New here

[momofsix]

I am new here. Thank you for having me. I am 45 and a mom of six children ages 16, 12, 11, 8, 7 and 4. I have been married now 19 years. I have had "suspected MS" for about five years. Had an MRI in 2010 with nothing really unusual. This one I had today showed a bunch of white spots. I attached the photo. Hope it's not too big. Does anyone have any opinions. I know it's not medical opinions, but I am hoping for some insight before my consult.

Thanks again for having me.

K

[lyndacarol]

Welcome to ThisIsMS, momofsix. We are glad you found us.

We are a group of many individuals. I have no opinion on the MRI picture, but I'm sure that someone else will be able to offer ideas.

[KMB]

hello and welcome,

It's my own opinion and experience here so it's not medical advice but,
demylenating lesions on MRI are not enough to make diagnosis, your nuero has to correlate your clinical picture and also rule out mimickers
I would advise professional advise if you still have not seen someone specialized.

I wish all the very best

[want2bike]

If you are having symptoms of MS you can get rid of them. Let Dr. Bergman explain his program for treating all autoimmune problems.

[momofsix]

KMB, My clinical picture correlates, hence the "probable MS" diagnosis for the past five years or so, it's just that my MRIs have been clear of lesions so they haven't given me a definite diagnosis. I just really wanted to know if what I was seeing were actual lesions since all of you are more experienced at looking at lesions than I am.

I haven't had the lumbar tap yet - but I think she'll probably have me go after this MRI.

[jimmylegs]

hi mo6 welcome to the forum.

my focus is the nutrition side of chronic disease.. your docs may test for serum b12 and serum d3. if they do, it would be wise to request your own copy of results. and if you can, it would hurt to get a sense of your serum zinc and serum magnesium levels at the same time. with six little ones to your credit, seems pretty logical that you might have some of the nutrient depletion/imbalance issues you'd expect to find in a typical ms patient.

[momofsix]

I know my B12 consistently comes back very high and no one knows why. I've had the whole workup done over the last five years. Because I am in the medical field I get copied on everything. I usually see my results before the docs. What is frustrating I think, especially in the MS world is that is takes so long for the final dx. NOT that we want the diagnosis - I guess it is just closure of sorts on our part that what we have been going through all these years have a reason behind it. I am not sure that makes sense.

[jimmylegs]

that is quite different re the b12 - they've gone through all these possibilities?:
http://www.ncbi.nlm.nih.gov/pubmed/14636871

found this, related to the haptocorrin piece:
http://www.sciencedirect.com/science/ar ... 2012000446

great that you have copies of your results.
have serum zinc and serum magnesium been done?

re the frustration, you make complete sense!

[momofsix]

Well I just got the call from the neuro. She wants to see me and my husband in her office. She wouldn't say why. Our appt. is on Christmas Eve morning. She either is going to address the brain or the lumbar spine which showed hemangiomas on L5, S2 and S3. I don't think Hemangiomas are related to MS so I am not sure what the new will be.

[lyndacarol]

Well I just got the call from the neuro. She wants to see me and my husband in her office. She wouldn't say why. Our appt. is on Christmas Eve morning. She either is going to address the brain or the lumbar spine which showed hemangiomas on L5, S2 and S3. I don't think Hemangiomas are related to MS so I am not sure what the new will be.

Please allow me to offer some suggestions: In the next week compile a list of your symptoms, as well as you can remember. Consider the following guidelines for a neuro exam, as given by the University of Chicago: http://peripheralneuropathycenter.uchic ... #bloodtest

Research the disease-modifying drugs (DMDs) – there are 10 currently approved for relapsing remitting MS (Betaseron, Avonex, Copaxone, Rebif, Novantrone, Tysabri, Extavia, Gilenya, Aubagio, Tecfidera). The first four were approved before 2002; the last three have been approved in the last three years. Frankly, I doubt that any drug can be effective until the cause of MS is known. I have heard that some doctors announce their diagnosis, give a list of drugs to patients, and ask them to choose one.

All the best to you.