Hi, Could We All Introduce Ourselves on this thread?
new
Hi. My name is Linda and I am not dx but hope to have some answers the end of the month after my second MRI of my brain. 2 lesions showed 6 months ago but inconclusive for MS. I'm 57 and this seems to be a problem for diagnosing, lesions could be my ageing brain. Oh well, guess we all go through that. Have been reading this site for awhile but did not want to enter until I knew if I had MS. Now feel I do. Reading about other people and how they cope has helped. The waiting has been the hardest. Thank you for being there.
introductions
hello,
I am bruintje, living in Belgium.
My partner has primary progressive ms .
I want to say that I am glad to have found the way to this board, it gives a lot of good information - and really nice people here.
Not really knowing what to say - we are both 40-ers - and we loved to travel but I guess that will be a bit more difficult now.
Oh well, we do not have the money now anyway - since I lost my job and my partner is not able to work any more.
But, trying to keep the good faith and have a big
to all what life offers us. Little things, like a ray of sun, a simple meal and some humour.
I am posting for my partner because he does not know English, and he is not used to work with PC's. He was a very good technician, always worked with his hands, but when balance and coördination are lost....
To all : never give up - and enjoy the little things.
I am bruintje, living in Belgium.
My partner has primary progressive ms .
I want to say that I am glad to have found the way to this board, it gives a lot of good information - and really nice people here.
Not really knowing what to say - we are both 40-ers - and we loved to travel but I guess that will be a bit more difficult now.
Oh well, we do not have the money now anyway - since I lost my job and my partner is not able to work any more.
But, trying to keep the good faith and have a big
to all what life offers us. Little things, like a ray of sun, a simple meal and some humour.I am posting for my partner because he does not know English, and he is not used to work with PC's. He was a very good technician, always worked with his hands, but when balance and coördination are lost....
To all : never give up - and enjoy the little things.
Hi Bruintje and partner who are 40ish....
I'm 50ish..better than giving my age.
I like it, just like you say, enjoy the little things and never give up hope. 
I'm glad you found This is MS too and I can't believe no one's welcomed you yet.
I guess that happens. I'm just back to my PC and trying to catch up, always lots to learn and ponder.
I must say under the circumstances you described your perspective is marvelous. Maybe your partner will give the computer a try some day...given that I'm 50ish I wasn't born and raised with it so it's a challenge for me too, but I find everyone has been very tolerant of my abilities and lack thereof.
Do take care and welcome.
Sharon
I'm 50ish..better than giving my age.
I like it, just like you say, enjoy the little things and never give up hope. I'm glad you found This is MS too and I can't believe no one's welcomed you yet.
I guess that happens. I'm just back to my PC and trying to catch up, always lots to learn and ponder.I must say under the circumstances you described your perspective is marvelous. Maybe your partner will give the computer a try some day...given that I'm 50ish I wasn't born and raised with it so it's a challenge for me too, but I find everyone has been very tolerant of my abilities and lack thereof.
Do take care and welcome.
Sharon
Welcome Bruintje
I don't know how I missed your post until now, but you are both very welcome.
I too am a PPMSer and agree with your humour policy It's the only way to keep sane. I think smiling and laughter are the best medicine and can help us all conquer this trouble, better than any medicine
Keep smiling, and never give up hope 
Chris P
I don't know how I missed your post until now, but you are both very welcome.
I too am a PPMSer and agree with your humour policy
It's the only way to keep sane. I think smiling and laughter are the best medicine and can help us all conquer this trouble, better than any medicine Keep smiling, and never give up hope
Chris P
Hi guys and gals,
thank you for the warm welcome.
It is nice to know that you are not alone with this disease - and that we can share lots of things.
Some jokes, some new treatments, some new hopes - some experiences - some disappointments - some things that doesn't work.
Well, last WE we (my MS partner and me) went to some kind of congress - in Belgium. Very interesting, and a bit disappointing too. The topic of the congress was a celebration of "25 years of scientific research regarding ms". Very nice to hear some lectures, and to talk to other people.
Oops - what hit me, was the "learned helplessness" of some people - I am not talking about their physical disability - I am talking about their giving up.
And the blind belief in their neurologists. Sure I think the neuros do the best they can - and they are doing a great job - but, nobody refrains us from doing a little research for ourselves, not? And thinking outside the box? Ok, maybe I am privileged - I am a chemist (university level), so I can understand some bio-neuro-processes. And I know 1 thing for sure :
NEVER give up - ok, that might be my "bias" as a researcher.
Ok thanks - and I am REALLY happy to have found such an informative and nice website - and a big thanks to all the ones who still find a way to post - even if they might not feel very well.
Nah, I am not that religious - sure yes spiritual. But I would say; my prayers are with all of you.
Enough for now -- till later
thank you for the warm welcome.
It is nice to know that you are not alone with this disease - and that we can share lots of things.
Some jokes, some new treatments, some new hopes - some experiences - some disappointments - some things that doesn't work.
Well, last WE we (my MS partner and me) went to some kind of congress - in Belgium. Very interesting, and a bit disappointing too. The topic of the congress was a celebration of "25 years of scientific research regarding ms". Very nice to hear some lectures, and to talk to other people.
Oops - what hit me, was the "learned helplessness" of some people - I am not talking about their physical disability - I am talking about their giving up.
And the blind belief in their neurologists. Sure I think the neuros do the best they can - and they are doing a great job - but, nobody refrains us from doing a little research for ourselves, not? And thinking outside the box? Ok, maybe I am privileged - I am a chemist (university level), so I can understand some bio-neuro-processes. And I know 1 thing for sure :
NEVER give up - ok, that might be my "bias" as a researcher.
Ok thanks - and I am REALLY happy to have found such an informative and nice website - and a big thanks to all the ones who still find a way to post - even if they might not feel very well.
Nah, I am not that religious - sure yes spiritual. But I would say; my prayers are with all of you.
Enough for now -- till later
intro
hello all
saddled with ppms,hep c, heavy metals,herniated discs etc.
ms,als,pps,parkinsons to me, they are just symtoms of ?????
not individual diseases
was self-employed 99% of my earning time
into getting to the bottom of this ppms
live alone on vancouver island
have had minor positive responces from my research
be weller folks
nps
saddled with ppms,hep c, heavy metals,herniated discs etc.
ms,als,pps,parkinsons to me, they are just symtoms of ?????
not individual diseases
was self-employed 99% of my earning time
into getting to the bottom of this ppms
live alone on vancouver island
have had minor positive responces from my research
be weller folks
nps
Hi all
Great site for information exchange, and since I'm new I'm going
to ask some ask some open ( stupid ?) questions, because now I'm
grasping at straws.
Background:
male 52, dxd 94 with MRI w/ SPMS , started w/ symmetral, baclofen and zanoflex to aid fatigue and spasidity; new neuro in 99 agreed to try and
add Avonex enen though no guarantee to help SPMS.Started taking vita d3 @ 1000 iu day working up to 4000.
Question:
does anyone have any experience on adding an antibiotic to the above
mix? My GP is willing to consider anything reasonable but I'm
curious about the possible interactions of the drugs.
Great site for information exchange, and since I'm new I'm going
to ask some ask some open ( stupid ?) questions, because now I'm
grasping at straws.
Background:
male 52, dxd 94 with MRI w/ SPMS , started w/ symmetral, baclofen and zanoflex to aid fatigue and spasidity; new neuro in 99 agreed to try and
add Avonex enen though no guarantee to help SPMS.Started taking vita d3 @ 1000 iu day working up to 4000.
Question:
does anyone have any experience on adding an antibiotic to the above
mix? My GP is willing to consider anything reasonable but I'm
curious about the possible interactions of the drugs.
-
RevLeonidas
- Family Member
- Posts: 34
- Joined: Tue Nov 02, 2004 3:00 pm
I'm just a name
Some say that one alias is as good an another, but when it's a fiction-within-fiction product, what "who" could be a better representation of an ordinary guy?
In some story that I've studied entirely too much, there is this narrator guy who says that he once "...inquired after [a] friend's friend, Leonidas W. Smiley, as requested to do, and I hereunto append the result. I have a lurking suspicion that Leonidas W. Smiley is a myth..."
--Mark Twain The Notorious Jumping Frog of Caleveras County.
******
Fake name or not, I really am a patient who has MS, and anything, and everything, I discuss about my health and the physiological condition called MS, is the stuff that comes from the mind, heart, and sense-of-humor of an ordinary gimp.
In some story that I've studied entirely too much, there is this narrator guy who says that he once "...inquired after [a] friend's friend, Leonidas W. Smiley, as requested to do, and I hereunto append the result. I have a lurking suspicion that Leonidas W. Smiley is a myth..."
--Mark Twain The Notorious Jumping Frog of Caleveras County.
******
Fake name or not, I really am a patient who has MS, and anything, and everything, I discuss about my health and the physiological condition called MS, is the stuff that comes from the mind, heart, and sense-of-humor of an ordinary gimp.
new here :)
Ok I am slow to post my newbie post. I have been poking around on the site for a few months, and finally joined and now am finally posting on the boards a little.
I am a 39yr married mother of 2 boys in KS. I was diagnosised in March of 2000, just days before my youngest's first birthday. I am currently on Copaxone and Baclofen, use to be on many other symptom management drugs but had a great summer and got myself off them all. Had a replase a couple of months ago and broke down for help with the spaticity.
For the most part I am a SAHM, well ok we do not stay home alot ;) Homeschooling the boys keeps me busy and on the go, but MS keeps me in check if I get too busy. In my spare time I dabble ebay selling books and stuff to declutter the house. I was working for a website when I got diagnosised but that proved to be too much and I had to give it up.
Monica
I am a 39yr married mother of 2 boys in KS. I was diagnosised in March of 2000, just days before my youngest's first birthday. I am currently on Copaxone and Baclofen, use to be on many other symptom management drugs but had a great summer and got myself off them all. Had a replase a couple of months ago and broke down for help with the spaticity.
For the most part I am a SAHM, well ok we do not stay home alot ;) Homeschooling the boys keeps me busy and on the go, but MS keeps me in check if I get too busy. In my spare time I dabble ebay selling books and stuff to declutter the house. I was working for a website when I got diagnosised but that proved to be too much and I had to give it up.
Monica
Monica