My CtrlAltDel - Status

shucks · Post by **shucks** » Tue Jun 28, 2011 4:04 pm

so what will they send him home with for upkeep? Will they send him with drugs, prescriptions, or what? I would assume he would need antibiotics and anti virals for several months anyway.

Thanks for the info George.

georgegoss · Post by **georgegoss** » Tue Jun 28, 2011 6:18 pm

shucks wrote:so what will they send him home with for upkeep? Will they send him with drugs, prescriptions, or what? I would assume he would need antibiotics and anti virals for several months anyway.

Thanks for the info George.

Asher has already arranged with his primary care physician to take Bactrim (antibiotic) and Acyclovir (antiviral) prophylaxis for six months post-transplantation. Then at one year post-transplantation he will begin (three rounds) of re-vaccinations for childhood diseases.

bspotts1 · Post by **bspotts1** » Wed Jun 29, 2011 4:06 am

wow....truly amazing stuff...Asher, i am envious of both you and George...take good care of yourself....congratulations!

brad in sarasota

Asher · Post by **Asher** » Wed Jun 29, 2011 7:46 am

Even better news guys, going home tomorrow (Thursday). Interestingly, although I feel very weak and my MS inflicted leg is pretty much waisted after having spent a month in bed, the difficult to describe MS hug is gone.

It was by no means an easy experience, but I firmly believe that in order to achieve a breakthrough, one must to be willing to make a significant sacrifice.

Back home, my very supportive GP is already lined up to provide the after care i.e. 2 weekly blood and urine tests and the necessary medication to carry me over the next few months.

Will keep you updated, yours, Asher

scorpion · Post by **scorpion** » Wed Jun 29, 2011 9:51 am

Asher wrote:Even better news guys, going home tomorrow (Thursday). Interestingly, although I feel very weak and my MS inflicted leg is pretty much waisted after having spent a month in bed, the difficult to describe MS hug is gone.

It was by no means an easy experience, but I firmly believe that in order to achieve a breakthrough, one must to be willing to make a significant sacrifice.

Back home, my very supportive GP is already lined up to provide the after care i.e. 2 weekly blood and urine tests and the necessary medication to carry me over the next few months.

Will keep you updated, yours, Asher

Glad to hear you are doing well. Sending good thoughts your way.

1_sindy · Post by **1_sindy** » Thu Jun 30, 2011 9:02 am

Hello Asher
So happy to hear you are doing better and heading home , i am sure being at home will help you get stronger. Please let us know how things are going .
Hugs to you Asher and the family, wishing you well S and Mr G.

Asher · Post by **Asher** » Thu Jun 30, 2011 12:03 pm

Can hardly believe it, I'm actually back home. Tired, weak but ms hug free. Now the gradual process of rehabilitation.

shucks · Post by **shucks** » Thu Jun 30, 2011 12:08 pm

What kind of precautions did you have to take on the flight to avoid infection?

Asher · Post by **Asher** » Thu Jun 30, 2011 10:02 pm

Shucks, I'm Dutch and live some 330 miles from Heidelberg and was picked up by car. Used mask and kept sanitizing my hands after touching anything and avoided touching my face and physical contact with anyone. Just plain common sense. Same would hold for flying I guess.

shucks · Post by **shucks** » Fri Jul 01, 2011 6:52 pm

Great asher, thanks for the info. Please keep us posted along the way, as so many of us are thinking of haveing this done when we can. We wish you the swiftest recovery.

Asher · Post by **Asher** » Sat Jul 02, 2011 2:51 am

Thanks you Shucks, I will certainly try to follow George's example and ongoinly share and answer questions as I progress (excluding the scientific bit). This in the hope that it may contribute to people being able to make informed choices.

2nd day home. Coming from a low base, the rate of improvement is exponential. My taste buds which were switched off after the chemo are about 90% in tact again and with them comes a healthy appetite, which is a blessing as I am pretty skinny now. The MS hug seems all but gone, and strangely, while my liquid intake is about twice as much as it was before the HSCT, I experience much less urqgency. I am taking daily anti herpes and anti fungus meds as a preventive measure and will have blood and urine samples analyzed twice a week to detect any upcoming infection or deviations.

So far, so good, there is no place like home.

georgegoss · Post by **georgegoss** » Sat Jul 02, 2011 10:47 am

Just adding a little bit more to the latest on Asher following his release from the hospital at the bottom of this page. . . . .

http://themscure.blogspot.com/2011/06/p ... cohen.html

Asher · Post by **Asher** » Sun Jul 03, 2011 12:53 am

3rd day home. Doing better and better and people around me remarking I am looking a lot more like my old self. In need of a lot of rest but in the intervals between one nap and the other I feel awake like I haven't for years. I know it's early days, but there is a distinct new quality to my being which is hard to explain. A sharper awareness and perception.

shucks · Post by **shucks** » Sun Jul 03, 2011 5:57 am

I know exactly what you mean about a sharper awareness of life. In the last 8 or so months, I have noticed that dulled awareness thing slowly creeping up, and with the other symptoms, it is the one I wish would go away the most.

Please keep us posted buddy.