believe (and hope) he is fine.
User avatar
KikiT
Family Member
Posts: 56
Joined: Tue Oct 13, 2009 2:00 pm
Contact:

Post by KikiT »

Anyone Brooklyn bound June 6th????? I will be there at 11.
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Post by Cece »

Bestadmom, thanks for letting us know, that assuaged some worries at least!

Kikit, that's coming soon, best wishes with the procedure.

NotJohnson, we're keeping the home fires lit here in this thread, til you return! Healing and happiness....
User avatar
DrDiana
Family Elder
Posts: 176
Joined: Fri Dec 31, 2010 3:00 pm
Location: Texas
Contact:

Post by DrDiana »

Jee Whiz,

Most of you have "known" Not Johnson for a while, but even as a relative newbie here, I'm not even sleeping well, not knowing how he is doing.

Hopefully out partying...

Thinking great and healing thoughts for you, Not Johnson...

Dr. Diana
Dr. Diana

Special interest in "brain drains" and how they affect numerous conditions, including MS, Ehlers-Danlos, Parkinson's, Alzheimer's, etc. I am a therapeutic optometrist on professional disability with EDS, POTS, CCSVI, mast cell disea
User avatar
Johnson
Family Elder
Posts: 979
Joined: Tue Dec 01, 2009 3:00 pm
Location: Ucluluet, BC
Contact:

Post by Johnson »

Ahem... Actually, I don't need to clear my throat anymore, and I can swallow again,

Wow. It's heart-warming to read your queries and concerns. I just got home a few hours ago. Internet access has been a challenge (and my home computer seems to have packed it in whilst I was away).

Our dear and good Dr. Sclafani worked on me for three hours or more. A few fentanyl spritzers made it seem a dream, but I have certainly had improvements.

I'm pretty frazzled just now from arduous traveling, and will report in more detail anon. I think Dr. Sclafani found a few fascinating facets in his foray, and may well comment in his Q&A thread.

I'm going to bed...

I'll be back.
My name is not really Johnson. MSed up since 1993
User avatar
HappyPoet
Family Elder
Posts: 1414
Joined: Thu Jul 09, 2009 2:00 pm
Contact:

Post by HappyPoet »

So wonderful to hear from you!!

Can't wait to hear details about your improvements (swallowing, WOW!), but details about the fascinating facets found in forays by Dr. S can wait until after you've slept soundly for a long time.

Sweet dreams, Not Johnson :)
User avatar
munchkin
Family Elder
Posts: 312
Joined: Fri Apr 01, 2011 2:00 pm
Location: Canada
Contact:

Post by munchkin »

That's wonderful news, take a lot of rest time. That was a long journey that you took.
Please give us as many details as you can when you feel up to it.
User avatar
Kathryn333
Family Member
Posts: 45
Joined: Sun Jul 25, 2010 2:00 pm
Location: Toronto, Ontario
Contact:

Post by Kathryn333 »

Welcome home, Johnson. We were all so worried about you. I'm so glad to read about your improvements and look forward to more details when you're up to it. :D :D :D
User avatar
blossom
Family Elder
Posts: 1394
Joined: Thu Dec 03, 2009 3:00 pm
Location: south western pa.
Contact:

ccsvi

Post by blossom »

happy to hear you are doing ok and improvements. take care and get rested up.
User avatar
Blaze
Family Elder
Posts: 405
Joined: Sun Jun 27, 2010 2:00 pm

Post by Blaze »

Welcome Back Not Johnson!!! As you know by now, your absence and prolonged silence had us all worried.


Looking forward to hearing more from you. Cheers.
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Post by Cece »

My daughter's mini-laptop went dead in Brooklyn! We were at a nice hotel but it had a bad outlet and there was a little zap while using the laptop and it went dead.

Thankfully it was within warranty and was replaced. I managed to remain connected although there was a little more fussing over who got to use the remaining laptop. As for why we travelled with two laptops, that was entirely my techy husband's doing! I had argued against it.

Glad to hear from you Johnson! Future patients now know exactly how to prank us. :D
User avatar
DrDiana
Family Elder
Posts: 176
Joined: Fri Dec 31, 2010 3:00 pm
Location: Texas
Contact:

Post by DrDiana »

You made it back NotJohnson!

Sure, you go ahead and rest. The good thing is that we can ALL rest better now!
Looking forward to hearing about your adventure...
:D
Dr. Diana

Special interest in "brain drains" and how they affect numerous conditions, including MS, Ehlers-Danlos, Parkinson's, Alzheimer's, etc. I am a therapeutic optometrist on professional disability with EDS, POTS, CCSVI, mast cell disea
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”