CCSVI and CCVBP

[uprightdoc]

Hi Robert,

It would be best to do specific muscles tests of the upper and lower extremities including: fingers, wrists, arms, shoulers, feet, legs, thighs, hamstrings and buttocks muscles if possible.

[uprightdoc]

Thanks Nigel. It's an interesting paper. They are slowly starting to catch on but they are only scratching at the surface. There is still much more and a long way to go for future research.

[Robnl]

Hi doc,

This morning i had a chinese massage (Zhen qi); he stimulates the nerves, noted blockages etc. Intensifve...
So......i'll see what happens....

[uprightdoc]

Hello Robert,

Any type of deep tissue and lymphatic-type massage would be helpful for your condition.

[Robnl]

Hi Doc,

After massage; muscle pain, low back pain, more stiffness....now it's getting somewhat better..

[Robnl]

Hi Robert,

It would be best to do specific muscles tests of the upper and lower extremities including: fingers, wrists, arms, shoulers, feet, legs, thighs, hamstrings and buttocks muscles if possible.

Hi doc,

Left no reflexes, right minimal....tomorrow i will post muscle test results...

[uprightdoc]

Hi Robert,

Are you saying that your left arm and leg have no reflexex and the right arm and leg have minimal reflexes or are you referring to the reflexes in your legs? Except for toxins and acute traumatic-type injuries etc., decreased or absent reflexes are usually due to lower motor nerve problems, such and spinal nerve roots and peripheral nerve entrapments. Upper motor nerve problems in the brain and cord typically cause increased (exagerrated) reflexes.

[Robnl]

In legs like i described, in arms and feet better. I'll get the results this morning, let you know.

[Robnl]

Hi Doc,

Well.....

Globally it can be concluded that musclestrength is better right than left.
Same counts for reflexes.

Strength in hands: Right 36KG, left 25KG.


Knee tendon reflex: right slight reflex, left none
Achilles tendon reflex: right ok, left slight reflex
Biceps tendon: right slight reflex, left none
Triceps tendon: right ok, left none

[uprightdoc]

Hi Robert,

I appreciate the therapist's effort but the information is too vague. Manual muscle test are typically graded on a scale of 1-5. Muscle tendon reflexes should be similarly graded. It is odd that you have diminished tendon reflexes in the right arm and leg and absent reflexes in the left arm and leg.

There are some interesting studies that were done recently on spondylosis and stenosis of the lower spine and degenerative myelopathy (spinal cord). These studies support what I have been saying regarding cases like your's, Blossum's and other cases. There are also recent studies that confirm my suspicions regarding a large syrinx similar to Francis's. On top of that there are some interesting surgical options on the horizon. I will cover the studies and surgery briefly in my next paper.

[Robnl]

Hi Robert,

I appreciate the therapist's effort but the information is too vague. Manual muscle test are typically graded on a scale of 1-5. Muscle tendon reflexes should be similarly graded. It is odd that you have diminished tendon reflexes in the right arm and leg and absent reflexes in the left arm and leg.

There are some interesting studies that were done recently on spondylosis and stenosis of the lower spine and degenerative myelopathy (spinal cord). These studies support what I have been saying regarding cases like your's, Blossum's and other cases. There are also recent studies that confirm my suspicions regarding a large syrinx similar to Francis's. On top of that there are some interesting surgical options on the horizon. I will cover the studies and surgery briefly in my next paper.

Hi Doc,

Can you give an example of one of these studies?? Maybe interesting to take it with me to te neurosurgeon at March 30th

Robert

[mystery1980]

Hello Mystery,

I apologize for not replying sooner but for some reason I was not receiving any email from TIMS.

Let me know when you PM me with your images.

Do you have nerve pain? The elevated vitamin B6 level may be related to peripheral neuropathy. Do you have any problems with digestion or elimination?

Hello Dr. Flanagan,

It has been a while since a wrote here
Because my body is going backwards on more surfaces I went to several specialists one for my eyes and one for my hearing, so I had very low energy..

But in answer to your question you wrote before:
If I got the images together and I want to send them to you, I let you know.

The answer to your other question, I have problems with sensory disturbances espacially in my legs ( therefor I have the medication ) and when I walk to far I have pain in my leg, but I don't know if that is nerve pain?
I don't know what you mean with digestion or elimination?
The general practitioner said he wants to test my blood again on vitamins early April.

I shall most likely in April have surgery on my spinal cord.
The neurosurgeon said it was a hernia that was a little calcified but because my complaints he sees it as a challenge

Further I had an appointment with the neurosurgeon in Nijmegen and I said that my sight is going backwards ( I only see for 60% ), and he told me he can't match it with syringomyelia, but also he said that my complaints look very much to MS.
But the Mri from the brain don't show that, but he said he knows other patients where the Mri looks clean and with further research came out that the patients even so had MS.
A VEP research would be smart he said.

Also I had a appointment with the orthoptist and a field examination. The orthoptist told me after the research that my pupillary reaction to light was to slow and also the processing. The eye specialist has to apply the VEP research, so I'am curious...

And I had a appointment with the ear specialist and after research he said that I less hear the bass and that I was very sensitive for the treble. He send me to the audiological center for more research..

Can I ask what your opinion is about what the neurosurgeon from Nijmegen said about my eyes and MS?
Or is there a link with syringomyelia and MS?

Kind regards

[uprightdoc]

Hello Robert,

There is nothing I can give you right now that would help the neurosurgeon. It takes too long to explain the connection to the studies I mentioned and cases such as yours, which is why I wrote the paper. They have to understand the connection first before they will consider the surgical options.

[uprightdoc]

Hello Mystery,

There is a connection between syringomyelia and Chiari malformations. There is also a connection between Chiari malformations and MS. A pressure cone is similar to a Chiari malformation. Pressure cones are caused by abnormal pressure differences between the cranial vault and spinal canal. Abnormal pressure differences can push or pull the brainstem into the foramen magnum. Chiari malformations and pressure cones block blood and CSF flow between the cranial vault and spinal canal. Among other things, blockage of blood and CSF flow can affect drainage of the eyes. It can also affect blood flow to the eye resulting ischemia and degeneration of the optic nerve, as well as increased pressure in the eye (intraoccular) resulting in glaucoma-like conditions.

You may have circulatory problems and possible anemia causing the sensory disturbances and pain in your leg when you walk. Blood work will provide clues. Poor circulation, low blood pressure and anemia can cause a decreases in CSF volume in the cranial vault. A decrease in CSF volume can cause a pressure cone.

Where is the disc hernia in the spine? Is the hernia in the cervical or the lumbar spine?

[Robnl]

Hello Robert,

There is nothing I can give you right now that would help the neurosurgeon. It takes too long to explain the connection to the studies I mentioned and cases such as yours, which is why I wrote the paper. They have to understand the connection first before they will consider the surgical options.

Ah, you got 4 weeks....

so, also no study or extract....hmmm bad luck