CCSVI and CCVBP

[uprightdoc]

... had an upright MRI back in and around 2006 I beat feet...

You would think this article I found on the fonar, Dr.damadian Dr. Rosa and this football players injuries and the help he received from them would make front-page news. But no way.

Do you think I have a chance that my doctors would go for this? I guess I can see. Is Dr.damadian , even reachable by someone like me? Are you aware of any neurosurgeons that have shown an interest? ...

Hello Blossom,

Refresh my memory but As I recall you had a cervical upright MRI with flexion and extension views. It did not include a Cine Flow study. In your case, the CINE scan should be focused on the mid cervical spine, where you have the spur, not the upper cervical spine.

I don't know what you are referring to when you ask, "Do you think I have a chance my doctors would go for this?"

So far neurosurgeons have not shown much interest. They still don't see the connection.

[crshelton]

Thank you for your time and information. Will follow up with docs.

[uprightdoc]

Your welcome Christina.

Good luck with the docs.

[blossom]

... had an upright MRI back in and around 2006 I beat feet...

You would think this article I found on the fonar, Dr.damadian Dr. Rosa and this football players injuries and the help he received from them would make front-page news. But no way.

Do you think I have a chance that my doctors would go for this? I guess I can see. Is Dr.damadian , even reachable by someone like me? Are you aware of any neurosurgeons that have shown an interest? ...

Hello Blossom,

Refresh my memory but As I recall you had a cervical upright MRI with flexion and extension views. It did not include a Cine Flow study. In your case, the CINE scan should be focused on the mid cervical spine, where you have the spur, not the upper cervical spine.

I don't know what you are referring to when you ask, "Do you think I have a chance my doctors would go for this?"

So far neurosurgeons have not shown much interest. They still don't see the connection.

hi Dr. Flanagan, you are right, it did not include a cine flow study. Back then I was just trying on my own to get a doctor to explain to me why being upright and positioning changed my symptoms. And that the trauma had everything to do with my symptoms. I knew I had the Spurs and figured they were playing a big part in all this. Until I found TIMS and CCSvi and you then it all came together. – Back then, when I talked to doctors and even other MS patients, they would look at me and treat me as if I were from another planet. – – Sadly, around here. I'm still getting the same reaction.

[blossom]

Hello Blossom - (I have been absent from ThisisMS for quite sometime -- thought I would chime in on Dr. Rosa and Damadian)

You mentioned

You would think this article I found on the fonar, Dr.damadian Dr. Rosa and this football players injuries and the help he received from them would make front-page news. But no way.

The recovery of Jim McMahon has been on frontpage news --
http://www.stamfordadvocate.com/sports/ ... 150813.php
http://www.newsday.com/sports/football/ ... -1.9493358

There is quite a lot going on behind the scenes. I will be in NY next week to record an interview with Dr. Rosa -- we will be discussing his new observations in traumatic brain injury and neurological disease. Look for the video on the CCSVI Alliance website http://www.ccsvi.org

Take care,
Sharon

hello Sharon, glad you popped in. I did see the articles you listed in the paper, but for some reason I could not get the link to come up. I will look forward to seeing the video of your interview.

You say there is a lot going on behind the scenes and that is a very good thing. Any great neurosurgeons that may surface? And they say it's hard to teach an old dog new tricks. But, that is easy compared to getting the attention and participation of the mainstream medicine old boys. – But, hopefully, soon, if we keep knocking on the doors – they will start to open.

Keep up the good work and you take care of yourself.

[uprightdoc]

As far as Jim McMahon, dementia and the lack of headlines are concerned, the link below is to a paper I published in 1991 calling for chiropractic research into the treatment of dementia due to obstruction of venous and CSF flow. Notice how I discuss the perivascular pathways being the lymphatic system of the brain. Unfortunately, it got very little attention at the time and upright MRI had yet to be invented. Worse yet, twenty years of potential gains in prevention and treatment of cases like Jim McMahon were lost. Many patients sufferred needlessly. Now twenty years later some researchers have come to the conclusion that the perivascular pathways (Virchow-Robin spaces) are the lymphatic systme of the brain and gave it a cute name called the "glymphatic system." Maybe next they will figure out why the "glymphatic system" gets backed-up. It later occurred to me that most people reading and reviewig my papers weren't qualified to comment as they lacked the basic knowledge and background. My theory regarding craniospinal hydrodynamics applies to many other conditions and therapies as well.

http://www.dynamicchiropractic.com/mpac ... p?id=44623

[Robnl]

Hi doc,

You know i want to have a cine mri to measure csf flow/ pulse,but not available over here
.
Now i heard about 'flow study' , This is done in case of chiairi?

I found this;
http://www.ajnr.org/content/16/2/389.full.pdf

Is this diiferent than cine, but more common?

Regards ,

Robert

[uprightdoc]

Hi Robert,

The study you posted uses Cine MRI. Cine MRI can be used to detemine obstruction caused by Chiari malformations or cerebellar tonsillar ectopia. The difference is that this study was done supine not upright. They also studied other parameters such as wave forms rather than just CSF flow. There is a long way to go yet with upright MRI. So far they are only doing flow studies that focus on the craniocervical junction. Eventually flow studies will have to be done on the lower spine to check obstruction caused by conditions such as spondylosis, stenosis, scoliosis and bones spurs seen in cases like yours and Blossom.

[Robnl]

Hi Doc,

Thx!

This flow study can be done in Holland, from what i heard. So, it's 'horizontal' MRI, would it be useful for me??

BTW, last year i mailed with chief marketing Fonar ; he told me that they are upgrading all their sites with the Cine 'plugin'.

Regards,

Robert

[uprightdoc]

Hi Robert,

Cine flow studies are not new. They have been around for quite awhile now. It is upright MRI and upright Cine MRI that are relatively new. A supine/horizontal Cine MRI would be interesting to see but in your case I would wait until upright Cine MRI is available.

[tzootsi]

Dr Fanagan, have you heard anything more on Dr. Rosa's work?

[uprightdoc]

Hi Tootzie,

No. I haven't. I have been way too busy with my current project and editing my next book. I was asked to speak at several upper cervical society meetings, as well as to teach a course but I can't even consider, such an endeavor until later in 2015 after construction is finished and the restaurant is open. I am not that interested in traveling to teach seminar either. Instead, I am considering small seminars at our facility which is reasonably close to New York Chiropractic College. I could always expand to Albany. There is much more to cover and much more research that needs to be done.

[NZer1]

Dr F
have you considered cloning?

I guess that is a work in progress like Upright Cine!

Chop wood, carry water ..............

;)

[uprightdoc]

Nigel,

If people aren't listening to this copy, cloning won't help.

It's amazing how slowly things are moving with this research. I started my research thirty years ago. I published my book in 2010. So far we still have only one chiropractor using an upright MRI to validate just one method of treatment. There are other equally valid and effective approaches based on my theory that also need to be investigated. For better or worse, for the most part there is no funding for chiropractic research. Dr. Rosa got lucky. It's probably just as well because most chiropractors are not even remotely up to the task. It's amazing that neurosurgeons are still asleep. They could get the funding and they need to be part of the conversation and potential solutions. Radiologists have been involved in this research since I first started. They have always been my strongest source for support. They just haven't connected the dots yet. If physical anthropologists weren't still hung up on political correctness they could be helpful in investigating racial and gender design issues in prevalence of neurodegenerative diseases. Craniofacial surgeons and orthodontists could likewise help. Engineers could contribute with computer modeling to fill in the pieces that brain scans can't provide. Rather than moving at a snails pace we should be setting up research facilities around the country and internationally. The costs would be minimal. The challenge will be to get radiologists and neurosurgeons on board as they have the experience with clinical research and they can get the funding.

[Robnl]

True what you say doc, but who wants to research when money flows in by following the medicin man?
Like a neurosurgeon said to me when i told him about you and your theories:
- ah, you know these american doctors; they want to make money!
- ah, just theories and we don't do theories....

Where is the 'hey, interesting'.....it should start there...ít's dissapointing.