Children with MS

[lizmac]

Hi,
does anyone else have teenage children with MS?

I would be really interested to swap notes with other parents.

My 18-year-old daughter has RRMS - diagnosed at 15 after losing left side movement - she is now 18 and managed to finish school and start at university despite crippling fatigue - time management has been critical.

She is on Gilenya (Fingolimod) and LDN, plus takes a pile of supplements.

She is trying to have some 'normal' time at uni but it is so challenging when you have to lie down between 1 and 4pm every day, have to go to bed at 9.30pm, can't drink or catch public transport alone.

Love to hear from other parents in a similar situation or people who were diagnosed in their teens.

[NHE]

Hi Lizmac,
Welcome to ThisIsMS. We have a forum dedicated to parenting children with MS. You may wish to look through some of the posts there if you haven't already.

http://www.thisisms.com/forum/parenting ... th-ms-f34/