So sorry for the rant i am just at a low right now. I went to a wedding over the weekend and danced alot and am now paying the price in killer leg pain.
I am just angry and worried and waiting for the inevitable.
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Welcome to ThisIsMS, silverbelle990. I am so sorry to hear of all you have been through. All of us have the need to rant at times.silverbelle990 wrote:So lets just throw this out ther MS Sucks. I was DX in 2005. I was 28 and my only got tested because my sister found out she had it. I was showing the same symptoms as her ... needless to say i was in the same boat. My first real episode that went un-DX was withmy eyes. They crossed for about a week and there was nothing anyone could do or see why. They uncrossed by themselves thank god. Found out later on when i was getting DX that was my first episode. SO fast forward from the testing and constint leg pain endless drugs to the night IT happened. I had been dealing with a headache all day at work and when i got home I was having trouble focusing and went to bed early thinking iwas having a migraine. The next morning i woke up and was completely blind in my left eye. I was freaking out crying yelling at my husband to do something...of course he couldnt i was just freaking out .... and immedicatly got ahold of my optomotrist who works with my MS doctor. I went in that morning and did all these eye exams and he was like yep your blind. Thank you I told you that thismorning. He wanted me to do steriods at my doctors office. So off i went to get steroids. 3 days later i am still blind as a bat in my left eye. My doctor offers me plasmapheresis as an option to try and get my vision back. So side note before i get any father I have tiny rolling hiding veins. This treatment is through your viens and because my veins are the worst we had to put a tube in my chest. This was an outpatient surgery and I have to tell you a tube in your chest is the worst. It is always pulling and you cant move or sleep much. After a week and a half of going to treatments every other day my tube got infected and i spent 3 days in the hosiptal. After all that --- 2 years later ---- I can see colors and shapes. I cant see letters or read, i cant see specific details like a face just the shape of a face. My doctors all say this is as good as i am going to get. I have to say that I am very depressed and hateful but i get through the day and that is all that matters. With my MS it seems to hit my eyes every couple years and I am dreading anything else with my eyes. I only have one eye left and if it gets hit with OPtic Nueritis...thats what it was called sorry....then i will be legally blind forever. I dread that day and find myself reading everything i can get my hands on now just in case.
So sorry for the rant i am just at a low right now. I went to a wedding over the weekend and danced alot and am now paying the price in killer leg pain.
I am just angry and worried and waiting for the inevitable.
I would be surprised if your doctor has tested for a B12 deficiency; the testing is not routinely done – I had to request mine specifically.silverbelle990 wrote:Thank you for the advice. I know that i have given enough blood for all the tests like a millions times and I believe he is checking my vitamin levels as I am always coming up vitamin D deficient. I am taking vitamin D pills 5000 a day. All the other tests all come back fine.
I will definintly read the book you suggested. Anything is better then MS right? well most things .....
Dont believe it!!!silverbelle990 wrote: My eye dr said what i got now is what i will have forever.