Now for the record, I love my neuro, I wouldn't change him for anything. Before anyone feels the need to send this to him... Screw you guys whoever did it. I can point out numerous posts where people have exercised their right to express frustration with their doctors, none of whom were tattled on.
That being said I now deal with my issues via a therapist, my neurologist support team, and my general doctor. I don't come on here anymore except to read. I really have no idea who I'm talking too. This is my first post in - who knows?
Again, this is not a complaint against my doctor, who is letting me do an expiramental treatment and it's working, this is a complaint against those who need to clean off the startchy, crusty dried booger sleeves from wiping their noses. Do not take out your issues on others because you have nothing better to do.
Again, just to make this really clear, I AM PERFECTLY HAPPY WITH THE 2 NEUROLOGICAL PEOPLE I SEE.
NOW, on the flip side.....
I'm expecting my first baby in April. Are there any men with MS at this forum who have experience with small children and could share any tricks of the trade? I am going to be a stay at home dad
Again folks, because someone is pissed and uses the forum as a way to express frustration, you don't need to turn them in to their doctors. Twits.
How is your ms these days? Is the experimental treatment you are mentioned at tims? I am always interested in what's working or not for people
I am unaware of the situation with the TIMS posting and an e-mail to your neurologist that you described, but I am sorry it happened and drove you away. Please know that some of us are very glad to have you post here; at the very least, please continue to read here.
For darn near 2 years I guess I have been on 3gr of Roids every 8 weeks. I'm thrilled. Except for HiCy it's the only thing that has somewhat worked. I have 0 issues.
I also use amphetamines, 20mg tabs, for fatigue when I have it. I don't use it like that though. I found a tolerance will build so I start with 1/4 tab at like, mmmm, 10 a.m. And that will get me through the day. After a couple of days it'll take a half pill, then 3/4, and 1. The rx is for two pills a day but I only have fatigue between 11 and 6. I'm also lucky since the chemo my fatigue is only a few days a month. My rx from December of 2011,for one month, was finished in December of 2012. Being awake, and falling asleep at night is nice.
Otherwise, I am doing great... Holy crap I'm going to be a Dad! Lolol!
What is new?
Congratulations!chrishasms wrote:I'm expecting my first baby in April. Are there any men with MS at this forum who have experience with small children and could share any tricks of the trade? I am going to be a stay at home dad
It's amphetamine salts. I've also been on the adderal. I am a method addict from 99,so I am uber uber careful. The wife will tell me I'm getting pissy and then I quit, regardless of fatigue. Luckily enough I only get a couple of days a week of tiredness so it's not an issue.
Funny thing is, I am not ADHD but I sure do have a better train of thought on these things lol.
Seriously? Who does that?!chrishasms wrote:I no longer post here anymore but I still read the posts. After my post expressing frustration about my neurologist staff and the disease itself, it was a printed topic in my appointment emailed to him I decided this forum was no longer a place someone can express true frustration unless it's about how whoever can't get into surgery to get veins opened up.
Congrats on the baby. What was tough for me was coping with the usual fatigue of having a newborn who is not sleeping the night, added to the MS fatigue. No advice really other than to go to sleep right away when the baby goes to sleep, and to avoid stimulants if they at all interfere with falling asleep.
I've already started screwing up my sleep schedule on purpose. The wife is peeing all the time so I have her bug me awake lol. I am also taking 20 minute naps in the day. Timed lol. I have been told my efforts and planning are commendable and chivalrous. They are however completely worthless because whatever I plan for James will decide to do the exact opposite lolol. I say bring it on son! I am probably owed by what I did to my dad!
Now for the important stuff. Get all the sleep you can now! You will not sleep for two years. You will be delirious from exhaustion. Now who's being a Debbie downer? Lol. When you change your son's diaper, cover the sprinkler or you will need to change your clothes a lot. Avoid impaling his belly on your shoulder when you burp him...or you will need to change your clothes a lot (my dh never mastered this skill). Hylands teething tablets are the bomb. When he gets super drooly and ornery, give him a couple. There are also hylands gas drops for those tummy ache crying jags...a lifesaver along with smooshing their bellies into yours and pumping their legs into their bellies while you sing a dumb song and make stupid faces. You should be practicing those now. Do not buy all of the plastic baby toys they sell. We did. He played with like one...once. Take the binks away at 10 mos and swap the bottles for sippies at 11 mos. Its much easier to do this when they are very young.
Take lots of pictures and videos because he will turn into an unrecognizable alien life form at the age of twelve. You will miss the baby the alien ate.
Congrats and enjoy the wild ride!
Thanks for the advice. I've been told about the tubing and making sure to cover it lol.
This is a bit different than before. None of my posts have been deleted -yet- or a certain member yelling at me for everything I write.
My second baby was the complete opposite.
If you want to help with your sleep after the baby is born, start bringing your wife ice cream and take-out asap. Nine pound newborns seem to sleep better than five pound newborns.
As for certain members, I think he was banned.
Our child has club feet. My wife had it, my wife's cousins have had it, and I had a twisted foot. This probably means the kid won't be running at 9 months like me. As long as he isn't loco en la cabesa I think I'll be ok. Oh, and I pray this child sleeps lol.