Disgusted and cold... And maybe upset

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mpalla
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Disgusted and cold... And maybe upset

Post by mpalla »

I feed the birds, squirrels every am. This am I awoke with dbl vision in my left eye. I was off balance but I could see the squirrels waiting. I slipped on the ice and landed in a snow drift. Feet were in front as I was sitting down. My hands would slide in my coat but my legs....couldn't get them to move. No cell in an effing snow drift new at this ms thing. My bottom snowy probably 3 minutes (seemed like forever) all I could do is stare at my shoes. I finally crawled on my knees to the door then stood up. I ran in the house because I felt I was going to throw up. Yep. I popped a ton of steroids I had 60mg and then another dose tonite. Do you think 1..this is ms 2. Leading up to falling dizzy dbl vision was my warning. 3. Could I have the flu because I threw up or did I read somewhere new lesion?! And 4. Should I have gone to er instead of informing my neuro Monday?!? I have enough steroids to last yrs but this is my first upsetting scary episode. I came in and cried. My son yelled at me to latest and it would be okay. I am truly upset, disillusioned and took a hard reality check I'm afraid. Let me know what you think. Tkx, m
Diagnosed 2-13-13. RRMS.
want2bike
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Re: Disgusted and cold... And maybe upset

Post by want2bike »

Can't see any reason to see the neuro since he has already given you the drugs. I can relate to the double vision and dizziness since they were the symptoms I had the last time I went to the emergency room. They suspected I was having a stroke but couldn't find any evidence of it in the test they ran. One doctor said I showed signs of MS in my lower body. Upon investigating what I was going through I found my problem was my teeth. I had too many root canals and mercury fillings in my mouth. I started a detoxification program by Dr. Tom McGuire and all my symptoms went away. It is a procedure of taking vitamins and minerals which allow your body to detoxify. You might want to give it a try. Dr. Bergman explains his method of detoxifying the body using the vitamins and minerals from the fruits and vegetables.

All these diseases are caused by a build up of toxins in the body which effect our nervous system. If you want to get better you have to get these toxins out of the body. Drugs are only temporary and are toxic. You are the only one who can solve your health problems. You start putting the right things in your body you can get better. All my symptoms of MS have gone away. I use to go to the emergency room about every three months. I haven't gone in the last 7 years. Your health is the result of the decisions you make everyday.

http://dentalwellness4u.com/products/books.html

http://orbisvitae.com/ubbthreads/ubbthr ... q8AT8KA3IU



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jimmylegs
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Re: Disgusted and cold... And maybe upset

Post by jimmylegs »

sorry to hear, mpalla :S not sure if it is directly related, but at the end of august when we were chatting about bloodwork you had uric acid results on the low side of normal - exactly consistent with an ms patient - and older zinc results (may I think it was?) that needed to go from 980 to 1200 (using your units that is - more often I would be saying go from 98 to 120). wondering if you have had any luck addressing that side of things? could be linked to a lot of different issues, since zinc is fundamental to hundreds of enzymes required for healthy functioning.
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mpalla
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Re: Disgusted and cold... And maybe upset

Post by mpalla »

Thanks JL...once again onto a new neuro. The ones I've found insensitive pricks...all about the cash. I found a new one he is nice. Suggested Tysabri...still on the fence. All that crap scares me. Drs have me scared not too. I'll boost my zinc from 1 50mg to two. Have done no meds just vitamins and minerals too. Taking steroids seem to be helping...only doctoring I do that helps in an emergency short of a bottle of wine and the lotto. Frustrated...and most of all scared. Scared of the medical professions fix for sure...have to get my diet in line. I have been terrible! Could be some of it too. (JL u don't even want to know the diet..well lack there of)
I was always a fat girl trapped in a skinny girls body. Now I'm fat and love junk food. Lol. Let me know if you think of anything else.

Want2bike
As far as fillings a few...crowns a crap ton. I don't have the cash to go that route...probably thousands to remove and thousands to replace. Replace with what?!? that intrigued me. What do they put instead of a crown?
Diagnosed 2-13-13. RRMS.
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jimmylegs
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Re: Disgusted and cold... And maybe upset

Post by jimmylegs »

oh dear :S glad you found a nice one now!
careful with the zinc - can be tough on the tummy to take 100mg all at the same time. just space them out over the course of the day.

now diet. if you can gather any energy for some dietary upgrades, that part is definitely fundamental.. :S
when you say love the junk food, would you describe it as craving? if so, that could be telling re nutrient status too.
gluten, sugar, alcohol, these all spell trouble - especially when your nutrient status is down in the first place.

as for action on the diet front.. can you give me an update on your daily meds and supplement regimen? including supplement forms, doses, and timing?
and, any chance of a 3 day food/fluids diary as part of that? via pm if not comfortable with it out here?

if we can see the whole picture, we could figure out the easiest things to start changing, that could have the biggest impact nutrition wise. you could start with small, incremental changes rather than a huge shift all at once. baby steps :)
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lyndacarol
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Re: Disgusted and cold... And maybe upset

Post by lyndacarol »

mpalla wrote:I feed the birds, squirrels every am. This am I awoke with dbl vision in my left eye. I was off balance but I could see the squirrels waiting. I slipped on the ice and landed in a snow drift. Feet were in front as I was sitting down. My hands would slide in my coat but my legs....couldn't get them to move. No cell in an effing snow drift new at this ms thing. My bottom snowy probably 3 minutes (seemed like forever) all I could do is stare at my shoes. I finally crawled on my knees to the door then stood up. I ran in the house because I felt I was going to throw up. Yep. I popped a ton of steroids I had 60mg and then another dose tonite. Do you think 1..this is ms 2. Leading up to falling dizzy dbl vision was my warning. 3. Could I have the flu because I threw up or did I read somewhere new lesion?! And 4. Should I have gone to er instead of informing my neuro Monday?!? I have enough steroids to last yrs but this is my first upsetting scary episode. I came in and cried. My son yelled at me to latest and it would be okay. I am truly upset, disillusioned and took a hard reality check I'm afraid. Let me know what you think. Tkx, m
To your question #1… This could be MS, since MS shares many symptoms with many other conditions, it could be many other things as well. #2 & 3 See your doctor for her opinion. Or your neuro (if you are still taking Tecfidera, it can have effects on the stomach).

Since you asked for our thoughts, here are mine: If you have a flu virus, steroids will not help. You seem to have taken a lot of steroids this year – steroid drugs (corticosteroids) are VERY strong and have their own side effects. For instance, long term or high-dose steroid usage is linked to diabetes – ask your doctors to watch for this by ordering a blood sugar/glucose test and also a separate "fasting blood insulin test" (the second test can indicate insulin resistance, which (if in your muscles) could be the reason you couldn't get your legs to move). Insulin is also necessary for fat storage; if you have a weight problem, it can also indicate that your insulin level is elevated. I believe that excess insulin can also contribute to hair loss (your experience this summer?).

MS is considered an autoimmune disease. Often a person diagnosed with one autoimmune disease is later diagnosed with a second or even third. The American Autoimmune Related Diseases Association (http://www.aarda.org) states that Hashimoto's thyroiditis (I believe you have had this diagnosis as well?) is also considered an autoimmune disease. Chronic fatigue syndrome is also on the list of autoimmune diseases.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: http://www.thisisms.com/forum/general-discussion-f1/topic1878.html "Insulin – Could This Be the Key?"
want2bike
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Re: Disgusted and cold... And maybe upset

Post by want2bike »

For sure having dental work done is expensive. If you can't afford it you can still use a detoxification program to remove the toxins. That is what I did and had good results. After I got better I realized it was my teeth that had made me sick. I had the dead teeth removed and they have a special resin they can use for the ones I kept. I understand many of the crowns and bridge work is coming from China now. If you would decide on doing dental work it would be best to see a mercury free dentist since he understands the problem with the toxic materials in the mouth and how to best deal with them. The point I was trying to make is you can get better if you try Dr. Bergman's recommendation. Changing your diet is worth a try and may be the answer. Giving your body a large amount of vitamins and minerals will allow it to deal with the toxins. You must allow the body to repair itself if you want to get better. Diet change is not that expensive.

http://www.rawfoodexplained.com/symptom ... ir-causes/
ataboy
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Re: Disgusted and cold... And maybe upset

Post by ataboy »

Hi, I have some questions pertaining to the cold and flare ups. I am truly sorry for not being able to help with your questions, but I have been having similar issues. Just two weeks ago I was diagnosed with MS, I'm 34, and I'm a tradesman (work outside). The cold has never bothered me until this week,I have been getting extremely cold, shivering down to the bone, and to top it all off, my vision is greatly reduced (couldn't read the screen on my phone right in front of my face, let alone drive myself home). It takes a while (hours) for me to warm up and then my vision improves. Basically, is there any medication/supplements, anything, that help prevent the cold sparking a flareup. What about for the heat? At the moment, I'm just scared and trying to ensure I can still provide for my family. Any help would be much appreciated.

Thanks in advance
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mpalla
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Re: Disgusted and cold... And maybe upset

Post by mpalla »

Funny...I live in Michigan and it's cold here. I have read lots of posts where ppl have flares with cold. This is my first true winter I go out since I was diagnosed in Feb 2013. I noticed my vision is bad and I'm cold to the bone...heat bill reflects my desire to be warm. My vision is strange too.
I called my neuro and he said possibly ms attack...since I'm better I've cut the steroids. I wear 2 socks when I go out and make sure I'm dressed really warmer noticeably from last year. I havent found anything that helps with that...maybe Jimmylegs knows of something. Summer humidity kills me too....as I said my first rodeo with this monster so I don't have answers. Jimmylegs in my opinion is the nutrition master. Yes..I need a glucose test and I go to the doctor 23rd....JL any other ideas?? I am on my private disability policy thank god...awaiting social security so I don't work...couldn't at this point the fatigue kills me!! I wish you well....as I said maybe jimmylegs knows of something. Good luck. Check out alll the info here. It's amazing!! Good luck!
Diagnosed 2-13-13. RRMS.
ataboy
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Re: Disgusted and cold... And maybe upset

Post by ataboy »

Michigan isn't too far from Illinois, granted you guys get colder weather. I've been wearing two socks, thermals, two tee shirts, quilted sweatshirts, carhart jacket, and of course a winter hat. I haven't been working outside this week, this has all come from just getting from my house to my work van to a building. I use to be the guy that was never cold.
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mpalla
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Jimmy legs any ideas?

Post by mpalla »

Ataboy search out jimmylegs. She is a nutrition master. She may be able to help us for the cold thing. Or...maybe it's the new norm. And JL..I will do a food journal for you. I have been sick..cold, headaches and getting ready for Christmas. Have a good day. Stay warm!
Diagnosed 2-13-13. RRMS.
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jimmylegs
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Re: Disgusted and cold... And maybe upset

Post by jimmylegs »

hi thanks mpalla I will look for it - we'll see what we can do to get you feeling better!

ataboy, I replied to your pm :)
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centenarian100
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Re: Disgusted and cold... And maybe upset

Post by centenarian100 »

want2bike wrote:Can't see any reason to see the neuro since he has already given you the drugs. I can relate to the double vision and dizziness since they were the symptoms I had the last time I went to the emergency room. They suspected I was having a stroke but couldn't find any evidence of it in the test they ran. One doctor said I showed signs of MS in my lower body. Upon investigating what I was going through I found my problem was my teeth. I had too many root canals and mercury fillings in my mouth. I started a detoxification program by Dr. Tom McGuire and all my symptoms went away. It is a procedure of taking vitamins and minerals which allow your body to detoxify. You might want to give it a try. Dr. Bergman explains his method of detoxifying the body using the vitamins and minerals from the fruits and vegetables.

All these diseases are caused by a build up of toxins in the body which effect our nervous system. If you want to get better you have to get these toxins out of the body. Drugs are only temporary and are toxic. You are the only one who can solve your health problems. You start putting the right things in your body you can get better. All my symptoms of MS have gone away. I use to go to the emergency room about every three months. I haven't gone in the last 7 years. Your health is the result of the decisions you make everyday.

http://dentalwellness4u.com/products/books.html

http://orbisvitae.com/ubbthreads/ubbthr ... q8AT8KA3IU



Do you have a financial conflict of intesrest? Every post you make seems to include links to potential products/services.
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amberfer
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Re: Disgusted and cold... And maybe upset

Post by amberfer »

centenarian100 wrote:
Do you have a financial conflict of intesrest? Every post you make seems to include links to potential products/services.
THANK YOU.
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