Undiagnosed but wanting info

[kally]

Does a lesion in the spinal cord necessarily mean MS.
I am still undiagnosed. I have tests and MRI but my neurologist never actually said I had MS.
He is, though, sending me to MS clinic for more work.
I don't really know what this all means.

I have started the SWANK diet, because, well, why not.
I will start vitamins and supplements when I figure out what I am supposed to take.

Can it still be something else? What do you think?

[DougL]

hi Kally, welcome to TIMS.

I will start vitamins and supplements when I figure out what I am supposed to take.

since you are here at TIMS, there is a whole section to learn about vitamins etc.

[icecube2]

Kally

In my opinion, Yes it could be something else, I'm not a medic or anything, but I am looking at it at a very different angle. look into ucc a problem with your cervical spine (neck)

If you have a question to ask, ask Uprightdoc on ccsvi board under ccsvi/ccsvb

alternatively take a look at Chiropractic board, in the treatment section. if you have sustained a recent injury to your head or neck, then its well worth looking into.

[jimmylegs]

hi kally i suspect the motivation for referral to ms clinic is to help decide among possible reasons for a spinal cord lesion. one answer is ms but there are others. the location(s) of your lesion(s) may help clarify.

for example my own lesions were thoracic and cervical (aka classic b12 deficiency lesions - as a long term vegan with a history of associated b12 deficiency this finding made a lot of sense.

when i had my first serious attack there was a computer glitch at my doc's office which meant the neuros failed to spot my poor b12 history as part of the diagnostic picture (also i had other signs which the docs did not believe were consistent with b12 issues - they were correct as it turns out, i had a whole array of issues and b12 was only one of them).

there may be important clues to the origins of your particular lesion based on its location and your bigger overall health picture.

as for figuring out nutrients and supplements - is bloodwork a possibility in your case? there are a few 'usual suspect' nutrients out there that tend to be not great in not only ms patients, but in a lot of people, with different sets of health impacts depending on heredity and lifestyle. testing can help you figure out where your particular gaps and opportunities might lie.

glad you're here and taking positive action on your own behalf - it's important

if you're interested re nutrition, you can find some more detailed info by following my signature links, below.

[kally]

Thanks for the help. I have the lesion and I have l'hermittes (although it has disappeared today). It wouldn't hurt to be on the Swank diet anyhow.

I can go back to the doctor and check for bloodwork. I am looking for B12 and D levels, is that right? Thanks for the help

[jimmylegs]

hey no probs.

i suppose you've read about lhermitte's on wikipedia to see all the possible origins? does b12 look plausible in your case?

as for testing, vitamin D3, specifically 25(OH)D3 is good, as is b12, and you might want to consider serum magnesium and zinc also, since they're often suboptimal in ms.

the results will likely all come back 'normal' but the normal range includes a lot of sick people. research appears to indicate sweet spots within 'normal' ranges, where the most healthy people can be found.

hth!