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I have been on LDN for 6 months. I have had MS for about 23 years. Did Copaxone for 6.5 yrs and then reacted badly and had to stop. I had just found out about LDN and started it 6 months ago. Initially it did disturb my sleep for about 8 days. That first 8 days I was very sleepy and napped alot. After the first week I Then I began to sleep, I mean really sleep for the first time in about 20 years. After about two weeks I felt an overall strenght gain and stopped dragging my right leg. Spastic Bladder problems corrected in about 5 months. I no longer have pain. I am much more heat tolerant. Overall a feeling of well being. I will stay with LDN until there is a cure. I have notified 22 support groups in my state about it because I feel it can help many other MSers.
I live in Portland, Oregon and am currently participating in the Tovaxin study. Prior to this I was on Copaxone, and Avonex neither of which did anything for me. I've been interested in trying out LDN but can't find a doctor willing to prescribe it to me here. Any advice, thoughts, or recommendations would be greatly appreciated.
I was able to link to a resoure to find a doctor locally thru this web site http://www.ldners.org/resources.htm or it may have been www.marybradleybooks.com(she wrote "up the creek with a paddle" or another great website on ldn is www.ldninfo.org Sorry I did not have the exact web where I had printed out a list of CAM doctors in my area..