Advice or input needed. Cant feel penis.

[DictatorDan]

Male in my 30s.
I have some weird stuff going on and would like some input. Most of this has been over the last two weeks, some other stuff has been going on longer.
Chills with no fever. Temp is actually a degree or more under 98.6 consistently for 2 months.
Numbness - hands and feet. Numbness turns into an electric tingle and will spread up my forearms and legs.
Numbness spread to my torso when I got stressed out and I lost sensation in my penis. The numbness and tingling mostly went away after about a day and a half but I have not regained full sensitivity in my penis again. I never regained feeling in the big toe on my right foot either.
Shaky vision when I get hot. Text is almost impossible to read when this happens.
Blurred vision sometimes too.
I wobble when standing still and feet at a normal distance apart. More comfortable leaning on something if I have to stand.
Tremor in my right hand fairly pronounced. Came about after a 10 day headache.
Sensation of cold water being dripped on my right shoulder - lasted for just a few seconds, happened again an hour or so later and then hasnt returned
Burning sensation on the inside of my knee.
horribly uncomfortable abdomen, seems to happen when the tingling and numbness is spreading. Its like all my internal organs are inflamed and being squeezed or i have on the worlds tightest waistband. I get this heat above my hips more towards my back. This sensation of pressure is the first of all the sensations to fade.
Very strange sensations in my legs preceded all this by about 4 weeks. It was not like anything i had felt before. It felt kind of good to be honest with you. Would last for an hour sometimes more. Like I couldn't feel any pain. Like I was on a strong pain killer and it kind of rolled down my legs towards my feet in this wave like sensation. Happened once or twice a week for a month.
Before my hands started to lose sensation I was dropping things constantly. That started 3 or 4 months ago.
When the tingle and numbness intensifies I absolutely cannot focus on anything. Its like my brain turns off or slows to a crawl. I get kind of confused and have a hard time communicating. Like I cant find the right words to express what Im trying to say. Its really really terrifying and frustrating. It sometimes fades with the numbess, sometimes it stays a little longer. Ever since then I seem to have lost the ability to talk on the phone without forgetting words I have used every day of my life since I was 5. For example "Ugh whats the word Im looking for......butter, will you get some butter from the store"
Ive had this numbness and tingling appear and disappear 4 times in the last 2 weeks.
Ive got a horrible pain in my left buttock and heel from what I think is shifting all my weight to my left side while im standing or walking.
I cant for the life of me keep my toes and fingers warm. If they get cold they go white and I have to put them in hot water to get the color back.
Tired all the time.
I spent a year living in a very moldy residence prior to all this and have been out of there for almost 3 months. I would love to know that this is some delayed allergic reaction.
The molds were of the nasty variety and I was advised to get some bloodwork. My initial blood work showed I had low platelets, in the 50s. I have since had an ultrasound, ANA, Sed rate, tested for all rheumatoid diseases. Thyroid, Diabetes, Metabolic panel. All negative or within normal range. Had a normal MRI as well but that was before I went numb.

Currently have pressure or generalized urticaria that acts up with any kind of stimulus. Hot, cold, emotion, touch, sunlight, stress. Any of it makes me break out in these big red wheals.
Im already on a 2 day rotation diet eliminating all preservatives and chemicals to try to remedy that. Im taking antihistamines also, they dont help much but they do a little.

I feel crazy. I cant feel my penis. All this stuff is so confusing and trying to describe it to someone is a nightmare.

[avengr13]

@Dictatordan, I have no advice but I know how difficult it is to describe the wild and random symptoms that happen with m.s. Makes a person feel very alone! Sometimes it is just good to vent to someone that understands how random this disease can be.

[ElliotB]

What kind of doctors have you seen and what are their conclusions?

[Scott1]

Hi,

Go to the outpatients at hospital and repeat what you have said. I think you need to see a neurologist right now for assessment.

I don't like your description and if you are having an inflammatory attack then it needs to be calmed down at once. That probably requires prednisolone intravenously. If you have MS then join the club, if you don't then you need a diagnosis.

You need to see a specialist and the fastest way to jump the queue is the outpatients/ER of a hospital.

Some of it is not typical MS but just jump the queue.

Do it now.

Regards,

[lyndacarol]

Welcome to ThisIsMS, DictatorDan.

As you can see, this is a community of individuals – we each have our unique experience, our unique set of symptoms, our unique perspective and opinion.

I have no medical background, but I offer you my thoughts:

The numbness/tingling in your hands and legs (that "spread of my forearms and legs") is the definition of "peripheral neuropathy" and is common in many conditions In investigating the cause of peripheral neuropathy, the University of Chicago suggests the following, many of which you seem to have had:

http://peripheralneuropathycenter.uchic ... #bloodtest\

Blood tests

Blood tests are commonly employed to check for vitamin deficiencies, toxic elements and evidence of an abnormal immune response.

Depending on your individual situation, your doctor may request certain laboratory tests to identify potentially treatable causes for neuropathy. These include tests for:

Vitamin B12 and folate levels
Thyroid, liver and kidney functions
Vasculitis evaluation
Oral glucose tolerance test
Antibodies to nerve components (e.g., anti-MAG antibody)
Antibodies related to celiac disease
Lyme disease
HIV/AIDS
Hepatitis C and B

I did not notice your mention of any nutrient testing. In my opinion, initial blood tests should include the vitamin D test (a.k.a. "25-hydroxyvitamin D" test) – it is estimated that over 1/2 of the world's population is vitamin D deficient. This deficiency can manifest with neurological symptoms, such as yours. Many experts in the vitamin D test should be as routine as blood pressure, glucose, and cholesterol testing is.

Your symptoms are also consistent with Vitamin B12 deficiency. To test for this, 4 tests should be ordered by your GP: 1) a serum B12 test, 2) RBC folate test, 3) a serum homocysteine test, and 4) a methylmalonic acid test.

Please request your own copy of any test results – it is important to have the actual result numbers.

YOU ARE NOT CRAZY! We wish you all the best. Let us know how your investigation goes.

[DictatorDan]

Thanks for the replies. I'll try to give more info and answer a few questions. I have seen my PCP, Immunologist, Rheumatologist and I saw a Neurologist for the tremor and patchy numbness. I called his office when the numbness and tingling and tightness around my abdomen came about. He took a couple days to get back to me by which time my symptoms had mostly subsided. He called in a 4mg Medrol taper and said if my symptoms returned to start the steroids. Later that day tingling and numbness and discomfort in my abdomen were coming back so I picked up the steroids. By the end of the first day I felt better but by the end of the second day they had come back and I suffered an intensifying of symptoms when my hands got too cold while at the park with my son. The third day on Medrol was just as bad as the second and when I got stressed it felt like someone plugged my feet into an electrical socket. Just a swarm of "activity" in both feet, tingling in my face and arms/legs. It was constant in my feet but moved around the other places listed, fading in and out. Pain in my left wrist, right elbow, right shoulder, left ankle and a cramp like feeling in my rib cage on the left side of my back. The tingling has gone now but I'm left with a reduction of sensation in my right foot, right thumb, left hand and forearm, penis, anus, an area on my back over my right shoulder blade. Im squinting and leaning in to read my computer screen now as well.
Only new activity last night - fleeting moments of numbness and tingling in my face, specifically nose and upper lip and forehead.
My primary doctor said to consider a possible MS diagnosis. Rheumatologist agreed MS with a possibility of fibromyalgia.
I'm going to change neurologists and have already started the referral process with my primary care doctor. Current neuro seemed to be ok with ruling out MS after one MRI that was done pre-numnbess but basically said he didnt know and didnt offer any avenues of further investigation.
Don't get me wrong, I don't want this. I do not want a diagnosis of MS but I do want a doctor that is interested in finding the cause.
I haven't done the best job at describing this stuff as it is really hard to do. Ive tried to write it all out before but I get frustrated. This is probably the best Ive done at detailing what I experienced.
I have had tests for gluten intolerance and celiac disease several CBCs w/metabolic panel and urinalysis, tests for kidney/liver/thyroid function as well. I know my WBCs were at the bottom of the ref range. 5-12 and mine were 5.
I had the discomfort in my abdomen before the tremor started which is what I had the ultrasound for. I had chalked it up to bloating after the ultrasound came back normal.
I have an appointment with an internist next month.
I will ask about the other tests for neuropathy and vitamin deficiency. My symptoms arent symmetrical, does that conflict with neuropathy?
Sorry this post is a little scattered. Ive tried to go back through and make sure I was clear and detailed but Im afraid I'll make it worse trying to fix it.

[lyndacarol]

I have seen my PCP, Immunologist, Rheumatologist and I saw a Neurologist for the tremor and patchy numbness. I called his office when the numbness and tingling and tightness around my abdomen came about. He took a couple days to get back to me by which time my symptoms had mostly subsided. He called in a 4mg Medrol taper and said if my symptoms returned to start the steroids. Later that day tingling and numbness and discomfort in my abdomen were coming back so I picked up the steroids. By the end of the first day I felt better but by the end of the second day they had come back and I suffered an intensifying of symptoms when my hands got too cold while at the park with my son. The third day on Medrol was just as bad as the second and when I got stressed it felt like someone plugged my feet into an electrical socket. Just a swarm of "activity" in both feet, tingling in my face and arms/legs. It was constant in my feet but moved around the other places listed, fading in and out. Pain in my left wrist, right elbow, right shoulder, left ankle and a cramp like feeling in my rib cage on the left side of my back. The tingling has gone now but I'm left with a reduction of sensation in my right foot, right thumb, left hand and forearm, penis, anus, an area on my back over my right shoulder blade. Im squinting and leaning in to read my computer screen now as well.
Only new activity last night - fleeting moments of numbness and tingling in my face, specifically nose and upper lip and forehead.
My primary doctor said to consider a possible MS diagnosis. Rheumatologist agreed MS with a possibility of fibromyalgia.
I'm going to change neurologists and have already started the referral process with my primary care doctor. Current neuro seemed to be ok with ruling out MS after one MRI that was done pre-numnbess but basically said he didnt know and didnt offer any avenues of further investigation.
Don't get me wrong, I don't want this. I do not want a diagnosis of MS but I do want a doctor that is interested in finding the cause.
I haven't done the best job at describing this stuff as it is really hard to do. Ive tried to write it all out before but I get frustrated. This is probably the best Ive done at detailing what I experienced.
I have had tests for gluten intolerance and celiac disease several CBCs w/metabolic panel and urinalysis, tests for kidney/liver/thyroid function as well. I know my WBCs were at the bottom of the ref range. 5-12 and mine were 5.
I had the discomfort in my abdomen before the tremor started which is what I had the ultrasound for. I had chalked it up to bloating after the ultrasound came back normal.
I have an appointment with an internist next month.
I will ask about the other tests for neuropathy and vitamin deficiency. My symptoms arent symmetrical, does that conflict with neuropathy?
Sorry this post is a little scattered. Ive tried to go back through and make sure I was clear and detailed but Im afraid I'll make it worse trying to fix it.

You have certainly seen quite a few specialists! I believe that if you see a specialist about a problem, it is likely that he will find a solution only in his specialty; if you see a neuro, he will only see the problem/solution in neurology. I agree with what I have read: "doctors are experts in, and only test for, those parts of the body in which they specialize."

Your PCP is correct that MS is a possible diagnosis, fibromyalgia (per the rheumatologist) is a possible diagnosis, too. The problem is that there are many conditions presenting with your symptoms.

You say that your "current neuro seemed to be okay with ruling out MS.…" BUT, MS is a diagnosis of exclusion, made only after the other more likely possibilities have been ruled out FIRST. You need a "disease detective" – as you say: "a doctor that is interested in finding the cause."

You have done a fine job describing your symptoms, we all know, only too well, that it is not easy to do. Nevertheless, I encourage you to try to keep a journal/dateline/list of your symptoms. (Consider even taking your written list to the appointment with the internist next month; it will remind you of your symptoms. Also, ask him for the nutrient testing – vitamin D, B12, etc. – ANY of your doctors could order these tests.)

I commend your doctors who have ordered gluten sensitivity testing, kidney/liver/thyroid function testing, etc. Despite the fact that symptoms are not symmetrical – I believe neuropathy (numbness/tingling/even pain) can occur on one side – it is not necessary that it be symmetrical.

As for your post being scattered… the content of your post is not a problem. But, you would help those with vision problems if you separate your text into more distinct paragraphs.

[Scott1]

Hi,

I agree with Lyndacarol that you have described your situation well.

Your neuro leaves me a bit stumped. He is staring at a set of symptoms, decides it's not MS and acts like his job is done. That's treating you very poorly. Get another neuro.

If you have a broad minded GP ask him if he will treat your stomach ailment as though you have a bacterial infection. He can look for it if he likes or just slam it with something aggressive like Zinnat. You will need to sort out a program to repopulate your gut if you do that.

Otherwise, the next time something happens go to the outpatients and tell them you need to be looked at while it is apparent.

Regards,

[DictatorDan]

Thanks for the positive feedback. My self-esteem seems to have taken a blow in the last few weeks and I'm second guessing myself more than usual. A journal is a good idea.

[NHE]

I spent a year living in a very moldy residence prior to all this and have been out of there for almost 3 months. I would love to know that this is some delayed allergic reaction.
The molds were of the nasty variety and I was advised to get some bloodwork.
...
So some of this testing was precautionary (species of mold found in home have a high incidence of autoimmune disease associated with long term exposure) but has actually turned out quite necessary.
...
However I've learned that gram negative and gram positive bacteria thrive in the same environments as molds like the ones found in my home.

I suggest that you may wish to look into detoxing from the mold.

[DictatorDan]

POTS is looking more likely than anything else. Going to ask my GP about it and see what he thinks. Thanks for the help and info.

[DictatorDan]

I'm back after what feels like an eternity which in reality was only just over a month. Crazy.
Speaking of crazy, I sought out a psychiatrist to make sure that wasn't the case after the way these doctors have made me feel its all in my head.
She called it crazy-making and horrible and to call at the first mention of conversion disorder or insinuation of somatoform tendencies.
Anyone else had to deal with this?

I had a follow up with a rheumatologist that pretty much said "you have fibro, have a good day, I'm going to bill your insurance now" and that was it.

I had my B levels, vit d, glucose, celiac, liver, kidneys, folate, full hep panel tested. All were either in nearly optimal range, function and neg for hep.
Haven't been tested for HIV, Lyme or Anti-Bodies to Nerve components or Anti-phospholipids.
Kidneys showed some irregularities in blood work but my glom filt rate was still 87.98.

I took everyone's advice and I did have several more tests done.

I followed NHE's advice and paid for urinalysis from Real Time Labs to check for mycotoxins.
Tested positive in the very very low ranges for Ochratoxin and Aflatoxin. Unfortunately there are about 30 different metabolites produced by the most abundant species found in the air but no method to test for those specific compounds currently. Chaetoglobosin A and C as well as other very potent cytochalasins are commonly produced. Guessing game on those I suppose.

I spoke with my GP about my (rediculous) theorized POTS diagnosis. He of course being a very intelligent and caring physician blew that theory to bits.
I then suggested Still's disease as it is pretty much a clinical diagnosis only and often presents with negative ANA and Rheumatoid factor with an elevated ferritin level. Of course I haven't been able to get someone to run that particular test yet.

He recommended me to another rheumatologist as some of my symptoms had changed.
-More pronounced arthritis
-Photo sensitivity - leads to rash with arthritis and myalgia - lasts 24 hours to 5 days
-Hospital visit and diagnosis of venous insufficiency in my left leg.
-Abnormalities on CBCs, metabolic panels and urinalysis
- Low HCT/High Monocytes
- Low White Blood Cell/Low Red Blood Cell
- High Albumin/High CO2/High Anion Gap/High BUN
- Foamy urine (was due to clear mucus) +2 mucus on macroinspection
- Many Calcium Oxalate chrystals and amophous crystals in urine

Chills and low temp (~96.8) with rash on upper arms, chest/shoulders, front of neck, back of neck into hairline approx 2 inches but without fever
Fever comes with inflammation and joint pain and rash across face.
Developed more cysts (look like pimples but are not) on face with a malar type rash across both cheeks and a bit over the nose. One cyst left a perfectly round flat scar that looks like panniculitis as it is perfectly flat and about 2mm deep and 20mm in diameter.

The new rhuematologist ran an extensive battery of tests and said everything came back normal. I see some abnormalities that are suggestive but I am not a doctor. Mayo and Wikipedia won't give me a diploma despite very persuasive emails and internet meme's.

Tests were as follows:
ANCA for Vasculitis -neg
Angiotensin - 24 U/L (9-67 U/L)
Protein/Creatinine Urine- 18mg/dl (0-11mg ref range)
C-Reative - 0.03
C3 Comp - 90.29mg/dl (90-180 Ref range)
C4 Comp - 24mg/dl (10-40 Ref range)
CBC - High Albumin and Low WBC 3.9 (5.0-11 ref range)
Creatinine 167.4mg/dl (40-120mg/dl)
Sed Rate - 5
Trace blood in urine
Hep A, B, C - Neg
IGG - 933mg/dl (700-1600md/dl ref range)
IGA - 303mg/dl (70-400mg/dl ref range)
IGM - 71mg/dl (40-230mg/dl ref range)
Total Protein - 7.8 g/dl (6-8 g/dL ref range)
Albumin - 66% (59.2-71.6%)
Albumin by Elec - 4.88 g/dl (3.55-5.73)
Alpha 1% - 2.6% (1.4-3.0%)
Alpha 1 - 0.19 g/dl (0.08-0.25 g/dl)
Alpha 2% - 9.2% (7.6-12.3%)
Alpha 2 - 0.68 g/dl (0.46-0.98 g/dl)
Beta% - 11.00% (8.6-15.1%)
Beta Globulin - 0.81 g/dl (0.52-1.21 g/dl)
Gamma Globulin % - 11.2% (8.1-16.8%)
Gamma Globulin - 0.83 g/dl (0.49-1.34 g/dl)
No Evidence of Monoclonal Gammopathy.
Total Complement Level - 50 U/mL (31-60 U/mL)
Rheumatoid Factor -11 IU/ML
Creatine Phosphokinase - 46 U/L (25-225 U/L)
Anti CCP - 18
Triiodothyronine Level, Free - 2.5 pg/mL (2.3-4.2 pg/mL)
TSH, High Sensitivity 1.72 mIU (0.27-4.20 mIU)
Thyroxine(T4) Level - 1.02 ng/dl (0.93-1.70 ng/dl)
ANA Titer - Neg
ANA Profile - Neg



I was a bit teary eyed during the visit because, well I don't know why.
I have been overly emotional anytime I have to sit face to face with someone, especially a doctor, and go through all this stuff. I think that has caused some suspicion of a somatic condition.

I saw my GP the other day to talk about a stationary black dot that has showed up in the center vision in my right eye. It's either black when looking at a computer monitor or its a blurry spot when reading text on paper. It has not gone away in almost 3 weeks.

Also I have a lot of "debris" floating through my vision as well as what looks like tiny little fireflies swirling about, gold-ish or yellow in color with a bright white/silver defined border. They are so small but very noticeable in the right conditions.
Blood in my stool (fresh and old) for the last week and half.
Frequent muscle spasms in both legs, far more severe in my right leg.
Telangiectases on my nose and on the inside of my bottom lip.
Chest pain with deep breathes.
Intermittent testicular torsion.
Unintentional weight loss. (184.0 lbs to 152.0 lbs in about 2 months or less) Muscle loss in my legs mostly.
Tremendous gas production. I'm like a gas refinery before/during a "flare"
Ultrasound showed calcification in my prostate.
MRI showed slight mucousal thickening in the right maxillary sinus but an otherwise "normal scan with no previous scan for comparison"
X-ray (chest only) showed slight Scoliosis

I've pretty much been labeled a somatic from my first trip to the ER for cola colored urine the day before. I guess I caused the attending to have a bad day or I should have been wearing sweats and an Alabama football t-shirt instead of like I had some self-respect. Or he just didn't like me cause my labs showed very low platelets, low wbc and blood in my urine and he still stuck me with that dx and only that dx. Not very nice.


He apparently received letters from two of the other specialists I had seen (I was especially emotional in a couple visits) and started to butter me up for the conversion disorder diagnosis. He asked about anti-depressants and how I would feel if chronic urticaria was my final diagnosis and if that was the answer to all this. I told him I would take anti-depressants if that is what he thought I needed. I told him I hope that is all that it is. I hope all this stuff can be explained away as severe hives. That would be a massive relief.


He continued on about how he knows that I feel the pain and that it is real and this and that. Then I showed him a video of a 7 and a half minute episode of fasciculations in my leg that I was lucky enough to get on tape. Another video of the same thing but in my foot and forearm on the opposite side of my body. I brought a stack of photos of hair loss, rash, swelling/redness, contorted muscles, sores in my nose and my mouth.

So now I am not a malingerer but "a very interesting case" and I'm being referred to the Mayo Clinic to get sorted and see if I have both SLE and MS or anything else that might cause this ruckus in my life. Anti-depressants are off the table (for now) and I've been put on atarax and klonopin.

Thanks to the people who commented previously. Most of that info was immensely helpful in getting to this point.

If anyone has more knowledge bombs to drop on me, please do. Feel free to speculate, eat popcorn, crack jokes (they gotta be funny though) or tell me you're glad it's me and not you. Hah.

I'm just glad I'm going to become someone's temporary research project and get some answers, bad or good.

[lyndacarol]

I had my B levels, vit d, glucose, celiac, liver, kidneys, folate, full hep panel tested. All were either in nearly optimal range, function and neg for hep.

I did not see the actual number results for the vitamin B12 and vitamin D tests in your list. And what were the ranges used by your lab? I am sure you have them or can get them. You are so organized, so thorough.

The Mayo Clinic is a wonderful place, with talented and caring people. However, they are still human beings and can make mistakes. In the beginning when I had symptoms, but no diagnosis, I went to the Mayo Clinic in Minnesota, where I was tested thoroughly for 2 weeks. Ultimately, their diagnosis was "herniated cervical disc" and I underwent a cervical laminectomy there. The diagnosis was wrong; the surgery was unnecessary. My symptoms persisted; I was diagnosed with MS a year and a half later.

Neither my local doctors nor the Mayo Clinic doctors tested my vitamin D or B12 levels. In my opinion, these should be tested routinely (just as blood pressure, glucose, and cholesterol are).

You might discuss or even ask for the parathyroid hormone test (PTH) from your GP – or at the Mayo Clinic, if you will see them soon. PTH can be elevated for several reasons: low vitamin D levels can drive PTH up; PTH can be high (along with high serum calcium levels) when 1 of the 4 parathyroid glands is enlarged and pumping out too much PTH (hyperparathyroidism). This can result in many symptoms similar to those of MS.

http://journals.plos.org/plosone/articl ... dium=email

Temporal Relationship between Vitamin D Status and Parathyroid Hormone in the United States

Findings
Seasonal variation was observed for all genders and latitudes. 25(OH)D3 peaks occurred in September and troughs in March. iPTH levels showed an inverted pattern of peaks and troughs relative to 25(OH)D3, with a delay of 4 weeks. Vitamin D deficiency and insufficiency was common (33% <20 ng/mL; 60% <30 ng/mL) as was elevated iPTH levels (33%>65 pg/mL). The percentage of patients deficient in 25(OH)D3 seasonally varied from 21% to 48% and the percentage with elevated iPTH reciprocally varied from 28% to 38%. Patients with detectable 25(OH)D2 had higher PTH levels and 57% of the samples with a total 25(OH)D > 50 ng/mL had detectable 25(OH)D2.

[Scott1]

Hi,

Your Protein/Creatinine Urine ratio is out the top of the reference range. Your Creatinine level is seriously over the top. Both are indicative of a serious kidney problem. You have blood in your stools and traces in your urine. I have to wonder about the advice you are getting when that has been ignored. I think you need a nephrologist (kidney specialist) right now. Forget MS, get your kidneys looked at.

[DictatorDan]

My kidney function tests are being run again. I'm having to wait through the weekend for the results.

My glom filt rate was still 89.30 I think? I'm with you though, I'm concerned because my urine is still very foamy and my urination is decreased throughout the day and increases at night. I have to really push at times to get that stream going.

My guess is there will be a biopsy if the numbers come back elevated again.

My vitamin d 25 hydroxy was 36 ng/ml
I think this could still be part of the issue because I think that is on the low side of normal? You guys are very knowledgeable about these levels so let me know if I need to take some further action in regards to my vit d.

I do take vit D3 supplements daily and have for the last few years along with vit k, vit e, epa/dha, flax/fish oil. Also take a b complex.

My b12 cobalamin was 623 pg/ml (200-1100 pg/ml).
I recently found out my grandfather on my mom's side had pernicious anemia. But my dad is adopted so I am missing half of my family medical history.

I'm keeping myself grounded as far as expectations from mayo go. I know it likely will not be a wham bam thank you ma'am, here's your diagnosis and here's your treatment plan.

Just sort of excited because it looked like I was running out of options here.

I'm pretty sure I posted my t3 and t4 levels earlier. They looked to be at the very low end range of normal. I've been told that even low normal can still mean deficient. Anyone care to look at those and tell me what they think?

You guys are great, thank you for the info and advice.

One other test I left out was my C2 complement. It was 2.1 mg/dl(1.6-3.5 mg/dl). My C3 was also just above the bottom of the reference range.

The complement stuff is very esoteric, I don't know if low normal is indicative or if levels have to bottom out to indicate immune activation.