CCSVI and CCVBP

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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dc10
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Re: CCSVI and CCVBP

Post by dc10 »

doctor, i have sent you a private message to prevent overloading this thread with my messages.
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uprightdoc
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Re: CCSVI and CCVBP

Post by uprightdoc »

Hi dc10,
I got your message and sent you a reply. You have an interesting case.
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civickiller
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Re: CCSVI and CCVBP

Post by civickiller »

hey Dr. F

they created a chiropractics forum on here, just started if youd please come by and check it out

thanks
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uprightdoc
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Re: CCSVI and CCVBP

Post by uprightdoc »

Hi Civic,
Thanks for the information. I would rather give the other TiMS members some space to discuss their topics. If you have any questions regarding chiropractic, however, please feel free to ask.
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fee001
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Re: CCSVI and CCVBP

Post by fee001 »

Uprightdoc,

Firstly good morning or evening!

My qustion of the day is, if a person experiences anxiety or stress that causes severe tension in the shoulder and neck area, can this then restrict flow in mobility.

Fiona
I do my own research, and find my own answers Its good to talk
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uprightdoc
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Re: CCSVI and CCVBP

Post by uprightdoc »

Hello fee,
Severe emotional and mental problems such as anxiety and stress can cause seizures.

Aside from that, typically, they don't cause "severe" tension in the shoulder and neck area. Typically they trigger underlying problems such as in "trigger points" seen in myofascial conditions. Trapezius neck and shoulder muscles spasms can affect mobility in the upper body.
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dc10
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Re: CCSVI and CCVBP

Post by dc10 »

uprightdoc wrote:Hi dc10,
.....You have an interesting case.
why exactly doctor?
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uprightdoc
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Re: CCSVI and CCVBP

Post by uprightdoc »

Hi dc10,

Your case is interesting because you are young (25) and have had SP MS for 8 years. You are a male and you have lesions in the brain and low back. Your signs and symptoms include: balance problems, leg weakness and foot drop, bladder urgency and frequency and loss of libido. You have been tested and treated for CCSVI 3 times and were found to have contriction in the internal jugulars and azygous veins

You recall no significant trauma except for some fender benders and you never broke any bones. You work at a desk in an office as a stock trader. You have been weight training for fitness for five years. You lift weight three times a week, which includes power lifts such 'Deadlifs' and 'Squats.' Power lifts use Valsalva maneuvers, which raise intracranial pressure and cause inversion flows in the vertebral venous plexus back into the brain.

I suspect you may have some type spinal problems such as a curvature problem (scoliosis or kyphosis), spondylosis (degeneration of the spine), spondylolisthesis (forward slippage of one of the lower segment of the spine), or a tethered cord. The combination of an genetic or acquired spinal problem with Valsalva maneuvers could compound an underlying problem.
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costumenastional
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Re: CCSVI and CCVBP

Post by costumenastional »

Thought I 'd put my 2 cents here. There is a slight chance our friend has had some kind of an accident which he doesn't remenber. He got sick very young thus he can't be sure if he has crashed his head or something while he was 5. I for one, didn't remember my motorbike crash, at least not until you made me think about it and I was about 25 when it happened. After all, I was diagnosed 8 years later when I had this nasty bout of optic neuritis. All in all, I would check my spinal cord if I was him. Like you once told me, there is nothing to loose but there might be a lot to gain...
As for body building...back then you told me that it was not likely to be the cause of my problems. Looking back, I am preptty sure that it can only benefit one if done correctly.

I am seeing Dr Koontz on the sixth. It has been 2 months without an adjustment and I must say that I am doing VERY GOOD. Hopefuly, there will be no need for an adjustment and I ll keep going until I hit the three month mark :)

Take care people.
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uprightdoc
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Re: CCSVI and CCVBP

Post by uprightdoc »

Hello CN,
Thanks for your two cents. I'll take it over the Euro any day. I am in contact with another young male in his early twenties who fractured his leg playing soccer when he was a teenager. The fracture was bad and required a plate and screws. He subsequently developed a permanent 3/4" short leg and a twist in his pelvis. He also has a spondylolisthesis of L5/S1, which is a forward slippage of the lowest lumbar vertebra in the low back on the sacrum of the pelvis below it. The twist in the pelvis caused deformation of his spine right up through the neck. He developed MS signs and symptoms by the age of twenty. He has been treated unsuccessfully for CCSVI using venoplasty of his IJs and azygous. He has also been treated unsuccessfully with Atlas Orthogonal for upper cervical correction. I suspect he has tethering of the cord causing a cerebellar tonsillar ectopia (CTE/Chiari 0) due mechanical drag from the spondylolisthesis, pelvic tilt and short leg. He had an upright MRI done will be sending his scans to Dr. Harshfied for review to see if he has CTE/Chiari O of 3-5mm descent of the cerebellum into the foramen magnum.
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blossom
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Re: CCSVI and CCVBP

Post by blossom »

hi dr. flanagan, i have some questions that are not the norm here but i wonder.

ok, i have always been told by dentist i have a small mouth. "hard for some i know here at home to believe".

also, i do get tmj and the nucca seems to help.

i have the over bite "upper teeth lap over bottom"

i notice things like for instance if i put my bottom teeth over laping top teeth i breath better or also moveing my jaws like chewing there is no feeling of pressure or cracking noise in the jaws. it just just feels better. it even seems to feel better in the neck area somewhat.

app. 12 yrs. ago i had crowns etc. put on the front and others and after that i noticed it more. when i eat my teeth do the job ok but say when i just hold my mouth as the teeth fit it just feels like there is too much pressure feeling in jaws and ears.

i have read of a dentist who makes some kind brace thingy and some with the symptoms they call ms after being treated improve.

with the body so connected in so many ways from your point of view would or could this have an adverse effect on the spine especially the cervicle? or anything else even maybe nerves or possibly blood flow?

hope you don't mind these questions and i'll bet there are others here that if they take notice might be in the same boat. ????

this is what you get for being so darn knowledgable--i feel if anyone can answer or explain these things it would be you.
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uprightdoc
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Re: CCSVI and CCVBP

Post by uprightdoc »

Hello Blossom,
The jaw joints called the temoporal mandibular joints (TMJ) and the muscles of mastication (chewing) are closely connected to the upper cervical spine. TMJ dentists use splints that are wedge-like devices to correct TMJ misalignments. Personally, I was disappointed with the results of dental splints for TMJ correction. I preferred and got better results using craniopathy and craniosacral correction on TMJ cases. While TMJ work may relieve some of your discomfort, it is far too limited in scope and approach for dealing with a case as complicated as yours.
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blossom
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Re: CCSVI and CCVBP

Post by blossom »

hi dr. flanagan, last i spoke with you, you were going away and said you would be in touch when you got back. i figured i'd wait awhile so you could get back on track and as busy as you are and all.

anyway, you know my situation and i am definitly worsening to a scarier point. in one of your post you were discussing my problems over all and you said something like--and then you have the cervicle bone spurs.

i have in yrs. past tried to get a neurosurgeon to remove them but they always said the spurs would give me none of these problems and it was the ms. "but i read the symptoms of the cervicle spurs and cases of stenosis" and i feel i fit that more. also the fact that when my symptoms first started i had the bone spurs showing on x-rays but no scoleosis and these other back problems were not as severe as now. but when i tilted my head a certain way i moved better. plus this touchy odd spot at the base of my skull which in bed i get this radiating pain starting there and radiates up bad enough to wake me. i position my head different or raise the upper hosp. bed slightly to get pressure off there and it lets up. this spot is under the base of my skull slightly to the right.

you have my mri with flexion dr. weimer ordered and the x-rays. dr. weimer and the nucca dr. both said there is a possibility the spurs could be giveing me grief. dr. weimer even pointed out the jagged edges pushing inward. this is something that unless they are removed we will never know. both dr.'s said that with th lazer surgery they would be more comfortable than the older ways. but there is always some risk. both said as bad as i'm getting if it were them they would probably try it.

i would very much appreciate your opinion on this whole thing. - do you think it may be worth a shot? do you think it's too risky? in no way would i blame you or anyone if it went wrong but to make such a decision i'd appreciate your sincere look at this and opinion. i still feel you are "the man" and i would bet on your opinion and knowledge of all this than any of the neurologist or neurosurgeons i've come across.

remember the lady i told you about that was told she had ms for 7 yrs. numerous mri's spinal taps etc. but when getting neck surgery because of a car accident and while in there the neurosurgeon also removed a bone spur and her symptoms went away.........i went to that neurosurgeon but he would not do me because i did not have a good enough reason that he could see. --but as i told him if the lady had not been in that car wreck and needed surgery for other reasons the spur would have still been there and she would have went on with the diag. of ms. i left in tears.

some dr.'s are thinking a little more out of the box maybe 20 yrs. later and the techniques have improved. i don't know if you read the thread i posted about the neurosurgeon at allegheny gen. hosp. in pitt. and the surgery helping parkinsons etc.

even when the neuro. early on was talking about the the only spot or lesion i have "the one on my cervicle" i said-before you tell me or show me let me put my finger back there and see if this spot is where i place my finger. it was.

the nucca dr. said one of his patients had spurs removed with lazer from the neck and was very happy with the results. i talked with her and she went to the bonati spine institute in florida after she researched. if you want to google them and give a thought. or if you have anywhere you could reccommed. if i go this route. "and if they will do it"

they have lazer in pittsburgh. and other places i know but it has to be the best of the best. -- then hope they will do it.

please, would you take another good look at the things i've sent you and give your thoughts.

if the bone spur thing pans out as well as i hope for under the circumstances i think it would be be a big plus for chiro.'s too for the fact that it was recognized as a possible problem and the neuro.'s always fluffed me off.

had i been able to find a neurosurgeon that was not brainwashed or at least considered the spur and spine possibility or a chiro. like you {which would be far and in be tween if any} that would have addressed this early on i feel strongly i would have been saved yrs. of grief.

i can't be the only one that has this complicated and overlooked problem that has symptoms they decided to call ms.
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civickiller
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Re: CCSVI and CCVBP

Post by civickiller »

Dr. F

is it possible to have your axis change position but it having no effect on your atlas tilt?

because i was getting a massage 4 weeks ago and i forgot to tell the girl to stay away from my neck so she massaged my neck before i could stop her. i wasnt feeling good so i went and got adjusted by leg length. i have been feeling like crap ever since. 2 weeks later i went in for an adjustment and the Dr said my legs were even length. so a week later, still feeling bad, i want to get adjusted again but was wondering if i should ask him to rexray me thinking my atlas is good but axis moved.
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Re: CCSVI and CCVBP

Post by NZer1 »

Hi everyone, Civic I am in a similar boat as you.
I have been able to maintain my Atlas adjustment after the second treatment over a three week gap between first and second treatment. I have had a total of six treatments, which are NSA (Network Spinal Analysis) treatments. As well I had an NET (Neuro Emotional Technique) treatment after the 5th treatment. We experimented with muscle testing whether I had neurological or vascular problems and came up with vascular! Checked whether associated within C1 or C2 and came up with C2. I am suspicious that my mind got in the way for the last result and it was not well thought out by either of us, so we stopped that adventure!
To be honest I have had no improvement with my general 'MS' symptoms, I have had changes in my mobility of my neck and less pain throughout my back. So I will talk with Graham about where we are going with all this as it is a long weekly journey, staying with family over a weekend to achieve two adjustments per trip, and the cost with fuel and all.
I am aware it is going to take time to improve my neck and achieve a curve, and to work on the rest of my disc de-generation problems as well as having a disc bulge and cord lesions.
Any thoughts Dr ? Tips? Hints? Insight from experience? Should we have another xray to verify that we now have atlas correction? Is leg length a trustworthy method for checking atlas alignment when I have measurable difference in each leg length?

Regards all, be well,
Nigel
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