Anyone here not taking any MS Meds?

tt89 · Post by **tt89** » Sat Nov 22, 2008 1:13 pm

Is there anyone here recently diagnosed like within 1-3 years that has never taken MS meds or did and stopped? If so, please send me a PM.

Thanks So Much

Terry · Post by **Terry** » Sun Nov 23, 2008 11:23 am

I pm'ed you tt89.
Terry

notasperfectasyou · Post by **notasperfectasyou** » Sun Nov 23, 2008 4:29 pm

Don't know if you count ABX. It's not a CRAB or Novantrone. Ken

ssmme · Post by **ssmme** » Tue Nov 25, 2008 7:00 am

I'm not sure I fit your description either. I did Tovaxin but have never done anything else besides a round of iv steroids and a dose pack.

Terry · Post by **Terry** » Tue Nov 25, 2008 6:12 pm

So what were you thinking tt89? Are you still off your meds?
So far, all I can see is that we will either get better/ get worse/ stay the same whether on meds or/ off meds. Nothing has popped out as a sure thing.
I keep thinking How do we treat something when we don't know what that something is?
Even as much as I LOVE Cheer's work on the endothelium issue, I keep thinking that even part of that may be bad... to thin the blood and cause the platelets not to stick. The platelets are what patch the holes in the vascular walls. Am I right Cheer? Help me here.
I don't think Jimmylegs ever took any meds. She thought about it, and decided to forego them and uses supplements. (JL where ARE you?)
I went to the dentist last week, and she asked me about my MS meds. None, I told her. Good for you- thinking for yourself, she said.
Went to the GP, same week, Bad, he said. MS meds work. But they make people sick, I said. "Yes, but they work." And he chuckled to himself. I wondered if he was processing the contradiction of "it works but it makes you sick".
We all have to decide for ourselves on this one, for sure. Good luck tt89, and I hope your decision is the right one for you. Please let us know what you are thinking.
Terry

DIM · Post by **DIM** » Tue Nov 25, 2008 11:18 pm

Terry I believe endothelium is at the base of the problem, if you search about pycnogenol, resveratrol, omega-3, gingko, EGCG, salvia, curcumin and other elements are all blood thiners though beneficial to MSers!
I first read about pycnogenol's effects on MS from Bob Lawrence and Ashton Embry that are if I remember right the first that mentioned this and about vitamin D supplementation in high doses.
http://www.direct-ms.org/

MrsGeorge · Post by **MrsGeorge** » Wed Nov 26, 2008 2:54 am

pm'd you

CureOrBust · Post by **CureOrBust** » Wed Nov 26, 2008 5:14 am

DIM wrote:pycnogenol, resveratrol, omega-3, gingko, EGCG, salvia, curcumin and other elements are all blood thiners though beneficial to MSers!

The word "some" is missing in the above sentence.

Lyon · Post by **Lyon** » Fri Nov 28, 2008 2:57 pm

DIM · Post by **DIM** » Sat Nov 29, 2008 6:31 am

My wife was without meds until her first diagnosis 14 monhts ago although she has had some symptoms long time before!
But have in mind the sooner you start your therapy the better for your overall health.

Post by **jimmylegs** » Sat Nov 29, 2008 8:16 am

I don't think Jimmylegs ever took any meds. She thought about it, and decided to forego them and uses supplements. (JL where ARE you?)

i'm here terry

just not writing much

HarryZ · Post by **HarryZ** » Sat Nov 29, 2008 8:35 am

DIM wrote:My wife was without meds until her first diagnosis 14 monhts ago although she has had some symptoms long time before!
But have in mind the sooner you start your therapy the better for your overall health.

This can be debatable. The Mayo Clinic in a published article a couple of years ago, stated that it may be better to wait and see what direction your MS is headed before jumping immediately into a particular therapy. Of course, MS neuros have different opinions on this.

Some MS patients, after their initial attack, go years without any further problems. Starting them on one of the heavy duty drugs might be detrimental to their overall health as opposed to beneficial.

Harry

cheerleader · Post by **cheerleader** » Sat Nov 29, 2008 8:39 am

Wow...this is a tough subject. It's so hard to go against the medical status quo and disease modifying medications, yet these are effective in roughly only 30% of MS patients. It's a personal call. We started Jeff on Copaxone right away, since he presented with 20 lesions, and his neuro suggested it. Harry, by starting "therapy" Dim is referring to nutritional and "alternative" changes. I agree with Dim, MSers can look into diet and lifestyle changes if they don't take any meds. It can't hurt.

Terry- my program for Jeff (and Alex's and Dim's) is not really about thinning blood, per se. It's about healing the endothelial lining of the blood vessels. Docs were just meeting in Europe to discuss how the endothelium plays a part in every disease....heart, cancer and autoimmune. In each disease, the nitric oxide signaling is thrown off. I believe molecular medicine is the future, and am just trying to keep Jeff's vascular system healthy with antioxidants and anticoagulants. He's SO much better...his family couldn't believe the difference over Thanksgiving holiday. The fog has lifted, and his fatigue is all but gone. It's not a cure, but it's a huge step towards health.

Hope all's well with you, Jimmy...living situation, work, etc. Good thoughts going to the icy tundra up north.
AC

DIM · Post by **DIM** » Sat Nov 29, 2008 11:03 am

Exactly Cheer with the term "therapy" I mean a healthy diet, supplements, exercise and everything else could help.
By the way Swank diet works for MSers and is basically based on a low fat diet, fats tend to thick and cause sticky blood!
That's another reason why the abobe blood thiners may be helpful in almost all cases of MS and most of them work as antivirals-antibacterials.

Post by **jimmylegs** » Sat Nov 29, 2008 3:09 pm

thx cheer

things are normalizing a bit at last!

Hope all's well with you, Jimmy...living situation, work, etc. Good thoughts going to the icy tundra up north.