Hi all,
I have the option of trying this treatment but not sure if the risk/benefits are worth it. My fears are CJD and other unknowns being transmitted.
Has anyone had this treatment? Did it help at all? Any negative reactions?
Thanks
IVIg
Hi, I started IVIG therapy three months ago, and it's the first MS treatment that has had any positive effect on me whatsoever.
I'm PPMS (although the diagnosis is up in the air), diagnosed over eight years ago. Right side very weak and spastic, left side weakening.
After doing IVIG, I've noticed considerable increased strength in my stricken right side.
Although there is reason for concern about the transmittal of blood-borne illnesses, there are a variety of brands of IVIG, and each one is processed somewhat differently. Much of this processing is designed to minimize the danger of disease transmission.
I do get the odd side effect of 3-5 days of fever following my monthly infusions. Typically, patients might get fever or headache the night after an infusion, but it's fairly unusual to be socked with multiple days of it, as I am.
Still, fevers and all, so far it's been well worth it…
I'm PPMS (although the diagnosis is up in the air), diagnosed over eight years ago. Right side very weak and spastic, left side weakening.
After doing IVIG, I've noticed considerable increased strength in my stricken right side.
Although there is reason for concern about the transmittal of blood-borne illnesses, there are a variety of brands of IVIG, and each one is processed somewhat differently. Much of this processing is designed to minimize the danger of disease transmission.
I do get the odd side effect of 3-5 days of fever following my monthly infusions. Typically, patients might get fever or headache the night after an infusion, but it's fairly unusual to be socked with multiple days of it, as I am.
Still, fevers and all, so far it's been well worth it…