This Is MS Multiple Sclerosis Knowledge & Support Community

Loobie · Post by **Loobie** » Thu Dec 13, 2007 9:51 am

Chris,

It sucks you are having an excacerbation, but the way you keep your chin up is to be admired.

Lew

chrishasms · Post by **chrishasms** » Thu Dec 13, 2007 10:12 am

Lyon · Post by **Lyon** » Thu Dec 13, 2007 12:27 pm

chrishasms · Post by **chrishasms** » Thu Dec 13, 2007 3:11 pm

HiCy · Post by **HiCy** » Sun Dec 16, 2007 8:13 am

Chris,

Well I had to do some catching up on the posts. You guys have been busy writting.

I talked to JH about your case when I was there on Wed. They couldn't say much. (patient confidentiality) They did say that they do have your info and it is being reviewed. I am not really sure what they are looking for in regards to giving you a green light or not so I would just hang in there and look for them to get back to you after the new year. If you do not hear back from them by then I would start emailing to see what the delay might be other than it being the Holidays.

In regards to some of the questions I have read. Cytoxan and cyclophasimide are the same thing. Only in the this protocol you get four days of really high dose. An enzyme on your stem cells protects them from the Chemo so everything but the stemcells dies and they are able to jump start your immune system again through the use of nupogin.

Revimmune is the fancy lable that Accentia put on this protocol when they liscensed it from JH. They are funding the Phase III trial that is to begin next year to bring this theropy into the mainstream.

Doctors have prescribed cytoxan for MS for some time. It has been used like Novatrone. A simple immunosupressant that nocks the immunsytem down. Revimmune or Hi dose cytoxan is a whole different ball of wax.

Hang in there chris and I hope you feel better. I am sure they will be in touch shortly.

HiCy

toasterpastery · Post by **toasterpastery** » Sun Dec 16, 2007 1:12 pm

Chris... you're an animal. Rebooting sounds like a good idea. But that's no joke. Baby's get 7 colds per year! You're immune system will suck, but maybe that's the point.

I hate to point this out, but when I reboot my old POS win 98 machine the thing is still jacked up when it loads windows. Let just say a virus get's your immue system out of whack so that it attacks MSers. Who's to say that same virus does not stay in your body and retrigger your immue system to get jacked up again?

chrishasms · Post by **chrishasms** » Mon Dec 17, 2007 4:27 pm

chrishasms · Post by **chrishasms** » Mon Dec 17, 2007 4:28 pm

chrishasms · Post by **chrishasms** » Thu Dec 27, 2007 1:26 pm

Lyon · Post by **Lyon** » Thu Dec 27, 2007 2:54 pm

chrishasms · Post by **chrishasms** » Thu Dec 27, 2007 3:51 pm

Lyon · Post by **Lyon** » Thu Dec 27, 2007 5:34 pm

chrishasms · Post by **chrishasms** » Fri Dec 28, 2007 10:56 am

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