My story & intro

[Lynn56]

I was diagnosed last fall (2015). I was given the diagnosis of Relapsing remitting, but I think I am Primary progressive. Half of my big toe went numb 24 years ago and has never changed. I started having jolts in my left leg 7 years ago that gradually increased until they were every few steps on my walk to work. When the right half of my body below the neck became oddly sensitive to temperature, I went to my doctor, who tried a 10-day course of the antibiotic Amoxycillin. My jolts disappeared! They came back about 8 months later and have progressed slowly since and got much worse just before last Christmas. I think the antibiotics were responsible for the improvement, rather than a remission. I went to Vandy, but Dr. S refused to give me antibiotics, saying it wouldn't help. Since my functioning is so high, he said he would not treat me at all. My local Neuro had wanted me to take Copaxone - I said no. I have started the Wahls diet. If that doesn't help, I will try again to find a doctor to give me antibiotics.

[lyndacarol]

I was diagnosed last fall (2015). I was given the diagnosis of Relapsing remitting, but I think I am Primary progressive. Half of my big toe went numb 24 years ago and has never changed. I started having jolts in my left leg 7 years ago that gradually increased until they were every few steps on my walk to work. When the right half of my body below the neck became oddly sensitive to temperature, I went to my doctor, who tried a 10-day course of the antibiotic Amoxycillin. My jolts disappeared! They came back about 8 months later and have progressed slowly since and got much worse just before last Christmas. I think the antibiotics were responsible for the improvement, rather than a remission. I went to Vandy, but Dr. S refused to give me antibiotics, saying it wouldn't help. Since my functioning is so high, he said he would not treat me at all. My local Neuro had wanted me to take Copaxone - I said no. I have started the Wahls diet. If that doesn't help, I will try again to find a doctor to give me antibiotics.

Welcome to ThisIsMS, Lynn56. We are glad you found us.

Your symptoms are common to many conditions. In the course of your diagnosis with MS last fall, did your doctor test and rule out the other more likely possibilities, starting with testing for nutrient deficiencies? Did you have a vitamin D test? B-12 testing? Magnesium testing?

If these have not been done, it might be useful to request them from your doctor – don't take supplements before testing. It is a good idea to request your own copy of any test results – it is important to have the actual numbers.