Modified approach to the treatment of autonomic dysfunction

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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MSUK
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Modified approach to the treatment of autonomic dysfunction

Post by MSUK »

Modified approach to the treatment of autonomic dysfunction in MS patients

A new study sheds light on the positive effect of a venous procedure upon the sympathetic nervous system. Researchers were able to pinpoint how the procedure improved the abnormal sympathetic function found in patients with many chronic conditions including Multiple Sclerosis. Additionally, the study may offer insight on the beneficial effects of Chronic Cerebrospinal Venous Insufficiency (CCSVI) treatment.......... Read More - http://www.ms-uk.org/ccsviresearch
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SLOV8213
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Re: Modified approach to the treatment of autonomic dysfunct

Post by SLOV8213 »

My personal opinion of this TVAM is it is Nonsense! A made up condition to to keep gullible patients coming through the door now that the amount of patients seeking the CCSVI 'liberation therapy' as steadily waned off. I doubt that no other independent researchers would ever seriously consider his theory long enough to launch an investigation that would confirm or deny his data.
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cheerleader
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Re: Modified approach to the treatment of autonomic dysfunct

Post by cheerleader »

There is already an FDA approved treatment for vagal stimulation--utilizing an implanted electrical stimulator in the neck.
http://www.mayoclinic.org/tests-procedu ... c-20020476

I'm concerned that this one time bump into the vagus nerve is not enough justification for venoplasty....and although there may be immediate results from this bump, how long do they last?

More and more evidence continues to come in on the lasting improvement in cerebral perfusion after successful treatment for CCSVI. The whole TVAM thing is concerning to me....but if patients want to pay for this treatment, they should at least be advised of the alternative---an implanted vagal stimulator. It might be covered by their insurance, and it won't need to be redone.

cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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CureIous
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Re: Modified approach to the treatment of autonomic dysfunct

Post by CureIous »

cheerleader wrote:There is already an FDA approved treatment for vagal stimulation--utilizing an implanted electrical stimulator in the neck.
http://www.mayoclinic.org/tests-procedu ... c-20020476

I'm concerned that this one time bump into the vagus nerve is not enough justification for venoplasty....and although there may be immediate results from this bump, how long do they last?

cheer
If there's no follow up in the local patients, that kind of blows the whole "well they were too far away" comment in the study out of the water.

This is indeed, in my opinion, just one other way to throw the doors open to yet another subset of the patient population. Cha ching.

Shame I can't say what I really know/think.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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