CCSVI and CCVBP

[mystery1980]

Hello Dr. Flanagan and all the others,

I forgot I apologize but I hope everyone had a nice Christmas?

I can't find the images of before at the moment, so they follow later..

I haven't write all of the complaints because I think they are not important or they are there sometimes.
But I write them now as well:

- pink and ring finger right hand more often kind of "sleep" / "cramp" feeling
- sensitive right wrist
- with walking I have to focus myself on the walking otherwise I fall so down or I go "drift about" if I'm drunk
- sometimes "muscle spasm" / "convulsion" in arms and legs
- sometimes "kickmovements" with my legs ( especially the right leg )
- If I moving my chin to my chest, it seems if something is shooting down through my back and my right arm or leg is making sometimes kind of convulsion
- I have the feeling if I lie crooked, while it isn't
- feeling that someting is under my foot / between my wicker, what isn't
- some time neuralgia on the left side jaw / mouth, but according to the dentist is there nothing to see
- If I sitting in the wheelchair and they put stuff on my legs what supposed to be heavy, I don't feel it

Maby I forgot some more separate things, but I will say it later.

Can you please tell me one more thing, what is the different between a Chiari 0 and a Chiari 1 because I can't find a Chiari 0 on the Dutch sites?

Free of my situation I find neurology and how the body works very interesting
Thank you very much for everything what you already did for me!!!

Kind regards,

Francis

[uprightdoc]

Well I am back from Pairee. The Eiffel Tower was particulary picturesque.

The chiropractic doctor's credentials are very good for the conditions he treats. His post graduate work demonstrates his willingness to excel at what he does. Unfortunately, despite three additional years in post graduate training in neurology chiropractic neurologists have very little knowledgeable about neurodegenerative diseases and even less regarding the subject of craniospinal hydrodynamics.

When it comes to neurodegenerative conditions, I think the method doctors use to treat patients is as important as their background. Some methods make sense scientifically and clinically speaking considering the anatomy, physiology and pathology that is involved in neurodegenerative conditions. Other methods make no sense. Many are complete nonsense.

[uprightdoc]

Thanks Robert for fixing the French Connection. The link worked. I am heading over to Paris now to see what's up.

You computer-geek you..

I have been using computers since the IBM XT was first introduced. I have run many businesses using computers. I stated using the internet when no one knew what it was. I am now learning an awesome POS (point of service) system for our restaurant and inn. The hardware is relatively simple and small. The software for data, inventory control, marketing and security aspects etc., is phenomenal. The guy who sold us the system is a serious geek. Despite decades of background I remain a complete techo ignoramus. I always buy last years technology, never the cutting edge. I just bought my first laptop last year. I don't like touchscreen phones. I prefer my flip top and I don't do texting either. Your wee Dutchmen probably know more than I do.

[mystery1980]

Hello Dr. Flanagan,

The text you post before is about the Dutch doctors if I read it right isn't?
And if I read it right in Amerika it calls Chiari 0?

Do the complaints I wrote before say something to you?

Kind regards,

Francis

[uprightdoc]

Hello Francis,

You're welcome.

We had a wonderful Christmas and a nice dinner. My wife and I got red wriggler worms and the worm compost factory for a gift. My wife is weird and enjoys science and biology. We have been using basic pit composting for over fifteen years now. We will use the worm factory and red wrigglers to prepare for larger commerical scale vermicomposting when we open our restaurant. We will also be using large tumble composters. Robert, on the other hand, still has agida from the Corsendonk, sausaage and cheese raclette party he went to on Christmas day.

The doctor I was referring to several posts back was from a link posted by Wallace about a chiropractic neurologist in Paris.

A Chiari 1 occurs when the cerebellum sinks low enough to make contact with the bones of the base of the skull. In a Chiari 0 the retrocerebellar space behind and beneath the cerebellum is too small but here is no contact with the base of the skull. The brain, however, sinks slightly in the vertical-upright position and a Chiari 0 can become a Chiari 1 or 2 and cause blockage of the epidural veins and subarachnoid space resulting in obstruction to blood and CSF flow between the cranial vault and spinal canal.

Your upper extremity symptoms are most likely due to the expanding syrinx. The drunk feeling you get when you walk and the muscle spasms and the twitches or tremors (kicking movements) are due to the Chiari. The electric sensation that shoots down through the back of your right arm or leg when you flex your chin to your chest is caused by adverse (too much) mechanical tension in the spinal cord. The movement and the symptoms it provokes is an important clinical finding called a Lhermitte's sign. The tension in the cord can be caused by tethering of the cord or the protruding T4/5 disc/bone fragment. I don't know what you mean by the "wicker' of your foot but you probably have paresthesia. The paresthesia and loss of ability to sense (numbness) a heavy object on your leg is a sign of dysfunction (medical term for malfunction) of the sensory nerves.

The pain in your jaw and mouth is significant. The jaw and facial muscles can be affected by injuries to the cervical spine.

[Robnl]

Be careful doc, i'll drop by in your restaurant .....someday..

[uprightdoc]

Great. We will have brand new kitchen and a nice post and beam conservatory style restaurant, as well as a tavern in the historic house. The price of the kitchen equipment was shocking. Our chef is also very good.

[NZer1]

Are you saying the price of the Chef was shocking also? ;)

[uprightdoc]

No. The price of our chef was very reasonable for his level of skills and experience. You have to be a little crazy to be a chef. It is total chaos and stress.

[uprightdoc]

Hello Francis,

How long have you been using a wheelchair?

[wallace]

Thanks Upright Doc

As that Paris chiro doesnt specialise in CCSVI that rules him out for me. And as you point out he doesnt do SOTO

I will stay put with my "old timer"!!

[mystery1980]

Hello Dr. Flanagan,

I'm using the wheelchair for quite a while now ( I think about 1,5 year ) but only for, for example with my mother to the market or go shopping year.
Also I have a scootmobile since june this year.

May I ask why are you asking it?

Kind regards,

Francis

[uprightdoc]

Hello Francis,

I am trying to get a better perspective on the chronology of your condition. It certain conditions are caught early enough the prognosis is better.

Has anyone thoroughly tested the muscles in your arms and legs including: !) fingers, wrists, arm, and shoulder muscles and 2) toes, feet, leg and thigh muscles? If the muscles have been tested what is their grades of strength from 0 - 5? What is the nature of the reflexes in your arms and legs? Are your reflexes normal, over or under active? Do you have any pathological reflex signs such as Babinski or Clonus?

[uprightdoc]

Hi Wallace,

Does your chiropractor use SOT?

[uprightdoc]

Robert,

Do you use table raclette grills for holiday parties? If you do - do you prefer a stone, steel or iron griddle? Do you prefer round or rectangular grills?