life, death, and venoplasty

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
Post Reply
User avatar
1eye
Family Elder
Posts: 3780
Joined: Wed Mar 17, 2010 3:00 pm
Location: Kanata, Ontario, Canada
Contact:

life, death, and venoplasty

Post by 1eye »

If this procedure is prolonging life for MS patients, won't the statistics on mortality eventually reflect that, after enough procedures?

How about cardiac angioplasty for heart disease?
This unit of entertainment not brought to you by FREMULON.
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
Cece
Family Elder
Posts: 9335
Joined: Mon Jan 04, 2010 3:00 pm
Contact:

Re: life, death, and venoplasty

Post by Cece »

I don't think we yet know if the procedure will prolong lifespan or not for pwMS. One thing that comes to mind is if there is symptomatic improvement in swallowing/not choking.
Last edited by Cece on Tue Sep 27, 2011 2:04 pm, edited 1 time in total.
User avatar
1eye
Family Elder
Posts: 3780
Joined: Wed Mar 17, 2010 3:00 pm
Location: Kanata, Ontario, Canada
Contact:

Re: life, death, and venoplasty

Post by 1eye »

I have had symptomatic improvements in lots of things. Dizziness also comes to mind, and cognition, if you don't want to admit the progression will kill you in lots of other ways. I firmly believe it prolongs life, and that insurance companies need only analyze the mortality stats after a couple of years of large numbers of procedures. The suicide rate may even go down!

I've been labelled as Secondary Progressive by the liars that hold the keys to insurance claims on DMDs. So if CCSVI is a hoax, how come I don't have trouble swallowing anymore? This is recent, more than a year after venoplasty. Selective remission? Maybe we need a few dozen more "phenotypes". :lol:
This unit of entertainment not brought to you by FREMULON.
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
User avatar
blossom
Family Elder
Posts: 1394
Joined: Thu Dec 03, 2009 3:00 pm
Location: south western pa.
Contact:

Re: life, death, and venoplasty

Post by blossom »

we can be alive but not living. swallowing would for sure be a big plus to live life and want to continue on.
User avatar
CureIous
Family Elder
Posts: 1262
Joined: Tue Jul 14, 2009 2:00 pm
Location: Riverside, CA
Contact:

Re: life, death, and venoplasty

Post by CureIous »

1eye wrote:
I've been labelled as Secondary Progressive by the liars that hold the keys to insurance claims on DMDs. So if CCSVI is a hoax, how come I don't have trouble swallowing anymore? This is recent, more than a year after venoplasty. Selective remission? Maybe we need a few dozen more "phenotypes". :lol:
Thanks for the late night giggles....
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
Post Reply

Return to “Chronic Cerebrospinal Venous Insufficiency (CCSVI)”