Pictures

[robbie]

Hi Melody I do feel empowered now just accepting that I have no control over this and whatever condition or situation I end up in is ok. I have gone from a very outgoing social person to being someone who just wants to hide from the healthy world. I am no longer comfortable in fact scared of being out in the real world. I am getting happier with my situation the more I accept what my future holds. When I am at home I feel a little bit of control, the TV is as close as I want to get to the real thing. The way the world is acting right now is actually quite entertaining so it helps me to laugh. My neurologist has told me that it doesn’t matter what I do at this point and I choose to believe her and just exist. I have tried many things to get myself better but this is where I am now so it’s all good, any way if research is like a lottery our numbers are due to come up soon, that’s not bad thinking for a hopeless guy..

[Melody]

We are just north of Toronto on Lake Simcoe so you are not far.Was looking through your previous post I'm not physic. We actually started with O'Connor but he was rather blunt and devoid of any hope for John as he said he was PPMS so we didn't go back to him. He did offer us a stab at the retuximab trial but placebo possibilities were not something we were willing to roll the dice on. Will maybe live to regret that but for now that is the future and it is not written as of yet. He also told John to get on vitamin d3 at 2000iu-4000iu per day.We ended up at Sunnybrooke with Dr. Liesly Lee. He believes not so much in the MRI or lesion lode but rather listening to your own body. Kathleen Carr the MS nurse is super to ask questions of and is always available to talk. Maybe you should try someone new. Do you have any support at home????

By the way John still enjoys a beer or half a dozen as excess yeast and grains are not problems for him. Some good ole corn whisky might take him down though he is corn intolerant so moonshine's out.

[robbie]

Hi Melody and John We live on lake scugog not far from u at all, beer is a good thing not only does it taste good but it makes u feel good too. I am at the point where things that make you feel good are tops in my book. I am not going to try any trials at this point just not sure enough or brave enough. My doc is at the Markham/Stouffville hospital, she is good, my second neuro. Soon time for the water to freeze and settle in for another winter

[Melody]

Dr. Caroline Geenen is this your neuro? She is speaking at the DATE: Saturday, November 4th

TIME: 1:00 pm – 4:00 pm (Refreshments will be served)



LOCATION: Glenway Country Club

470 Crossland Gate, Newmarket, Ontario

This venue is wheelchair accessible.

We might be going if the grandson hasn't got out weekend planned as usual as he lives with us.

[robbie]

Yes shes the one, what will this talk be about? let me know if you go.

[robbie]

How is this even a question, stem cells can help us and millions of others..
What will it take...

Funny how these issues always seem to hit the American media just in time for an election (if you missed it our U.S neighbours are in the midst of a senatorial election). Just wait. Now it’s stem cell research. Next, Fox news, CNN and some questionable “celebrities” will be telling us how gay marriage is wrong just in time to overshadow the Iraq war and a failing economy when voters hit the polls.

[Melody]

Will let you know if we make it.


The Multiple Sclerosis Society of Canada, York North Chapter will be hosting our 2nd educational event at Glenway Country Club on November 4th, Saturday, from 1 to 4 pm.



featuring



Dr. Caroline Geenen

Medical Update



Dr. Geenen is a neurologist at Markham-Stouffville Hospital who will speak about current MS research and recent developments in diagnosis and treatment.



And



Jacquie Hermans

The Power of Humour



Jacquie has personally experienced the healing benefits of improv and is now driven to help others to experience the life changing benefits of humour. Jacquie will act as our emcee for the afternoon and speak to the importance of humour as a way to cope with MS, the overall benefits to your health and well-being, and its ability to help conquer the individual obstacles we face.



This event is sponsored by an anonymous local donor.

Please join us.



DATE: Saturday, November 4th

TIME: 1:00 pm – 4:00 pm (Refreshments will be served)



LOCATION: Glenway Country Club

470 Crossland Gate, Newmarket, Ontario

This venue is wheelchair accessible.



Cost: Free Registration required as seating is limited.



TO REGISTER

call - (905) 830-4950

e-mail - info.yorknorth@mssociety.ca





This event promises to be informative and fun.

[jimmylegs]

fair enough robbie!

[jimmylegs]

hey melody is kathleen carr kind of on the short side with brown hair and brown eyes? hair probably short - i haven't seen her in years, but it always was short?

[Melody]

She is about 5'6" and has blonde hair now Great Lady so helpful

[robbie]

Hey Jimmy what u do is great, get your body the way it should be, how old are you? when i think back i abused my life when i was younger and maybe that opens the door a little for ms. I blame it on my friends!!

[jimmylegs]

hmm i did look up a photo of kathleen and it could be, but i don't think it is who i thought it might be. i guess there's more than one nurse in southern ontario named carr lol!

[jimmylegs]

heya robbie, ya i am convinced i've done this to myself to at least some extent, too. can't do much about genetics, but i can do something about being in a situation where the more stupid of my genes are sticking out.

i am 35. i spent my first 20 years being pretty healthy, the next 10 being naive about nutrition and basically starving and draining myself, and the last 5 knowing full well i was losing sensation from bad nutrition and never realizing it could suddenly get so much worse. completely stupid. this kick in the pants has really woken me up and i'm glad, it's made me aware of how many deficiencies i had, and i hope it's in time to correct some damage, or at least stop things getting worse.

[Melody]

I don't think Johns was all bad choices. Yes we partied we still do we just take longer breaks in between, We were both health conscious though. John was a martial arts instructor right up to 1999 he rode it out for a bit after optic neuritis then we started to get nervous incase more myelin was damaged so we stopped. As to food choices we have always been into good nutrition just more diligent now. Ok so we didn't realize intolerant foods would actually bite ya in the ass in the end and yes beer was given it's own food group but hey ya gotta have some fun. As to smoking I was the one who smoked cigs John was occasional on joints. Well not really occasional but it looks sort of damaging to admit to that faux paux. We both gave up smoking when he had that supposed heart attack. So all in all I think we rode the fence healthy to the extreme in some areas with the usual gray areas. It's about the same when you do your takes.

[jimmylegs]

ya, i cut out one food after another in the name of health and this that & the other, and so on and just never did the supplementing to make up for cutting them out. i was down to grains legumes and vegetables. this is embarrassing to admit but i even cut back on dishes with cooked tomato because i heard they could elevate your uric acid, which i thought was a bad thing coz of gout! all this nonsense, exacerbated by partying. lots of catching up to do to correct that.