Devic's disease

[Wondering]

Hi All

In my quest to figure out what is going on with my health, I have found that each and everyone of us has to be our own advocate for our health. My neuro basically wrote me off after my brain MRI came back normal. Great! Although i feel crappy everyday. I know my story is one of many on here but I find myself researching everything I can to get to the bottom of this.

My question is...has anyone on here been diagnosed with Devic's ? I know the symptoms can be similar to MS, HOWEVER, lesions hardly ever show up on brain MRI, but they do show up on spinal MRI and lumbar puncture. Im wondering why my neuro wouldn't exhaust all possibilities with me and not just say " you don't present to me as someone with MS".

Sooo, I am going back to my GP and requesting a C-spine MRI and possibly lumbar puncture to try to get to the bottom of this.

I went to the optometrist yesterday to have my eyes/optic nerve checked out and all appears normal. So why the blurry vision?

I am at such a loss and just want to feel normal again.

Thanks all for reading and any ideas, suggestions are welcome.

My journey started in Feb with burning feet, numbness all over, dizzyness, recent blurry vision in right eye and just an overall feeling of unwell.

Cathy

[lyndacarol]

In my quest to figure out what is going on with my health, I have found that each and everyone of us has to be our own advocate for our health. (I agree.) My neuro basically wrote me off after my brain MRI came back normal. Great! Although i feel crappy everyday. I know my story is one of many on here but I find myself researching everything I can to get to the bottom of this.

My question is...has anyone on here been diagnosed with Devic's ? (I know there are several here with Devic's, but not me.) I know the symptoms can be similar to MS, HOWEVER, lesions hardly ever show up on brain MRI, but they do show up on spinal MRI and lumbar puncture. Im wondering why my neuro wouldn't exhaust all possibilities with me and not just say " you don't present to me as someone with MS". (If she did not test for a possible vitamin B12 deficiency, it is almost malpractice… certainly, negligence.)

Sooo, I am going back to my GP and requesting a C-spine MRI and possibly lumbar puncture to try to get to the bottom of this. (Please ask your GP to order the several tests necessary to rule out a vitamin B12 deficiency.)

I went to the optometrist yesterday to have my eyes/optic nerve checked out and all appears normal. So why the blurry vision? (Forgive me – I know I have become a nag. Blurry vision is a symptom of B12 deficiency.)

I am at such a loss and just want to feel normal again.

Thanks all for reading and any ideas, suggestions are welcome.

My journey started in Feb with burning feet, numbness all over, dizzyness, recent blurry vision in right eye and just an overall feeling of unwell.

Cathy

[Wondering]

Hiya LC, thanks for your response. B12 has been ruled out. I think that was one of the firsts tests that I had with readings of 465. You are definitely not a nag!! Lol. I would be interested in speaking with someone who has Devic's if you could lead me in the right direction

C.

[want2bike]

If you have amalgam fillings or have been exposed to vaccines that could be the problem. Mercury poisoning have the similar symptoms as MS. Aspartame also causes neurological problems. If you consuming a lot of diet soda that could be the problem. There are many toxins in our environment. Try to identify them and eliminate them.

http://tuberose.com/Mercury.html