Disappearing Lesions
Re: Disappearing Lesions
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
Re: Disappearing Lesions
Re: Disappearing Lesions
check out zyklon's tale
http://www.thisisms.com/forum/introduct ... 28969.html
reports on progress since april (from outside intro thread)
http://www.thisisms.com/forum/general-d ... ml#p250490
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
Re: Disappearing Lesions
The paper my doctor gave me says "he can't even take one step without side stepping with tandem walking." I can see a 3 in pyramidial/brainstem axis. and a 4 for my sensory axis. Other than that 2's and 1's. Now this is concerning the neurologist had told me RRMS, but I see the word progressive a couple of times though not directly with the word MS. Yeah the 12th I start Betaseron, I already registered on the phone and internet. Yay me. Well I am going to go out on a limb here and say that once I have a cane I will move up to a 6.0 Yeah well this cheered me right up a little dose of reality in my little world where MS does not exist.
Re: Disappearing Lesions
Re: Disappearing Lesions
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
Re: Disappearing Lesions
Serum CRP and ferritin may be indicators for a relapse but you need to know your baselines. My CRP was 25 times more than my baseline and ferritin was at least 10 times over the range. A simple infection can increase your CRP and increased iron intake can increase your ferritin. So you can not trust these two results alone.
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!
Re: Disappearing Lesions
Vitamin D
Zinc
Magnesium
Iron
B12
The iron because of the red blood cells be off on my last CBD
Re: Disappearing Lesions
1. serum cobalamin (ie serum B12), (for this one, you want to know your status specifically, in relation to a *min* target of 500 pg/ml or 370 pmol/L)
2. serum 25(OH)vitamin D3, (targeting min 40 ng/mL aka 100 nmol/L to start, then higher within reason, as long as all co-factors are carefully monitored)
3. serum ferritin???? and/or???? see questions below (if serum ferritin, targeting 80-100 ng/mL - i don't think i have worked on targets for any of the other iron panel tests)
4. serum magnesium, (as you know, i don't buy the 'that test is no good' bs especially for ms patients per all that research shared earlier) and your target with serum mag is 2.3-2.7 mg/dL)
5. serum zinc (aiming for 120 µg/dL or 18 µmol/L)
i have the same question re the iron testing. it doesn't make sense to me to just test serum iron.
it would make more sense if you were either
a. testing serum ferritin
b. running a more comprehensive panel of iron tests (plural)
https://labtestsonline.org/understandin ... /tab/test/
or c. both a + b.
all the targets shown for items 1-5 above are much more health-oriented than the overall reference or 'normal' range, which idiotically includes values for sick people. figuratively, the gumps and the einsteins each hanging out at their respective ends of the bell curve, but still under the same curve. for this reason it will be very wise to obtain your own copy of the specific results. speaking of which, did you have the actual result for hemoglobin? or just 'low'? the target for that one is at least 13.
hope that helps!
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
Re: Disappearing Lesions
Saturday 12/02 Sunday 12/03
WBC Count 6.2 X 10*3/uL 4.5-11.0 Final WBC Count 15.9 X 10*3/uL H 4.5-11.0 Final
RBC Count 4.64 X 10*6/uL L 4.70-6.10 Final RBC Count 4.44 X 10*6/uL L 4.70-6.10 Final
Hemoglobin 14.0 g/dL 14.0-18.0 Final Hemoglobin 13.3 g/dL L 14.0-18.0 Final
Hematocrit 42.9 % 42.0-52.0 Final Hematocrit 40.6 % L 42.0-52.0 Final
Platelet Count 168 X 10*3/uL 150-450 Final Platelet Count 147 X 10*3/uL L 150-450 Final
MPV 9.9 fL H 6.5-9.5 Final MPV 10.1 fL H 6.5-9.5 Final
ABS Neutrophils 3.1 X 10*3/uL 1.5-8.0 Final ABS Neutrophils 12.2 X 10*3/uL H 1.5-8.0 Final
Of course there is more to the bloodwork but these stand out. I hope that it is what you were asking about. Also my intake of B12 is 500mcg. Do you know about what I should be taking? And yes I googled it I found some German guy talking about up to 3,000 but I could not find the FDA recommended amount other than it is necessary and what foods have it.

Re: Disappearing Lesions
make sure, once you have your test requisition, to take a good week or two break from all supplements before having the blood drawn.
b12 dri is low, around 2-3 ug/d
https://www.canada.ca/en/health-canada/ ... -2005.html
but that recommendation is only associated with keeping levels above about 200 in serum.
whether action might be needed will depend on your result. optimally you'll be getting what you need from healthy whole food sources. related link from a fave site:
http://www.whfoods.com/genpage.php?tnam ... #foodchart
i personally had eaten *not one* of the foods on that list for a good 15 yrs prior to dx. as for the single one that i would have eaten, i certainly wasn't emphasizing mushrooms and never consumed them in 1c. servings, never mind *daily* 1c servings!! in fact, 11 yrs post dx i think this may be the first i've heard that you can get b12 from mushrooms; will be looking for more detail on that.
what form of b12 is your daily 500mcg?
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
Re: Disappearing Lesions


WBC Count 6.2 X 10*3/uL 4.5-11.0 Final (Day 1)
WBC Count 15.9 X 10*3/uL H 4.5-11.0 Final (Day 2)
It was during what I believe to be an attack. Now I know an attack does not show up on bloodwork my doctor thinks it is from the stress and pain of the attack. They are these incredibly painful events that last 4 to 5 days. They changed my pain scales. Yes plural one musculoskeletal pain and the other nerve pain. They are two completely different types of pain so you really can not compare the two.
Re: Disappearing Lesions
i will be extremely interested to see your upcoming nutritional bloodwork results, and whether they will be consistent with your other testing and symptoms.
if the doc is receptive, testing wish list could include serum copper (i don't care about ceruloplasmin) and serum selenium. an interesting 'nice to have' would be serum uric acid. none of these last three outrank any of the others discussed.
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
Re: Disappearing Lesions
Iron 91 ug/dL 65-175 Final
Total Iron Binding Capacity 293 ug/dL 228-460 Final
Iron Saturation Percent 31.06 % saturation 15.00-50.00 Final
Transferrin 241.0 mg/dL 204.0-354.0 Final
Folate 12.8 ng/mL Final
Vitamin B12 516.0 pg/mL 200.0-944.0 Final
Ferritin 47.2 ng/mL 22.0-322.0 Final
Magnesium 2.2 mg/dL 1.5-2.4 Final
So I don't have a severe vitamin deficiency, no cancer, HIV, diabetes, etc..... So that leaves MS as the only possible reason for my horribly awful f**in painful I want to die nerve pain. Lyrica at max dose (200mg X3 a day) still left some residual pain so I am back on Gabapentin 1200mg 3X a day. My doctor won't up that to 1600mg 3X a day until the Betaseron has had a chance to fully kick in and he can see if it is working (7 weeks to get a full dose).
Re: Disappearing Lesions
b12 is borderline at 516 pg/ml. probably fluctuates above and below that optimal cut-off, but not too shabby.
i haven't looked at iron panel results in ages so can't comment at any finer grain than that provided by given reference ranges.
this healthy controls number is taken from one small study looking at health and disease in older folks so not terribly applicable but:
7.14 ± 4.04 ng/mL
so, 12.8 ng/ml looks solid at first whiff. weird that your lab provides no reference range on that one though.
ferritin i like to keep in the 80 ballpark personally. used to be super low all the time.
you local lab's reference range for magnesium looks as bad as anywhere else. if labs worked at a finer grain to describe an optimal serum range 2.3-2.7 mentioned previously, your level would have flagged low. 2.2 is around the level i had when experiencing shortness of breath and a bunch of other challenges (pain not a feature)
and what was serum d3 result iima? and serum zinc? are those results pending?
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
-
- Similar Topics
- Replies
- Views
- Last post
-
-
There is also demyelination outside the lesions
by frodo » Thu Oct 24, 2019 8:03 am » in MS Etiology and Pathogenesis - 0 Replies
- 249 Views
-
Last post by frodo
Thu Oct 24, 2019 8:03 am
-
-
- 5 Replies
- 1135 Views
-
Last post by jimmylegs
Wed Oct 10, 2018 7:28 am
-
- 11 Replies
- 785 Views
-
Last post by NHE
Tue Feb 12, 2019 6:21 pm
-
- 0 Replies
- 722 Views
-
Last post by frodo
Mon Jul 23, 2018 10:50 am
-
- 0 Replies
- 156 Views
-
Last post by frodo
Wed Jun 19, 2019 4:26 am
-
- 0 Replies
- 197 Views
-
Last post by MsK
Wed Aug 21, 2019 3:27 pm
-
- 5 Replies
- 1064 Views
-
Last post by jimmylegs
Fri Sep 07, 2018 1:44 pm
-
-
Smouldering lesions can be seen on MRI
by frodo » Tue Sep 24, 2019 1:34 am » in MS Etiology and Pathogenesis - 0 Replies
- 187 Views
-
Last post by frodo
Tue Sep 24, 2019 1:34 am
-
-
-
Evolution of the lesions during three years
by frodo » Mon Jun 25, 2018 11:48 pm » in MS Etiology and Pathogenesis - 1 Replies
- 988 Views
-
Last post by ElliotB
Tue Jun 26, 2018 4:47 am
-