Pre-Diagnosis Anxiety

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.
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DrowningNotWaving
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Pre-Diagnosis Anxiety

Post by DrowningNotWaving »

Hello all,

I am just writing this as an outlet while waiting for my neuro appointment in April.

For the past nine-ish months I have been struggling with odd sensation in my right arm and for less time my leg. It is almost like a pins and needles numbness with coordination loss. I notice in the summer I was dropping objects at work and my leg would trip me up. Kinda funny when it started, now not so much. In December I had a bit of eye pain with aversion to light and slight blurriness which cleared up in two and a half weeks. In January I had a migraine on one side of my head from the base of my skull with pains into my eye that lasted for 13 days.

In the summer I had a CT scan followed by a CT with contrast which showed no lesions.

In 2007 I had suffered from partial seizures on my right side which went away after about a year. I never received a diagnosis as I was young and foolish and never went for my follow up care as my symptoms subsided. In that time I had an MRI which I never had a follow up too so I am unsure of the results.

It has been a rough little while and I am just tired and unsure where to turn. I try not to complain as I don't want my husband to worry but I am definitely noticing the weakness in my leg more, I fell off a ladder at work last week and it kinda hit home that I am not 100%.

Anyone else go through something like this?

Thanks for listening!
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jimmylegs
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Re: Pre-Diagnosis Anxiety

Post by jimmylegs »

hi and welcome to the forum :)
i was dx'd over 10 yrs ago but do remember the waiting game anxiety, even though my process was relatively speedy.
if no docs to date have sent you for preventive health-and-wellness care via a dietitian or similar, may be something to consider looking into while you wait for your april appointment!
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DrowningNotWaving
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Re: Pre-Diagnosis Anxiety

Post by DrowningNotWaving »

Thank you! I have had a visit with a dietitian in the past. :)
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jimmylegs
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Re: Pre-Diagnosis Anxiety

Post by jimmylegs »

excellent did they have any sage advice? i must confess when i went to a dietitian she said my questions were over her head :S lol
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DrowningNotWaving
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Re: Pre-Diagnosis Anxiety

Post by DrowningNotWaving »

She just had me up my calorie count and add a bit of variety. Nothing to extreme. I eat pretty healthy and balanced to start.
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jimmylegs
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Re: Pre-Diagnosis Anxiety

Post by jimmylegs »

sounds good :) because you mention anxiety, did the dietitian touch on anything about daily intake of dense healthy sources of magnesium at all?
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jimmylegs
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Re: Pre-Diagnosis Anxiety

Post by jimmylegs »

related - you may or may not find this post an interesting read
http://www.thisisms.com/forum/undiagnos ... ml#p246503
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lyndacarol
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Re: Pre-Diagnosis Anxiety

Post by lyndacarol »

DrowningNotWaving wrote:I am just writing this as an outlet while waiting for my neuro appointment in April.

For the past nine-ish months I have been struggling with odd sensation in my right arm and for less time my leg. It is almost like a pins and needles numbness with coordination loss. I notice in the summer I was dropping objects at work and my leg would trip me up. Kinda funny when it started, now not so much. In December I had a bit of eye pain with aversion to light and slight blurriness which cleared up in two and a half weeks. In January I had a migraine on one side of my head from the base of my skull with pains into my eye that lasted for 13 days.

In the summer I had a CT scan followed by a CT with contrast which showed no lesions.

In 2007 I had suffered from partial seizures on my right side which went away after about a year. I never received a diagnosis as I was young and foolish and never went for my follow up care as my symptoms subsided. In that time I had an MRI which I never had a follow up too so I am unsure of the results.

It has been a rough little while and I am just tired and unsure where to turn. I try not to complain as I don't want my husband to worry but I am definitely noticing the weakness in my leg more, I fell off a ladder at work last week and it kinda hit home that I am not 100%.
Welcome to ThisIsMS, DrowningNotWaving.

You have listed your location as Canada. Are you aware of The VitaminD Society (http://www.vitamindsociety.org/)

About Us (http://www.vitamindsociety.org/about_us.php)
The Vitamin D Society is a Canadian non-profit group organized to:

Increase awareness of the many health conditions strongly linked to vitamin D deficiency.
Encourage all Canadians to be proactive in protecting their health and have their vitamin D blood levels tested annually.
Fund valuable vitamin D research.

This Affects Everyone!
97 percent of Canadians are vitamin D deficient at some point in the year‚ according to University of Calgary research. Worldwide‚ an estimated 1 billion people don’t get enough of "the sunshine vitamin".

Get Your Vitamin D Levels Tested!
Have your physician administer a calcidiol test (also know as a 25-hyrdoxyvitamin D test). More important than your daily intake of vitamin D are your actual vitamin D blood levels. Optimal vitamin D blood levels are between 100 nmol/L to 150 nmol/L according to 40 of the top Vitamin D researchers at GrassrootsHealth.


Since all your symptoms can result from vitamin D deficiency (as well as from many other conditions), I second the suggestion from The Vitamin D Society to ask your physician (either ask your PCP now while you wait for your neuro appointment; or ask the neuro when you see him in April) for the vitamin D blood test called "25-hydroxy D," if you have not already had this test in the last year. Also, request your own copy of the test results so that you have the actual numbers.
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jimmylegs
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Re: Pre-Diagnosis Anxiety

Post by jimmylegs »

keeping in mind of course that a d3 test will come back unnecessarily low, if magnesium status is also low when the test is done.
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