Ocular migraines misdiagnosed?

[titus110]

How can I be sure it's an ocular migraine? I was diagnosed in 2005 and have had such eye trouble since.

[jmbanon]

I too was diagnosed with that and feel like it was false. Have you had any other symptoms??

[titus110]

Many. Bladder issues , leg & foot giving out. Weaknesses. Tingling. One lesion found in white matter in MRI

[jmbanon]

have you sought out a second opinion? Im trying to decide what my next move needs to be.

I hope you get some much needed answers!

[titus110]

I'm in the process of deciding what to do to and what questions to ask even !!

[lyndacarol]

I'm in the process of deciding what to do to and what questions to ask even !!

If you are open to suggestions, here are mine:

If you have not had nutrient testing, I suggest you ask your GP for nutrient testing (and request your own copy of your test results – it is important to have the actual test number results).

Begin by asking for the "25-hydroxy D" test. Over 1/2 the world's population is deficient in vitamin D.
Then, ask for the initial testing for a possible vitamin B12 deficiency. Initial testing usually includes these 4 tests: #1 a serum B12 test, #2 RBC folate test, #3 serum homocysteine test, and #4 a methylmalonic acid test. The Framingham Offspring Study suggests 40% of Americans have suboptimal B12. Any person at any age can develop B12 deficiency.
Other useful nutrient tests to ask for include tests for magnesium and zinc levels.

Deficiencies in any of these areas can result in neurological symptoms.

Specific to B12…I recommend this 52-minute documentary featuring Sally M. Pacholok, RN, BSN, & Jeffrey Stuart, D.O. (authors of the book, Could It Be B12? An Epidemic of Misdiagnoses and their second book, What's Wrong with My Child?); Lawrence Solomon, M.D., hematologist with Yale Medical School; Ralph Green, M.D., hematologist at UC Davis; and Donald Jacobsen, PhD, at the Cleveland Clinic (Homocysteine Research Lab).



Diagnosing and Treating Vitamin B12 Deficiency: "Everything You Want Your Doctor to Know about Vitamin B12"

@25:38 B12 deficiency causes uro-genital nerve damage (urinary incontinence).

@25:50 On-screen statement: "It is medically negligent not to rule out B12 malabsorption in symptomatic patients."

(@51:00)

Signs and Symptoms of B12 Deficiency:
Tingling/Numbness
Sore Mouth or Tongue
Fatigue
Anxiety
Irritability
Depression
Weakness
Abnormal Gait
Mental Impairment
Visual Disturbances
Migraine
Orthostatic Intolerance
Chest Pain
Tachycardia
Difficulty Breathing
Edema
Elevated Homocysteine
Elevated MMA
Stomach and G.I. Problems
Blood Abnormalities
Neurological Lesions
Limb Movement Disorders
Psychosis
Thoughts of Suicide

[trixie36]

I am going thru similar thing. I am very skeptical with my current Neuro's dx of 'persistent silent migraine" cusing visual symptoms and severe neurological symptoms. (were talking months straight) Neuro also said it does not explain all my symptoms and he is stumped. I sought a second opinion from a large top notch university teaching hospital and they reviewed my records and are sending me to their MS Clinic next month. I've learned that changes in migraine symptoms (like suddenly having aura when you never did before, etc) is a known symptom of MS. This page also have some links to NHS studies abt this fact. http://www.healthcentral.com/multiple-s ... -headache/

[lyndacarol]

I am going thru similar thing. I am very skeptical with my current Neuro's dx of 'persistent silent migraine" cusing visual symptoms and severe neurological symptoms. (were talking months straight) Neuro also said it does not explain all my symptoms and he is stumped. I sought a second opinion from a large top notch university teaching hospital and they reviewed my records and are sending me to their MS Clinic next month. I've learned that changes in migraine symptoms (like suddenly having aura when you never did before, etc) is a known symptom of MS. This page also have some links to NHS studies abt this fact. http://www.healthcentral.com/multiple-s ... -headache/

Welcome to ThisIsMS, trixie36.

If a vitamin D test (the "25-hydroxy D" test) has not been done, I encourage you to ask for it when you see a doctor at the MS clinic next month.(Also, request your own copy of test results – it is important to have the actual numbers.)