I have the Bioness l300 which helps when I do have shoes on, but it doesn't totally work. I am just so tired of this foot always being in the way...
A few years ago as a friend was helping me get my leg into a boat she commented on why not cut it off so it is not i the way anymore! I laughed then, but her comment keeps coming back to me.
Anybody with thoughts on this?
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LOL, don't mean anything bad to you - but this isn't a spur of the moment thought, especially looking at the new prosthetics that have been developed!
In the house, my ideal is bare feet, because the bare foot slides over the carpet. Even just a sock will snag and try to trip me up. With shoes, I need a 3-wheel rollator as well.
I use an Odstock Medical Pace FES, and there is a problem in that if it is switched on, when it actuates the toe will come up, but the leg will go rigid. Getting into the left hand side of a car, I can get in with the right foot first and lift the left leg in; getting into the right-hand side I have a crude wooden step that lifts me up six inches so that I can swing the left leg in.
For me, it is about not getting beaten.
It just seems like my foot is useless and just gets in the way, it's causing me back problems, my leg is in decent shape, I think I could almost walk normal if I wasn't dragging this thing around, I don't believe it will ever be 'cured' - shouldn't I consider it?
Stand on your "bad" foot and try to raise your good knee up to your chin. Do this five times (or more, but five is enough).
Stand on your "good" foot and try to raise the other knee the same number of times.
If you can, it suggests that the gross motor control for your bad leg is still OK
If you can only lift it once or twice, and then only a little the next time, and then hardly at all, it suggests that you have more than just a dropped foot. If this is the case, then something as extreme as an amputation is not likely to be of any benefit.
When I used to walk more, I experienced moderate drag foot. Walking about two blocks I would experience probably a few dozen draggings of my foot on the ground.
The 2 block walk I took during my first obviously beneficial niacin flush was hugely improved over normal and my foot dragged only 1 or 2 times. This experience told me clearly that my nervous system was not ruined and that a whole lot more than demyelination was to blame for my problems.
Many find a strong niacin flush rather unpleasant, but I say that trying it, properly, a number of times just might give you a new perspective on your condition, as it did for me. It is sure one of the things to try before having your foot cut off.
http://www.thisisms.com/forum/general-d ... 22638.html
Here is one I found on the internet -
http://www.arklatexhomepage.com/story/d ... nZ2uFyYL_w
David1949 wrote:For the benefit of those who are unfamiliar with the "niacin flush", it makes your skin feel like it's on fire. First time I tried it I ended up running to the shower for a cold shower. If you are going to try this start with a very low dose first and then work your way up. And if you are unable to run then have a means of cooling off at hand; ice pack maybe.
For a broader perspective:
1) Some find the flush pleasurable
2) I find it kind of weird and mildly unpleasant. The benefits (while they last) are wonderful, however.
3) And, of course, some hate it.
If the Bioness must be worn with shoes, there's another one, I think WalkAide, that doesn't need shoes.
I agree with Geoff that it could be upper nerves/muscles that aren't lifting the leg, not the nerve lifting the toes. So you could lift the toes electrically all you want, but your leg will still drag if the upper leg isn't lifting the entire leg up. I've heard there is another FES device to stimulate the upper muscles but haven't found it. There apparently is a full leg brace that might help, check with an occupational therapist or orthotist.