TOVAXIN ROLE CALL

ewizabeth · Post by **ewizabeth** » Fri Feb 09, 2007 4:31 pm

I have to get the appointment results from the hematologist from December 2005. Otherwise it may not seem ethical to keep me in the trial with a questionable blood condition looming. The hematologist told me he did not think it was leukemia or anything else serious at the time. The $100,000 question is, will I get him to give me those records.

Lyon · Post by **Lyon** » Fri Feb 09, 2007 4:38 pm

ewizabeth wrote:I have to get the appointment results from the hematologist from December 2005. The $100,000 question is, will I get him to give me those records.

Do like we do. Go there and stand and wait right in front of the receptionist window.

If they make you wait too long start talking loud and obviously upset in front of the other patients. They'll put some things aside and get your records for you.

Bob

ewizabeth · Post by **ewizabeth** » Fri Feb 09, 2007 5:02 pm

I'd love to do that but his main office where the records are is somewhere near Chicago.

I might call them and TELL them I'm going to do that, and maybe that will help them to find the records or get the doctor to produce them.

Lyon · Post by **Lyon** » Fri Feb 09, 2007 5:07 pm

ewizabeth wrote:I might call them and TELL them I'm going to do that, and maybe that will help them to find the records or get the doctor to produce them.

So what do you think the problem is? Don't they have to give you your records when you ask for them? Who did you make your request for the records to, your GP or actually this guy's office?
Bob

ewizabeth · Post by **ewizabeth** » Fri Feb 09, 2007 5:19 pm

I have spoken to nurses at his satellite office 5 times. I WILL get those records one way or the other. I will kill them with kindness.

They will not rest until they send me the records.

Lyon · Post by **Lyon** » Sat Feb 10, 2007 9:20 pm

Very good.....but sometimes kindness doesn't work and you have to get NASTY!!

ewizabeth · Post by **ewizabeth** » Sat Feb 10, 2007 9:34 pm

Bob,

I rarely have to resort to being nasty.

I'm not above it though, and I've come this far, I'd like to take Tovaxin in the trial. If not though, I promise you, I'll be ok. I've had worse disappointments in life.

Lyon · Post by **Lyon** » Sat Feb 10, 2007 10:19 pm

ewizabeth wrote:If not though, I promise you, I'll be ok. I've had worse disappointments in life.

Well, the 23rd is a ways away and hopefully they'll get you the paperwork you need in time

Bob

hmtucker · Post by **hmtucker** » Wed Feb 21, 2007 9:34 am

Howdy all,

I just got the call this morning that I will go in for my first treatment/placebo shots on March 22. That means that the time between blood procurement (Dec. 11) and first shot will have been 14.5 weeks.

Take care,
Mike

ewizabeth · Post by **ewizabeth** » Wed Feb 21, 2007 10:14 am

hmtucker wrote: I just got the call this morning that I will go in for my first treatment/placebo shots on March 22. That means that the time between blood procurement (Dec. 11) and first shot will have been 14.5 weeks.

Hi Mike,

Good luck! And thanks for checking in! I hope you get the real thing and have great results.

ewizabeth · Post by **ewizabeth** » Wed Feb 21, 2007 10:19 am

Lyon wrote:Well, the 23rd is a ways away and hopefully they'll get you the paperwork you need in time

Only two days now. I did get the paperwork from the hematologist, and I didn't have to be stern toward anybody, thank goodness.

I had an MRI, and have the results of that to take to my doctor. He wanted to see if anything new was going on in the interim.

I think I'll have a neuro exam as well as drawing the blood again. I'll check in as soon as I know something. Wish me luck!

[Although, last night I had a dream that the doctor told me to start taking the Copaxone again...

]

flipflopper · Post by **flipflopper** » Wed Feb 21, 2007 10:41 am

Mike, I wish you the best of luck for your first treatment next month!

Ewizabeth, I’m happy to hear that you finally obtained the required documents from the hematologist. My fingers are crossed for you and I really hope that you will test positive for MRTC’s this time!

Lyon · Post by **Lyon** » Wed Feb 21, 2007 12:01 pm

Thanks for the info Mike. 14.5 weeks! Jeez, my wife's got quite a wait left in that case (gone through procurement, waiting on treatment/placebo). In our case procurement was Jan. 24 so that means dosing could be mid to late May??

At any rate, I wish the real thing upon you!

Ewizabeth, you know we're rooting for you!

Bob

ewizabeth · Post by **ewizabeth** » Wed Feb 21, 2007 5:32 pm

Thanks Flip and Bob.

sh8un · Post by **sh8un** » Thu Feb 22, 2007 11:26 am

Good luck guys...can't wait until we are rid of this stupid disease.
NN