The FDA sent out a notice for prescribing Drs' to test patients after their treatments, as problems could arise years after treatment in July of 2008. Ongoing testing was never mentioned to me.
I am now showing signs of congestive heart disease & now going through the tests I should have been given years ago. I have also had to apply for Disability insurance due to fatigue and other isssues, not sure if they are a result of the signs I am having of CHD, but I will find out soon enough.
If you are considering Novantrone, make sure tests are given before and after.
By the way, Novantrone did not help me, but I tried.
I went through all of the required tests: echo, holter monitor, ecg, lung function test, blood work, abi and they all were unremarkable. Happy Happy!
I still have problems with circulation(cold feet, purple feet & legs), and I still find it hard to take a full breath, but I am happy to know that my heart is healthy. My gp told me that it is MS that is causing my problems. Interesting.
I was taken off of copaxone and amantadine and although they said amantadine was causing tachycardia, I still have it. Its only been less than 2 weeks since I've been off, but it should resolve itself.
I feel worse being off the meds, but I hate being on them as well. I'll keep with my stretching and exercising & I should feel like new.
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